This is my daughter daisy Rae Kropf, she was born on 9-11 at OHSU hospital in portland. She has been in the NICU here ever since. She was born at 36 weeks and 6 days gestation. She has something called vacterl, and had a surgery 36 hours old. Her esophagus wasn’t attached to her stomach. (TEF) since then her surgery has fully healed. Which is great but she has been on air support ever since. She has right lung hypoplasia (partial lung). She eats through a tube going through her nose and has never eaten by mouth. Currently she has been gagging and stops breathing on her stuff she spits up. (Aspiration) and is very scary. She’s about 2 and a half months old and is 7 lbs 1 ounces. (She was born at 3 lbs 5 ounces) she is the light of our lives. We have a go fund me and would appreciate all the help we can get. Thank you. The link for the go fund me: gf.me/u/ntgw5d ................. #baby#nicubaby#daisy#ohsu#portland#love#ourbabygirl#stayingpositive#prouddad#dextrocardia#vacterlbaby#vacterl#tef#breathingsupport#sogreatful#loveofmylife#hiflow#gofundme#gofundmedonations - 15 hours ago
At the end of it you and I will be together living in our beach house with our beautiful daughter, just like I dreamed of it, I know it will become real because I believe it so much I cried with my heart when I the idea came to my mind and felt the heartbeat spreading the energy into the universe. C.R. #myqueen#ourbabygirl#ourbeachhouse - 1 day ago
Feeling your flutters , your movements and kicks ; we dreamt of your life and fell in love quick 🖤 #notlongnow#ourbabygirl - 1 day ago
Our baby girl is 5 months old! She was not feeling generous with the smiles or giggles this morning She’s rolling over like a pro, getting her first tooth, sucking her thumb and loving her Jumperoo! There’s no question what @g_lenfrench and I are most thankful for this year #audreyroseengland#ourbabygirl#5monthsold - 1 day ago
Our one and only baby girl. She was showing @it_was_mark and I some of her dances and we just watch in amazement at how far she's come. Watching her dance is one of my favorite things in this world. Never stop dancing, our beautiful girl. #onlygirl#addiejames#alwaysdance#ourbabygirl - 1 day ago
Happy 4th Birthday to our beautiful girl! We’ve been winging this parenting thing for the past 4 years, we’ve had some of the most incredible highs as well as a few lows but when I look at you I know we must be doing something right! So clever, so funny, so cheeky and silly. So caring, so loving, so kind and curious. Have the most wonderful day Paisley Rose! ️ .
#peaisfour#firstbornbaby#ourbabygirl#paisleyrose#happybirthday#birthdaygirl - 2 days ago
Every November for me, since i got married and gave birth to our baby girl, is filled with crazy amount of happiness🥰 and big amount of preparation work , cause 2 birthdays of most important people in my life happened to be in November! But don’t get me wrong, i don’t complain 🤗
Just finished 3 days celebration of 2nd birthday of Ailyn! Thanks to everyone for sharing this event with our family!
Next challenge is BD of JP! #birthdaygirl#ourbabygirl#ailynmariestern#myloves#lovemylife#lovemyfamily#homekong 🇭🇰 #scorpionseason - 2 days ago
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