#chronicallyawesome

42,805 posts

Now available ❣️❣️😍😍

Now available ❣️❣️ - 1 hour ago

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Coming home everyday to my boys makes everything better 💙💙💙#spooniesupportsystem #puppytherapy
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#inyofacefibro #fibromyalgia #fuckfibro #fibrowarrior #fibrostrong #fibrofit #chronicillness #wegotthis #chronicillnesswarrior #chronicallyill #chronicallyawesome #everydamnday #spoonie #spoonielife #spooniesunite #invisibleillness #wellnesswarrior #motivation #chronicpain #mentalhealthawareness #selfcare

Coming home everyday to my boys makes everything better #spooniesupportsystem #puppytherapy . . . #inyofacefibro #fibromyalgia #fuckfibro #fibrowarrior #fibrostrong #fibrofit #chronicillness #wegotthis #chronicillnesswarrior #chronicallyill #chronicallyawesome #everydamnday #spoonie #spoonielife #spooniesunite #invisibleillness #wellnesswarrior #motivation #chronicpain #mentalhealthawareness #selfcare - 3 hours ago

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I’d say Sunday meal prep went well 😋🤪
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I’ve got plans for the week, lots to do and workouts to enjoy. 
So what I won’t be doing is eating crappy food or wasting time in the kitchen when I could be working. •
There’s something good for my brain about feeling prepared for the week! 😍😊☺️

I’d say Sunday meal prep went well 🤪 • • • I’ve got plans for the week, lots to do and workouts to enjoy. So what I won’t be doing is eating crappy food or wasting time in the kitchen when I could be working. • There’s something good for my brain about feeling prepared for the week! ️ - 3 hours ago

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Beauty is all around ❤️

Beauty is all around ️ - 5 hours ago

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“It’s not the mountain we conquer, but ourselves.” -Edmund Hillary 
Two miles of mud and rocks later, I’m crashing on the couch. But I did this! ⛰ 
#cidp #chronicallyawesome

“It’s not the mountain we conquer, but ourselves.” -Edmund Hillary Two miles of mud and rocks later, I’m crashing on the couch. But I did this! ⛰ #cidp #chronicallyawesome - 6 hours ago

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Let’s all “practise compassion” ❤️

Let’s all “practise compassion” ️ - 6 hours ago

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Felt like Spring in Atlanta today! Feeling super accomplished! Heading into a very busy and hectic work week tomorrow. I must remind myself to deep breathe and take each day one at a time to prevent getting overwhelmed and stressed! 🤞🏼❤️
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#ulcerativecolitis #ulcerativecolitisdiet #ulcerativecolitisfighter #ulcerativecolitisawareness #ulcerativecolitiswarrior #healthylifestyle #ulcerativecolitissucks #crohnsandcolitis #ulcerativecolitissurvivor #uc #ibd #ibdfighter #ibdwarrior #ibdawareness #ibs #sibo #sibosucks #chronicillness #chronicdisease #invisibleillness #guthealth #myjourney #chronicallyawesome #selfcare #selflove #spoonie #chronicallyawesome #beautycounter #cleanbeauty

Felt like Spring in Atlanta today! Feeling super accomplished! Heading into a very busy and hectic work week tomorrow. I must remind myself to deep breathe and take each day one at a time to prevent getting overwhelmed and stressed! 🤞🏼️ • • #ulcerativecolitis #ulcerativecolitisdiet #ulcerativecolitisfighter #ulcerativecolitisawareness #ulcerativecolitiswarrior #healthylifestyle #ulcerativecolitissucks #crohnsandcolitis #ulcerativecolitissurvivor #uc #ibd #ibdfighter #ibdwarrior #ibdawareness #ibs #sibo #sibosucks #chronicillness #chronicdisease #invisibleillness #guthealth #myjourney #chronicallyawesome #selfcare #selflove #spoonie #chronicallyawesome #beautycounter #cleanbeauty - 6 hours ago

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This couldn't be more true 🔝. Still trying to figure out how to fix this shit with my website. 😑
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#spoonies #spoonielife #blog #loyal #mentalhealth #mentalhealthawareness #anxiety #chronicalillness #chronicallyill #invisibleillness #lupus #lupusawareness #sle #lupuswarriors #cin #wordgasm #dream #chronicallyawesome #chronicallyillmom #lupuswarrior #quotes #anxietyquotes #lupusproblems #ipreview @preview.app

This couldn't be more true . Still trying to figure out how to fix this shit with my website. 😑 • • #spoonies #spoonielife #blog #loyal #mentalhealth #mentalhealthawareness #anxiety #chronicalillness #chronicallyill #invisibleillness #lupus #lupusawareness #sle #lupuswarriors #cin #wordgasm #dream #chronicallyawesome #chronicallyillmom #lupuswarrior #quotes #anxietyquotes #lupusproblems #ipreview @preview.app - 7 hours ago

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I feel like if I was a magical girl this would be my pose.

#twitch #twitchstreamer #twitchaffiliate #twitchgirls #twitchgamer #twitchgirl #twitchcommunity #streamer #streamersofinstagram #streamerlife #gamergirl #gamergirls #gamer #girlswithpiercings #gaming #brunette #latina #chronicallyfabulous #chronicallyill #chronicallyawesome #lgbt #lgbtq #n3rdforyou #snapchat #filter #snap #mexican #puertorican

I feel like if I was a magical girl this would be my pose. #twitch #twitchstreamer #twitchaffiliate #twitchgirls #twitchgamer #twitchgirl #twitchcommunity #streamer #streamersofinstagram #streamerlife #gamergirl #gamergirls #gamer #girlswithpiercings #gaming #brunette #latina #chronicallyfabulous #chronicallyill #chronicallyawesome #lgbt #lgbtq #n3rdforyou #snapchat #filter #snap #mexican #puertorican - 8 hours ago

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Even training and play in the park and at home, just what we needed after a day with mostly just sleeping 👌🏻😋 #justwhatineeded

Even training and play in the park and at home, just what we needed after a day with mostly just sleeping 🏻 #justwhatineeded - 8 hours ago

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Sunday funday 🥳 = in bed before 9 pm. All my spoonies can relate ❤️ But everything is okay cuz I brought my favourite cuddle buddies 😍 #spoonie #spoonielife #chronicillness #chronicallyawesome #cuddlebuddies #catsofinstagram #bunniesofinstagram #snugglemonster #pleaseexcusethetackypjs

Sunday funday 🥳 = in bed before 9 pm. All my spoonies can relate ️ But everything is okay cuz I brought my favourite cuddle buddies #spoonie #spoonielife #chronicillness #chronicallyawesome #cuddlebuddies #catsofinstagram #bunniesofinstagram #snugglemonster #pleaseexcusethetackypjs - 9 hours ago

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The feeling of zipping this neg drier up is something akin to closing a sleeping bag. Many near associations.

Image description: a colour photo of a negative drying machine, with the plastic cover unzipped and falling open.

