In the lingo of childhood cancer, NED is the hoped-for result of regular testing and scanning. I am so happy and relieved to report that once again, Emma has no evidence of disease. I love this photo of Emma celebrating with her mom at an Illusions Museum in NYC before making their way home!
Unfortunately, though, Emma is not considered to have been cured of her cancer. Every three months she returns to the hospital in NYC for the same scans that search for signs that the cancer has returned. In fact, the sad truth is that cancer is no longer considered to be cured at all. In other words, everyone who has cancer eventually relapses, unless they die of something else, even a different cancer, first. .
With only 4% of federal cancer research funding going toward childhood cancer research, it is imperative that funds be raised to privately fund groundbreaking research like the clinical trial that has allowed Emma to remain NED for the past year and a half.
It’s easy to feel impotent in the face of such a daunting adversary as childhood cancer. But we can all make a difference in the lives of children like Emma and their families, by contributing to charitable organizations like the Children’s Cancer Research Fund. CCRF not only funds groundbreaking research, but also provides incredible quality of life services for patients and their families.
Please consider contributing to my fundraising campaign to benefit CCRF. If you purchase a hand-crafted Emma Star necklace in my Etsy shop, a donation will be made in your name. It’s a great way to support this cause and to increase awareness of childhood cancer, while enjoying a beautiful piece of jewelry made just for you! Please click the link in my bio to visit the CCRF website and the ConnieFay Designs Etsy shop!
Thank you so much for your support! - 5 minutes ago