When I saw that today's workout was called "Faster" I totally underestimated how fast it was really going to be 🤦🏼♀️ One thing I've realized is to anyone else coming across my page, I look like every other person trying to be fitter and healthier.
What people don't see is what's behind this smile.
For those of you who don't know, I have Ehlers-Danlos Syndrome.
I know, you're thinking, huh?
Basically it's a genetic connective tissue disorder that causes a whole slew of other issues, pretty much anything that could be affected by funky connective tissues, which happen to compose a good portion of your body, but especially the joints.
On the outside, I look completely fine and dandy, maybe a little extra bendy but that's it.
On the inside, I'm generally crying unless you've caught me on an actual good day, which is rare.
At any given moment, even on the good days, I'm in pain. All over my body.
When it rains, pain. When it snows, pain. Drastic change in temperature, pain. When god forbid there's a random change in pressure, pain
Oh and when I say pain, I don't just mean ouch that hurts, cause that's every day, no matter the weather.
I can generally tell when it's going to rain or snow just like your grandpa with the bad hip.
But I'm not writing this because I want pity or people to feel bad for me.
It's actually the opposite.
I'm writing this so spoonies and "normal" people alike can look at this and think, "wow look at how she keeps going."
But don't be fooled by this sweaty face.
I had to stop about 100 times just to catch my breath and then even more times because my ankles felt like they were going to dislocate. I'm aiming to better myself, completely, and along the way I would love to even touch ONE life.
I want more understanding, knowledge, and research.
Too many people have no idea what this is, including doctors.
I want YOU to know that I'm with you 🏼
Those days you want to quit, oh I'm there.
Those days where you would totally rather be watching Birdbox or whatever new thing is on Netflix, I'm SO with you.
I want you to know that you're not alone, no matter what, because I'm right here beside you - 58 minutes ago