#SingleLensReflux
#FilmsNotDead
#ShootFilmStayBroke
#OnFilm
#ShootOnFilm
#FilmWave
#AnalogueFilm
#AnaloguePhotography
#FilmPhotography
#FilmPhotographic
#FilmCommunity
#IShootFilm
#FemaleGaze
#FemaleGays
#WomanPhotographer
#QueerPhotographer
#CripPhotographer
#DisabledPhotographer
#FemalePhotographer
#CrippingTheArts
#DisabilityArts
#ChronicallyAwesome

The feeling of zipping this neg drier up is something akin to closing a sleeping bag. Many near associations. Image description: a colour photo of a negative drying machine, with the plastic cover unzipped and falling open. #SingleLensReflux #FilmsNotDead #ShootFilmStayBroke #OnFilm #ShootOnFilm #FilmWave #AnalogueFilm #AnaloguePhotography #FilmPhotography #FilmPhotographic #FilmCommunity #IShootFilm #FemaleGaze #FemaleGays #WomanPhotographer #QueerPhotographer #CripPhotographer #DisabledPhotographer #FemalePhotographer #CrippingTheArts #DisabilityArts #ChronicallyAwesome - 9 hours ago

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They call this "pandiculation". Image description: a colour photograph of a long haired cat caught mid yawn) (Olympus OM2n, Kodak Colour Plus 200)

#SingleLensReflux
#FilmsNotDead
#ShootFilmStayBroke
#OnFilm
#ShootOnFilm
#FilmWave
#AnalogueFilm
#AnaloguePhotography
#FilmPhotography
#FilmPhotographic
#FilmCommunity
#IShootFilm
#FemaleGaze
#FemaleGays
#WomanPhotographer
#QueerPhotographer
#CripPhotographer
#DisabledPhotographer
#FemalePhotographer
#CrippingTheArts
#DisabilityArts
#ChronicallyAwesome

They call this "pandiculation". Image description: a colour photograph of a long haired cat caught mid yawn) (Olympus OM2n, Kodak Colour Plus 200) #SingleLensReflux #FilmsNotDead #ShootFilmStayBroke #OnFilm #ShootOnFilm #FilmWave #AnalogueFilm #AnaloguePhotography #FilmPhotography #FilmPhotographic #FilmCommunity #IShootFilm #FemaleGaze #FemaleGays #WomanPhotographer #QueerPhotographer #CripPhotographer #DisabledPhotographer #FemalePhotographer #CrippingTheArts #DisabilityArts #ChronicallyAwesome - 9 hours ago

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Sanding tiles listening to some perfect music #deltabombers #craftday #mswarrior #wonderwoman #chronicallyawesome #whoneedssleep

Sanding tiles listening to some perfect music #deltabombers #craftday #mswarrior #wonderwoman #chronicallyawesome #whoneedssleep - 10 hours ago

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Today was all about fresh air and gentle walking ☺️☀️💓 How’s your weekend been?

Today was all about fresh air and gentle walking How’s your weekend been? - 10 hours ago

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Posted a new blog post today, explaining what it feels like to have a chronic illness. I wake up every morning to realize that my phone battery is only charged 20%. The link is in my bio! ❤️ #fatigue

Posted a new blog post today, explaining what it feels like to have a chronic illness. I wake up every morning to realize that my phone battery is only charged 20%. The link is in my bio! #fatigue - 11 hours ago

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Take it one day at a time. Sometimes this illness is hard, it brings so many challenges... so many days that are good we look at tomorrow with fear thinking about how tomorrow might be worse and how much time we got from this good day that we can enjoy. Or we are having a bad day and we cant wait to see the next day to see if it will be better. Its better to live through each day, good or bad, enjoying what we can from each second. There will be bad days but even on a bad day, there are still good things to be thankful for. Give out love, take care of you and do what you need to do to make yourself feel better. 
Love every single day❤️ #fibromyalgia #fibromyalgiawarrior #chronicillness #chronicfatiguesyndrome #chronicpain #chronicpainawareness #chronicillnessawareness #chronicallyawesome

Take it one day at a time. Sometimes this illness is hard, it brings so many challenges... so many days that are good we look at tomorrow with fear thinking about how tomorrow might be worse and how much time we got from this good day that we can enjoy. Or we are having a bad day and we cant wait to see the next day to see if it will be better. Its better to live through each day, good or bad, enjoying what we can from each second. There will be bad days but even on a bad day, there are still good things to be thankful for. Give out love, take care of you and do what you need to do to make yourself feel better. Love every single day#fibromyalgia #fibromyalgiawarrior #chronicillness #chronicfatiguesyndrome #chronicpain #chronicpainawareness #chronicillnessawareness #chronicallyawesome - 12 hours ago

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Our new business will be opened soon!!! Please go follow the Instagram page. We will attend craft fairs and we do ship products out as well! Please be supportive. 
#chronicallyawesome #chroniclife #chronicillness #chronicpain #chronicpainwarrior #chronicmom #spoonielife #spoonieworrior #spoonieunicorn #spoonie #anxiety #ptsd #endometriosis #fibromyalgia #okc #oklahoma #newbusiness #homemade #handmade #fragrantdelights2019

Our new business will be opened soon!!! Please go follow the Instagram page. We will attend craft fairs and we do ship products out as well! Please be supportive. #chronicallyawesome #chroniclife #chronicillness #chronicpain #chronicpainwarrior #chronicmom #spoonielife #spoonieworrior #spoonieunicorn #spoonie #anxiety #ptsd #endometriosis #fibromyalgia #okc #oklahoma #newbusiness #homemade #handmade #fragrantdelights2019 - 12 hours ago

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About yesterday in Minneapolis...since Spring has supposedly ‘sprung’ now and my medicines were working enough for this #homebound gal to feel deece, my PCA and I decided to enjoy the outdoors; you know: snap a few pics for proof (I couldn’t believe I was able to go out myself). I went outside to the pool deck of my building in my slipper socks (shoes take way too long and too much energy!!), cute layered tops, floral wheel covers, a life saving hat bc holy sunshine batman, earbuds (always), rocking my fancy patch and rose colored glasses. Best 20 minutes ever.
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These moments are everything, and can help keep you going when stuff isn’t so sweet. You know what I mean? (Like writing this from under covers with various medicine & dispensers surrounding me, cowering as I write this because the lowest light setting on my phone is even too bright.)
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Welp, back to my regularly scheduled Taz episode. Here’s hoping for things to lift in my brizzain so I can “do”. Doing is so rad, I literally long for it sometimes. I guess this is just a reminder to be grateful for all the “doing” in your life and living it however makes you happy!
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[Image Description: Erin in her wheelchair smiling on a patio with tall city buildings in the background.]

