Why The Campaign?
So October Down Syndrome Awareness month is in full swing! The new campaign vid ‘50 Ordinary families’ was launched live on This Morning. Myself and Henry with nine other wonderful families got to put a bum dent in Phil and Holly’s couch and one of the surrealist 24 hours happened. It was wonderful, overwhelming and incredible for the Wouldn’t Change A Thing Campaign.
A few radio interviews followed with BBC nationally and locally. It’s the local one that’s hung about in my head and why I’m writing this tonight.
It was a fabulous interview, the presenter was brilliant and worked with us to get across all we wanted to say.
During that interview a man messaged in with a question: ‘I have no experience of a child with Downs, but I do question how your son (or words of that effect) will fare as an adult?’ Now I’m annoyed at myself, I responded with my charity head on (while my stomach was churning) about potential for adults with ds and adults I knew holding down jobs, relationships and homes etc. It basically felt like I had to share successes to justify my sons existence.
Here’s what I should have said:
My son will be the absolute best he can be as an adult, I have no doubt he will be happy, the most amazing friend, kind, thoughtful and totally and utterly loved!
Should we ask how my daughter with red hair might fare as an adult or the child with a learning delay in comparison to his peers? What about the child not yet born that might been born with a condition you can’t test for, or the child that is born into a life of drugs and crime. Then there is a child that ends up in foster care and moved around continuously with no true place of home. Or a child that is just born, straight set of chromosomes nothing unusual....what about them?
Why is it ok to ask me that question because my son has Down Syndrome. Is that why it’s ok?
Well it’s not ok!
It’s not ok to ask any parent to try and predict the future and justify a child’s life on the basis that they believe they may not function as a ‘typical’ adult.
This is why we campaign! Fiercely, passionately like only tiger Mums and Dads can.
When the majority of society sees... - 29 minutes ago