About yesterday in Minneapolis...since Spring has supposedly ‘sprung’ now and my medicines were working enough for this #homebound gal to feel deece, my PCA and I decided to enjoy the outdoors; you know: snap a few pics for proof (I couldn’t believe I was able to go out myself). I went outside to the pool deck of my building in my slipper socks (shoes take way too long and too much energy!!), cute layered tops, floral wheel covers, a life saving hat bc holy sunshine batman, earbuds (always), rocking my fancy patch and rose colored glasses. Best 20 minutes ever. . These moments are everything, and can help keep you going when stuff isn’t so sweet. You know what I mean? (Like writing this from under covers with various medicine & dispensers surrounding me, cowering as I write this because the lowest light setting on my phone is even too bright.) . Welp, back to my regularly scheduled Taz episode. Here’s hoping for things to lift in my brizzain so I can “do”. Doing is so rad, I literally long for it sometimes. I guess this is just a reminder to be grateful for all the “doing” in your life and living it however makes you happy! . [Image Description: Erin in her wheelchair smiling on a patio with tall city buildings in the background.] - 12 hours ago

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No #workshop today... Just #bricklaying 😂

#nocolonstillrollin #chronicallyawesome #imstillstanding #hajewellery

No #workshop today... Just #bricklaying #nocolonstillrollin #chronicallyawesome #imstillstanding #hajewellery - 13 hours ago

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Apparently I guess living might come with more complications that initially promised 😂 #chronicillnesswarrior #chronicillness #chronicallyawesome #bloodsugar #spoonielife

Apparently I guess living might come with more complications that initially promised #chronicillnesswarrior #chronicillness #chronicallyawesome #bloodsugar #spoonielife - 14 hours ago

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Guys, this is Terry.
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So there I am, cane-dancing to 80's new wave with my #bestbetch , @sucmyleft1 , at I-bar after a glorious set from @ordinaryboys_smithsmoztribute , minding my own business... And who should appear out of nowhere?
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Terry Motherfucking Isom. My long time support group of one. My cheerleader through the hell that is neurodegenerative disease appears on the dance floor.
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This guy. I met Terry at crossfit about 5 years ago and we instantly bonded over neuro fuckery and trying to get fit despite it.
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Terry is hands down the most enthusiastic encourager when you are struggling and slogging through a workout or LIFE.
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I'm lucky to have this guy always checking in on me and making me laugh. If you are in the shit, I strongly encourage you to watch some of @terryleeisomjr 's videos of singing in the grocery or while cooking and TRY not to laugh. I dare you.
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Love you, Terry! So glad I got to see you and dance with you before I'm laid up for months!! Muah! 🤩😘
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#canedancer #SOworththespoons #fuckMS #fuckscoliosistoo #chronicallyawesome

Guys, this is Terry. ⠀ So there I am, cane-dancing to 80's new wave with my #bestbetch , @sucmyleft1 , at I-bar after a glorious set from @ordinaryboys_smithsmoztribute , minding my own business... And who should appear out of nowhere? ⠀ Terry Motherfucking Isom. My long time support group of one. My cheerleader through the hell that is neurodegenerative disease appears on the dance floor. ⠀ This guy. I met Terry at crossfit about 5 years ago and we instantly bonded over neuro fuckery and trying to get fit despite it. ⠀ Terry is hands down the most enthusiastic encourager when you are struggling and slogging through a workout or LIFE. ⠀ I'm lucky to have this guy always checking in on me and making me laugh. If you are in the shit, I strongly encourage you to watch some of @terryleeisomjr 's videos of singing in the grocery or while cooking and TRY not to laugh. I dare you. ⠀ Love you, Terry! So glad I got to see you and dance with you before I'm laid up for months!! Muah! 🤩#canedancer #SOworththespoons #fuckMS #fuckscoliosistoo #chronicallyawesome - 14 hours ago

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I have a few loose screws....literally. 🤨 My osteoporosis has gotten progressively worse, like rotten wood. Combined with EDS, my pelvis is falling apart. Please send duck tape! #AFewSrewsLoose #DuckTapeFixesEverthing #ehlersdanlossyndrome #osteoporosis #chronicallyawesome

I have a few loose screws....literally. 🤨 My osteoporosis has gotten progressively worse, like rotten wood. Combined with EDS, my pelvis is falling apart. Please send duck tape! #AFewSrewsLoose #DuckTapeFixesEverthing #ehlersdanlossyndrome #osteoporosis #chronicallyawesome - 15 hours ago

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Here’s another tiny victory. ⁣⁣⁣
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Yesterday I prepped and cooked our supper on my own. I don’t do that very often anymore. But I tried to be way more strategic about it this time. I gathered everything I needed together on one counter and then sat in my chair and didn’t get up once throughout the process. ⁣⁣
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I prepped at my accessible counter and scooted around the kitchen to do what needed to be done. I had energy and wasn’t falling over. It took a little longer but it was a far more enjoyable experience and I got through it all on my own. Sitting down makes life a lot easier (when things are accessible of course). ⁣⁣⁣
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⭐️ ⭐️ ⭐️ ⭐️ ⭐️ ⁣⁣⁣
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Would cook without using my legs again.

Here’s another tiny victory. ⁣⁣⁣ ⁣⁣⁣ Yesterday I prepped and cooked our supper on my own. I don’t do that very often anymore. But I tried to be way more strategic about it this time. I gathered everything I needed together on one counter and then sat in my chair and didn’t get up once throughout the process. ⁣⁣ ⁣⁣ I prepped at my accessible counter and scooted around the kitchen to do what needed to be done. I had energy and wasn’t falling over. It took a little longer but it was a far more enjoyable experience and I got through it all on my own. Sitting down makes life a lot easier (when things are accessible of course). ⁣⁣⁣ ⁣⁣⁣ ️ ⁣⁣⁣ ⁣ Would cook without using my legs again. - 15 hours ago

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✨{ SLOW DOWN}✨ It’s so easy to get caught up in what has to get done or what goals we want to meet. •
We tend to forget to live in the moment, to appreciate what’s around us, and to enjoy ourselves. •
How can you slow down today and appreciate where you are right now?

{ SLOW DOWN} It’s so easy to get caught up in what has to get done or what goals we want to meet. • We tend to forget to live in the moment, to appreciate what’s around us, and to enjoy ourselves. • How can you slow down today and appreciate where you are right now? - 15 hours ago

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OVERCORRECTING? I’ve taken on a LOT lately. As I type this I can hear past-me laughing down the time/space continuum, who more often than not worked 12hr+ days & most weekends during my career in advertising agencies.
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But past-me isn’t present-me, not by a long shot. My mind is still ravaged by the detrimental neurological & cognitive effects of 5+ years of heavy medications. My body is still relatively deconditioned from 4+ years of being confined mostly to bed. .
The end of this week rounded out my first month of not only working in my new part-time job, but also teaching 2nd & 3rd year classes part-time at university AND studying x3 units myself.
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Last week alone I worked 25hrs, attended all of my classes, completed all of my homework & smashed out 1,200 word essays x2. This time last year it was a struggle to leave the house for more than 1hr at a time.
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People seem to think now that I have legal access to medical cannabis, my pain is gone.
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It’s not.
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I have a very painful connective tissue disorder that hurts like a mofo daily. The major difference is that now the pain is bearable. I can push through.
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But not without a major effort & a very strict routine that includes: physical therapy; personal training; carefully executed rehabilitation; a strict nutrition regime; lots of sleep; and a shitload of grit & determination to make up for a fucktonne of time that was lost to this “ball ache” of a chronic illness (to quote my fellow EDS Queen @jameelajamilofficial).
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The trick is to know when to push myself & extend my capabilities, & when to pull back. It’s a delicate dance that unfortunately all of those with a chronic illness have no choice but to partake in.
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Have I overcorrected? Maybe. I remain ever vigilant for signs & signals of a flare.
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But for now I am enjoying this exhaustion, because for the first time in years I feel like I’ve accomplished something, other than just surviving the day, to arrive at this feeling.
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It’s hard, but it’s worth it & I’m living proof that you can reclaim your life, you just have to be prepared for the reality that it will look very different to how you might have imagined it. And that’s ok too.

OVERCORRECTING? I’ve taken on a LOT lately. As I type this I can hear past-me laughing down the time/space continuum, who more often than not worked 12hr+ days & most weekends during my career in advertising agencies. . But past-me isn’t present-me, not by a long shot. My mind is still ravaged by the detrimental neurological & cognitive effects of 5+ years of heavy medications. My body is still relatively deconditioned from 4+ years of being confined mostly to bed. . The end of this week rounded out my first month of not only working in my new part-time job, but also teaching 2nd & 3rd year classes part-time at university AND studying x3 units myself. . Last week alone I worked 25hrs, attended all of my classes, completed all of my homework & smashed out 1,200 word essays x2. This time last year it was a struggle to leave the house for more than 1hr at a time. . People seem to think now that I have legal access to medical cannabis, my pain is gone. . It’s not. . I have a very painful connective tissue disorder that hurts like a mofo daily. The major difference is that now the pain is bearable. I can push through. . But not without a major effort & a very strict routine that includes: physical therapy; personal training; carefully executed rehabilitation; a strict nutrition regime; lots of sleep; and a shitload of grit & determination to make up for a fucktonne of time that was lost to this “ball ache” of a chronic illness (to quote my fellow EDS Queen @jameelajamilofficial ). . The trick is to know when to push myself & extend my capabilities, & when to pull back. It’s a delicate dance that unfortunately all of those with a chronic illness have no choice but to partake in. . Have I overcorrected? Maybe. I remain ever vigilant for signs & signals of a flare. . But for now I am enjoying this exhaustion, because for the first time in years I feel like I’ve accomplished something, other than just surviving the day, to arrive at this feeling. . It’s hard, but it’s worth it & I’m living proof that you can reclaim your life, you just have to be prepared for the reality that it will look very different to how you might have imagined it. And that’s ok too. - 16 hours ago

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• waiting for the summer 🌄✨
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#vscorussia #vscocam #videorussia  #video #naturephotography #inshot #chronicallyawesome #natureshots #ptk_nature #world

• waiting for the summer . . . #vscorussia #vscocam #videorussia #video #naturephotography #inshot #chronicallyawesome #natureshots #ptk_nature #world - 17 hours ago

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My sleep pattern is starting to seriously suck... #mswarrior #chronicallyawesome #wonderwoman #norestfothewicked

My sleep pattern is starting to seriously suck... #mswarrior #chronicallyawesome #wonderwoman #norestfothewicked - 18 hours ago

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Jo with #behcetsdisease and #chronicpain #raredisease #vasculitis #inflammation #veins #warrior #chronicillness #chronicallyawesome #chronicpainawareness #rarediseaseawareness #chronicallyillphotos

Jo with #behcetsdisease and #chronicpain #raredisease #vasculitis #inflammation #veins #warrior #chronicillness #chronicallyawesome #chronicpainawareness #rarediseaseawareness #chronicallyillphotos - 19 hours ago

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I had such a lovely day yesterday, and I’m now holding on to those memories to get me through the crazy levels of pain today 💜 it’s definitely 1-0 to fibro today! #fibromyalgia #fibro #fibrofighter #chronicillness #chronicpain #brainfog #sickgirl #butyoudontlooksick #crohnsdisease #crohnsandcolitis #pain #chronicallyawesome #potssyndrome #me #myalgicencephalomyelitisawareness

I had such a lovely day yesterday, and I’m now holding on to those memories to get me through the crazy levels of pain today it’s definitely 1-0 to fibro today! #fibromyalgia #fibro #fibrofighter #chronicillness #chronicpain #brainfog #sickgirl #butyoudontlooksick #crohnsdisease #crohnsandcolitis #pain #chronicallyawesome #potssyndrome #me #myalgicencephalomyelitisawareness - 19 hours ago

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I think it’s at times of trauma or crisis that you get to see the true technicolour of just how much you are loved. 
What were the good things that happened to you around the time you or your child were diagnosed with type 1 diabetes or another chronic illness? 
So many people reached out to me in different ways I probably won’t remember it all here now. A couple of things that stand out in my memory, along with the WhatsApp and email groups my friends and family set up for me to be able to update everyone, was my best friend buying me my fave H&M t-shirt in every colour (because it all happened whilst I was on holiday so I had no clothes with me) and the group of my mum’s work colleagues who worked together to make this beautiful quilt for Little A. The t-shirts became my ‘new mum of a type 1 diabetic and PCDer’ uniform, and it was great not to have to think about getting dressed each day. I still wear them all now. The quilt is testament to how much my mum is loved at work and it’s quite extraordinary how people I have never met can put so much time and effort into making something. Instead of re-living the trauma of those terrible times, wearing the t-shirts, or looking at the quilt reminds me of all the positives that have come out of a difficult time and how loved we all are. #type1diabetes #type1diabeticlife #primaryciliarydyskinesia #pcdawareness #trauma #findingthepositive #t1d #type1diabetic #type1diabetesawareness #childrenwithdiabetes #type1toddler #type1 #typeonediabetes #quilting #quilt #quiltsofinstgram #lungdisease #chronicillness #chronicallyill #chronicallyawesome #type1hero #type1warrior #feelingloved #3yearsold #toddlersofinsta #mygirl

I think it’s at times of trauma or crisis that you get to see the true technicolour of just how much you are loved. What were the good things that happened to you around the time you or your child were diagnosed with type 1 diabetes or another chronic illness? So many people reached out to me in different ways I probably won’t remember it all here now. A couple of things that stand out in my memory, along with the WhatsApp and email groups my friends and family set up for me to be able to update everyone, was my best friend buying me my fave H&M t-shirt in every colour (because it all happened whilst I was on holiday so I had no clothes with me) and the group of my mum’s work colleagues who worked together to make this beautiful quilt for Little A. The t-shirts became my ‘new mum of a type 1 diabetic and PCDer’ uniform, and it was great not to have to think about getting dressed each day. I still wear them all now. The quilt is testament to how much my mum is loved at work and it’s quite extraordinary how people I have never met can put so much time and effort into making something. Instead of re-living the trauma of those terrible times, wearing the t-shirts, or looking at the quilt reminds me of all the positives that have come out of a difficult time and how loved we all are. #type1diabetes #type1diabeticlife #primaryciliarydyskinesia #pcdawareness #trauma #findingthepositive #t1d #type1diabetic #type1diabetesawareness #childrenwithdiabetes #type1toddler #type1 #typeonediabetes #quilting #quilt #quiltsofinstgram #lungdisease #chronicillness #chronicallyill #chronicallyawesome #type1hero #type1warrior #feelingloved #3yearsold #toddlersofinsta #mygirl - 20 hours ago

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I’ve cried at least twenty times today. Everything and anything makes me tear up. I’m feeling grief on top of grief.

Grief for the loss of a generation. Grief for everyone else we’ve lost recently. Grief for loss that inevitably will come. Grief for what this illness has made me lose.

But through all of it, I somehow feel oh so grateful. I somehow feel full and warm and soft in my heart. I somehow see all the boring and banal as more startlingly mesmerizing than ever. I somehow feel compassion towards my messy and chaotic vulnerability. And that’s a truly beautiful thing.

#loveandloss #grief #loss #selflove #selfloveclub #rumblinginvulnerability #inyofacefibro #fibromyalgia #fuckfibro #fibrowarrior #fibrostrong #fibrofit #chronicillness #wegotthis #chronicillnesswarrior #chronicallyill #chronicallyawesome #everydamnday #spoonie #spoonielife #spooniesunite #invisibleillness #wellnesswarrior #motivation #chronicpain #mentalhealthawareness #selfcare

I’ve cried at least twenty times today. Everything and anything makes me tear up. I’m feeling grief on top of grief. Grief for the loss of a generation. Grief for everyone else we’ve lost recently. Grief for loss that inevitably will come. Grief for what this illness has made me lose. But through all of it, I somehow feel oh so grateful. I somehow feel full and warm and soft in my heart. I somehow see all the boring and banal as more startlingly mesmerizing than ever. I somehow feel compassion towards my messy and chaotic vulnerability. And that’s a truly beautiful thing. #loveandloss #grief #loss #selflove #selfloveclub #rumblinginvulnerability #inyofacefibro #fibromyalgia #fuckfibro #fibrowarrior #fibrostrong #fibrofit #chronicillness #wegotthis #chronicillnesswarrior #chronicallyill #chronicallyawesome #everydamnday #spoonie #spoonielife #spooniesunite #invisibleillness #wellnesswarrior #motivation #chronicpain #mentalhealthawareness #selfcare - 23 hours ago

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Following more of a weight lifting diet along with weight watchers. It’s a little bit lower in protein though because of my having gout. 4-5 meals a day. This one is 8 points. A bowl of uncle bend basmati, some chicken, coconut aminos and a lot of different veggies. And then some berries with a drizzle of local honey. This is also #glutenfree and #dairyfree. My first full day without either. Ended the day at the top of my #ww point range which was my goal. 
#transformation #foodjournal #weightlifting  #ftm #mindfulness #healthandfitness #fitbit #intermittentfasting #beatdepression  #beatanxiety  #healthandwellness #transman #eatingdisorderrecovery #ftmfitness #chronicpain #chroniclyme #chronicillness  #chronicallyawesome #keepswimming #nevergiveup #weightwatchers #onedayatatime #lifestyle

Following more of a weight lifting diet along with weight watchers. It’s a little bit lower in protein though because of my having gout. 4-5 meals a day. This one is 8 points. A bowl of uncle bend basmati, some chicken, coconut aminos and a lot of different veggies. And then some berries with a drizzle of local honey. This is also #glutenfree and #dairyfree . My first full day without either. Ended the day at the top of my #ww point range which was my goal. #transformation #foodjournal #weightlifting #ftm #mindfulness #healthandfitness #fitbit #intermittentfasting #beatdepression #beatanxiety #healthandwellness #transman #eatingdisorderrecovery #ftmfitness #chronicpain #chroniclyme #chronicillness #chronicallyawesome #keepswimming #nevergiveup #weightwatchers #onedayatatime #lifestyle - 1 day ago

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Hey everyone! Kind of inspired by @brizzyvoices I made myself as a #dnd character, and had a lot of fun! Link is in my bio ✨
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#dungeonsanddragons #spoonie #spoonielife #chronicallyill #chronicallyawesome #actuallyautistic #wheelie #wheelchairgirl

Hey everyone! Kind of inspired by @brizzyvoices I made myself as a #dnd character, and had a lot of fun! Link is in my bio . . . #dungeonsanddragons #spoonie #spoonielife #chronicallyill #chronicallyawesome #actuallyautistic #wheelie #wheelchairgirl - 1 day ago

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Hey all! It’s been a while since I’ve introduced myself on here so I figured I’d post an intro here and on my story to reach all of the new friendly faces I’ve seen lately. ☺️⁣⁣
• My name is Ali, and I am 22 years old residing in Southwest Florida, USA! 🌴🌞⁣
• I have a fiery attitude and you’ll hear me joke + curse a lot. I make ugly faces. I post pics in my undies. I smoke a fuck ton of weed. I’m an open book, and I’m not ashamed of myself. It’s taken me a lot to get here and I won’t let anyone put me back in the box I finally climbed out of. 🤷🏼‍♀️ ⁣⁣
• I am engaged to my high school sweetheart with whom I live & raise our fur babies, Stella & Lenny. I am a #cannabis user and believe it’s a miracle plant. If you’re not supportive of CBD or THC, or medical cannabis in general, this probably isn’t the page for you! No hard feelings. 💓⁣⁣
• Iam #chronicallyill and have diagnosed #Vaginismus, #PTSD, #PanicDisorder, #ChronicFatigue,  #IrritableBowelSyndrome + #Insomnia as well as #undiagnosed chronic pain, suspected #POTS, + an unexplained mass under my left rib cage. I’ve been battling my own body since I was a child and as I age the war just rages on. I started this page because I wanted to attempt to document the timeline of my demise and hopefully spread some awareness +  gain support thru an online platform. Thus, @TheBodyWars was born!🌪💥⁣⁣
•I have attended Pelvic Floor Physical Therapy 2x weekly since mid-June 2018 with minimal improvement to sexual and bowel/urinal function. 👎🏼⁣⁣
• You can check out my Highlights for any info I might have left out. ☺️🤗⁣
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I hope this has covered all the bases! If you have any questions or comments my inbox is always open. 🤗💓⁣⁣
Keep fighting the good fight y’all. 💪🏼

Hey all! It’s been a while since I’ve introduced myself on here so I figured I’d post an intro here and on my story to reach all of the new friendly faces I’ve seen lately. ️⁣⁣ • My name is Ali, and I am 22 years old residing in Southwest Florida, USA! 🌞⁣ • I have a fiery attitude and you’ll hear me joke + curse a lot. I make ugly faces. I post pics in my undies. I smoke a fuck ton of weed. I’m an open book, and I’m not ashamed of myself. It’s taken me a lot to get here and I won’t let anyone put me back in the box I finally climbed out of. 🤷🏼‍♀️ ⁣⁣ • I am engaged to my high school sweetheart with whom I live & raise our fur babies, Stella & Lenny. I am a #cannabis user and believe it’s a miracle plant. If you’re not supportive of CBD or THC, or medical cannabis in general, this probably isn’t the page for you! No hard feelings. ⁣⁣ • Iam #chronicallyill and have diagnosed #Vaginismus , #PTSD , #PanicDisorder , #ChronicFatigue , #IrritableBowelSyndrome + #Insomnia as well as #undiagnosed chronic pain, suspected #POTS , + an unexplained mass under my left rib cage. I’ve been battling my own body since I was a child and as I age the war just rages on. I started this page because I wanted to attempt to document the timeline of my demise and hopefully spread some awareness + gain support thru an online platform. Thus, @TheBodyWars was born!🌪⁣⁣ •I have attended Pelvic Floor Physical Therapy 2x weekly since mid-June 2018 with minimal improvement to sexual and bowel/urinal function. 🏼⁣⁣ • You can check out my Highlights for any info I might have left out. ️🤗⁣ -⁣⁣ I hope this has covered all the bases! If you have any questions or comments my inbox is always open. 🤗⁣⁣ Keep fighting the good fight y’all. 🏼 - 1 day ago

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Every once and a while we step out of the house! I know how scary it can be to leave the house when you are having tummy trouble! I see you and I see how brave you are! We can be even braver together as an IBD tribe! Sending warm wishes to all! 🌈
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#ulcerativecolitis #ulcerativecolitisdiet #ulcerativecolitisfighter #ulcerativecolitisawareness #ulcerativecolitiswarrior #healthylifestyle #ulcerativecolitissucks #crohnsandcolitis #ulcerativecolitissurvivor #uc #ibd #ibdfighter #ibdwarrior #ibdawareness #ibs #sibo #sibosucks #chronicillness #chronicdisease #invisibleillness #guthealth #myjourney #chronicallyawesome #selfcare #selflove #spoonie #chronicallyawesome #beautycounter #cleanbeauty

Every once and a while we step out of the house! I know how scary it can be to leave the house when you are having tummy trouble! I see you and I see how brave you are! We can be even braver together as an IBD tribe! Sending warm wishes to all! • • #ulcerativecolitis #ulcerativecolitisdiet #ulcerativecolitisfighter #ulcerativecolitisawareness #ulcerativecolitiswarrior #healthylifestyle #ulcerativecolitissucks #crohnsandcolitis #ulcerativecolitissurvivor #uc #ibd #ibdfighter #ibdwarrior #ibdawareness #ibs #sibo #sibosucks #chronicillness #chronicdisease #invisibleillness #guthealth #myjourney #chronicallyawesome #selfcare #selflove #spoonie #chronicallyawesome #beautycounter #cleanbeauty - 1 day ago

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Pretty wicked lightning storm. 
#chronicallyawesome #chroniclife #chronicillness #chronicpain #chronicpainwarrior #chronicmom #spoonielife #spoonieworrior #socialanxiety #sensoryprocessingdisorder #ptsd #anxiety #endometriosis #fibrowarrior #fibromyalgia #okc #storms

Pretty wicked lightning storm. #chronicallyawesome #chroniclife #chronicillness #chronicpain #chronicpainwarrior #chronicmom #spoonielife #spoonieworrior #socialanxiety #sensoryprocessingdisorder #ptsd #anxiety #endometriosis #fibrowarrior #fibromyalgia #okc #storms - 1 day ago

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Happy Sunday ☀️ hope everyone is having a great weekend so far even if your not feeling the best I just want to tell you, you’re amazing and you got this 🙌🏻💕• #mitrofanoff #youdontlooksick #kidneydisease #endo #spoonie #endometriosis #chronicloveclub #chronicwarrior #chronicallyill #chronicpain #chronicallyawesome #sickgirlsclub #selflove #chronicpainawareness #endometriosisawareness #ckd #chronicpainwarrior #chronicpainsucks #chronicchicks

Happy Sunday ️ hope everyone is having a great weekend so far even if your not feeling the best I just want to tell you, you’re amazing and you got this 🏻#mitrofanoff #youdontlooksick #kidneydisease #endo #spoonie #endometriosis #chronicloveclub #chronicwarrior #chronicallyill #chronicpain #chronicallyawesome #sickgirlsclub #selflove #chronicpainawareness #endometriosisawareness #ckd #chronicpainwarrior #chronicpainsucks #chronicchicks - 1 day ago

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I had a great event today! Thank you to my wonderful family for all of your support! My heart is full. 💖 #crafts #crafter #inpirationaljewelry #inspirationalart #chronicallyawesome #spoonie #chronicartist #spoonieartist #chroniccrafter #fibrowarrior #myheartisfull #family

I had a great event today! Thank you to my wonderful family for all of your support! My heart is full. #crafts #crafter #inpirationaljewelry #inspirationalart #chronicallyawesome #spoonie #chronicartist #spoonieartist #chroniccrafter #fibrowarrior #myheartisfull #family - 1 day ago

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I had a great event today! Thank you to my wonderful family for all of your support! My heart is full. 💖 #crafts #crafter #inpirationaljewelry #inspirationalart #chronicallyawesome #spoonie #chronicartist #spoonieartist #chroniccrafter #fibrowarrior #myheartisfull #family

I had a great event today! Thank you to my wonderful family for all of your support! My heart is full. #crafts #crafter #inpirationaljewelry #inspirationalart #chronicallyawesome #spoonie #chronicartist #spoonieartist #chroniccrafter #fibrowarrior #myheartisfull #family - 1 day ago

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Happy #Caturday! Here I am all rosy and happy with my little buttercup. He’s the sweetest and feistiest cat ever. #butyoudontlooksick #malarrash #butterflyrash #undifferentiatedconnectivetissuedisease #mastcelldisease #uctd #autoimmunedisease #spoonie #immunosuppressed #depressionsupport #emotionalsupportanimal #invisibleillness #chronicallyawesome #chronicallyfabulous

Happy #Caturday ! Here I am all rosy and happy with my little buttercup. He’s the sweetest and feistiest cat ever. #butyoudontlooksick #malarrash #butterflyrash #undifferentiatedconnectivetissuedisease #mastcelldisease #uctd #autoimmunedisease #spoonie #immunosuppressed #depressionsupport #emotionalsupportanimal #invisibleillness #chronicallyawesome #chronicallyfabulous - 1 day ago

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I had a great event today! Thank you to my wonderful family for all of your support! My heart is full. 💖 #crafts #crafter #inpirationaljewelry #inspirationalart #chronicallyawesome #spoonie #chronicartist #spoonieartist #chroniccrafter #fibrowarrior #myheartisfull #family

I had a great event today! Thank you to my wonderful family for all of your support! My heart is full. #crafts #crafter #inpirationaljewelry #inspirationalart #chronicallyawesome #spoonie #chronicartist #spoonieartist #chroniccrafter #fibrowarrior #myheartisfull #family - 1 day ago

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Yesterday I posted a pic of me with some ptosis. I recall a time when I would have been ashamed. But I’m finally at peace with myself. And it feels damn good. I hope your feel just as amazing in your own skin ✨

Yesterday I posted a pic of me with some ptosis. I recall a time when I would have been ashamed. But I’m finally at peace with myself. And it feels damn good. I hope your feel just as amazing in your own skin - 1 day ago

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💙💙 We are all flawed, we're supposed to be. The best we can do is accept all the parts within us, embrace them, nurture them...heal them. We are not broken, we do not need fixed; we are ALL beautiful works of art in progress🙏💙✌ #infp #infpbeauty #rebelthriver #ella #beautifulworkinprogress #notbroken #balance #chronicallyawesome #chronicillnesswarrior #warrior #loveyourself #knowledgeofself #rarezebra #thrive #perfecthowyouare #perfectlyimperfect #spiritualbadass #spiritualwarrior

We are all flawed, we're supposed to be. The best we can do is accept all the parts within us, embrace them, nurture them...heal them. We are not broken, we do not need fixed; we are ALL beautiful works of art in progress #infp #infpbeauty #rebelthriver #ella #beautifulworkinprogress #notbroken #balance #chronicallyawesome #chronicillnesswarrior #warrior #loveyourself #knowledgeofself #rarezebra #thrive #perfecthowyouare #perfectlyimperfect #spiritualbadass #spiritualwarrior - 1 day ago

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Love @banksy art. This quote is so true. We all have our bad days. As long as we keep fighting thats the main thing. 
We do our best. Im sick of resting somtimes i just want to be more active bit i knows when i need to rest most the time now.

#chronicallyill #chronicallyawesome #chronicallyfab #chronicllyfabulous #chroniclyme #chronicfatiguesyndrome #chronicfatigue #chronicwarrior #mentalhealthwarrior #mecsf #melife #fibromyalgiawarrior #fibromyalgiawarrior #fibromyalgia #fibrosucks #fibrofighter #fibrowarrior #anxi #anxietyanddepression #spoonielife

Love @banksy art. This quote is so true. We all have our bad days. As long as we keep fighting thats the main thing. We do our best. Im sick of resting somtimes i just want to be more active bit i knows when i need to rest most the time now. #chronicallyill #chronicallyawesome #chronicallyfab #chronicllyfabulous #chroniclyme #chronicfatiguesyndrome #chronicfatigue #chronicwarrior #mentalhealthwarrior #mecsf #melife #fibromyalgiawarrior #fibromyalgiawarrior #fibromyalgia #fibrosucks #fibrofighter #fibrowarrior #anxi #anxietyanddepression #spoonielife - 1 day ago

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The look I give someone after I’ve pushed them into the sea because they’ve said I’m promoting an unhealthy lifestyle 👸🏻 •
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Jacket @newlook 
Tee @empukofficial 
Trousers @simplybeuk 
Boots @drmartensofficial 📸 @demonsrunband •
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#disabledandcute #disabilitypride #wheelchairlife #fashionforeveryone

The look I give someone after I’ve pushed them into the sea because they’ve said I’m promoting an unhealthy lifestyle 🏻 • • • • Jacket @newlook Tee @empukofficial Trousers @simplybeuk Boots @drmartensofficial 📸 @demonsrunband • • • • #disabledandcute #disabilitypride #wheelchairlife #fashionforeveryone - 1 day ago

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Happy Saturday...finished another infusion. Forgot my lidocaine this morning so needless to say getting a needle shoved into my chest was a little rough but at least we got it into my port! #iviginfusion #ivig #girlswithports #medicalport #infusionday #homecare #nomakeupface #hotmess #sickgirlselfie #sickgirllife #chronicillness #chronicallyill #chronicallyawesome

Happy Saturday...finished another infusion. Forgot my lidocaine this morning so needless to say getting a needle shoved into my chest was a little rough but at least we got it into my port! #iviginfusion #ivig #girlswithports #medicalport #infusionday #homecare #nomakeupface #hotmess #sickgirlselfie #sickgirllife #chronicillness #chronicallyill #chronicallyawesome - 1 day ago

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Happy Saturday...finished another infusion. Forgot my lidocaine this morning so needless to say getting a needle shoved into my chest was a little rough but at least we got it into my port! #iviginfusion #ivig #girlswithports #medicalport #infusionday #homecare #nomakeupface #hotmess #sickgirlselfie #sickgirllife #chronicillness #chronicallyill #chronicallyawesome

Happy Saturday...finished another infusion. Forgot my lidocaine this morning so needless to say getting a needle shoved into my chest was a little rough but at least we got it into my port! #iviginfusion #ivig #girlswithports #medicalport #infusionday #homecare #nomakeupface #hotmess #sickgirlselfie #sickgirllife #chronicillness #chronicallyill #chronicallyawesome - 1 day ago

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My shirt says it all. . .

After completing week one of #transform20 I’m feeling like a { Force of Nature } 🏃🏼‍♀️🏃🏽‍♀️🏃🏼‍♀️

My shirt says it all. . . After completing week one of #transform20 I’m feeling like a { Force of Nature } 🏼‍♀️🏽‍♀️🏼‍♀️ - 1 day ago

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Anyone else experience this?

Anyone else experience this? - 1 day ago

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One of my simple pleasures is stationary from @chaptersindigo .There’s something about a new notebook, pens and pencil cases that help motivate to keep working towards my goals. I bought these today on a whim from the sales rack. I love the things I find! ☺️❣️
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#notebook #pencilcase #indigo #chaptersindigo #stationary #studying #notes #floral #motivation #studybreak #saturday #workinghard #goals #workingtowardsmygoals #achievegreatness #lupus #lupusawareness #lupuswarrior #chronicillness #chronicillnesswarrior #chronicillnessawareness #chronicallyawesome

One of my simple pleasures is stationary from @chaptersindigo .There’s something about a new notebook, pens and pencil cases that help motivate to keep working towards my goals. I bought these today on a whim from the sales rack. I love the things I find! ️❣️ . . . . . . . . . . . . . . . . #notebook #pencilcase #indigo #chaptersindigo #stationary #studying #notes #floral #motivation #studybreak #saturday #workinghard #goals #workingtowardsmygoals #achievegreatness #lupus #lupusawareness #lupuswarrior #chronicillness #chronicillnesswarrior #chronicillnessawareness #chronicallyawesome - 1 day ago

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• Energy Levels •
One of the most interesting questions we’ve received is how to handle being in a differently-abled (do you prefer that term to ‘intra-abled’?) relationship when you have very different energy levels. How do you avoid one person pushing themselves too hard or the other person feeling left out? The answer is: you can’t always. Much like introvert/extrovert couples, occasionally one of you is going to feel a little uncomfortable. The important thing is to recognise your own strengths and weaknesses and not judge yourself for that-or try and match up to your partner. Even though Claud and I want to do absolutely everything together all of the time...when she asks me to go on a dog walk with her and I just don’t have the energy then I need to just say no. I learnt not to feel bad and likewise she learnt not to take it personally. Respecting one another’s needs and wants is the cornerstone for a healthy loving relationship. Don’t worry, you’re not letting them down ♥️🤝♥️ -J
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Ps. Much love to my other #scoliosis pals!
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📸: @kittywsphoto .
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#JessieAndClaudQs #lovewins #disabled #marriedlife #proudpinup #lesbiansofinstagram #girlswhokissgirls #somuchlove #gorgeouswife #vintagegirl #redhead #lesbiancouple #colorcolourlovers #fearless #inspiremyinstagram #theuncoolclub #livingmybestlife #disabilityawareness #sheisnotlost #chronicillnessawareness #myperspective #chronicallyawesome #chronicallyfabulous #postcardplaces

• Energy Levels • One of the most interesting questions we’ve received is how to handle being in a differently-abled (do you prefer that term to ‘intra-abled’?) relationship when you have very different energy levels. How do you avoid one person pushing themselves too hard or the other person feeling left out? The answer is: you can’t always. Much like introvert/extrovert couples, occasionally one of you is going to feel a little uncomfortable. The important thing is to recognise your own strengths and weaknesses and not judge yourself for that-or try and match up to your partner. Even though Claud and I want to do absolutely everything together all of the time...when she asks me to go on a dog walk with her and I just don’t have the energy then I need to just say no. I learnt not to feel bad and likewise she learnt not to take it personally. Respecting one another’s needs and wants is the cornerstone for a healthy loving relationship. Don’t worry, you’re not letting them down ️🤝️ -J . . Ps. Much love to my other #scoliosis pals! . . 📸: @kittywsphoto . . . . . . #JessieAndClaudQs #lovewins #disabled #marriedlife #proudpinup #lesbiansofinstagram #girlswhokissgirls #somuchlove #gorgeouswife #vintagegirl #redhead #lesbiancouple  #colorcolourlovers  #fearless  #inspiremyinstagram #theuncoolclub  #livingmybestlife #disabilityawareness #sheisnotlost  #chronicillnessawareness #myperspective #chronicallyawesome #chronicallyfabulous #postcardplaces - 1 day ago

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Can’t get enough of the Pura Vida açaí bowl at @playabowlsatl ❤️❤️
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Such a beautiful day to bike on the beltline and enjoy a refreshing bowl of goodness!! ❤️❤️
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#ulcerativecolitis #ulcerativecolitisdiet #ulcerativecolitisfighter #ulcerativecolitisawareness #ulcerativecolitiswarrior #healthylifestyle #ulcerativecolitissucks #crohnsandcolitis #ulcerativecolitissurvivor #uc #ibd #ibdfighter #ibdwarrior #ibdawareness #ibs #sibo #sibosucks #chronicillness #chronicdisease #invisibleillness #guthealth #myjourney #chronicallyawesome #selfcare #selflove #spoonie #chronicallyawesome #beautycounter #cleanbeauty

Can’t get enough of the Pura Vida açaí bowl at @playabowlsatl ️ • • Such a beautiful day to bike on the beltline and enjoy a refreshing bowl of goodness!! ️ • • #ulcerativecolitis #ulcerativecolitisdiet #ulcerativecolitisfighter #ulcerativecolitisawareness #ulcerativecolitiswarrior #healthylifestyle #ulcerativecolitissucks #crohnsandcolitis #ulcerativecolitissurvivor #uc #ibd #ibdfighter #ibdwarrior #ibdawareness #ibs #sibo #sibosucks #chronicillness #chronicdisease #invisibleillness #guthealth #myjourney #chronicallyawesome #selfcare #selflove #spoonie #chronicallyawesome #beautycounter #cleanbeauty - 1 day ago

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🐴 My heart could burst 🧡!.
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This picture speaks a thousand words! 🌠.
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Malcolm confidentiality posing looking over his favourite person in the world 🧡.
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The change in this horse when he is around children is unreal! No more worry, they don't want or expect anything from him. He doesn't have to worry about impressing her 🤦.
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Despite our best efforts can we ever have energy as pure as children ? 💁🌠.
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We've got this. 
Shape your future. 🧡

My heart could burst 🧡!. . . This picture speaks a thousand words! . . . Malcolm confidentiality posing looking over his favourite person in the world 🧡. . . The change in this horse when he is around children is unreal! No more worry, they don't want or expect anything from him. He doesn't have to worry about impressing her 🤦. . . Despite our best efforts can we ever have energy as pure as children ? . . . We've got this. Shape your future. 🧡 - 1 day ago

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💓

- 1 day ago

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Reals nice shapes in this frame at #tatebritain. Hasselblad 500cm on Portra 400 and scanned on my crappy flatbed.

Image description: a high contrast colour image of a building in evening sun, with crisp shapes and a green grid.

#hasselblad500cm 
#SingleLensReflux
#FilmsNotDead
#ShootFilmStayBroke
#OnFilm
#ShootOnFilm
#FilmWave
#AnalogueFilm
#AnaloguePhotography
#FilmPhotography
#FilmPhotographic
#FilmCommunity
#IShootFilm
#FemaleGaze
#FemaleGays
#WomanPhotographer
#QueerPhotographer
#CripPhotographer
#DisabledPhotographer
#FemalePhotographer
#CrippingTheArts
#DisabilityArts
#ChronicallyAwesome

Reals nice shapes in this frame at #tatebritain . Hasselblad 500cm on Portra 400 and scanned on my crappy flatbed. Image description: a high contrast colour image of a building in evening sun, with crisp shapes and a green grid. #hasselblad500cm #SingleLensReflux #FilmsNotDead #ShootFilmStayBroke #OnFilm #ShootOnFilm #FilmWave #AnalogueFilm #AnaloguePhotography #FilmPhotography #FilmPhotographic #FilmCommunity #IShootFilm #FemaleGaze #FemaleGays #WomanPhotographer #QueerPhotographer #CripPhotographer #DisabledPhotographer #FemalePhotographer #CrippingTheArts #DisabilityArts #ChronicallyAwesome - 1 day ago

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Today’s weigh in results down .8lbs. This week I joined a new gym and did 5 much shorter weight lifting split workouts. I also ate almost all of the points I earned for exercise (as well as weeklies). As I wrote here, I’ve concluded that I likely need to eat at the top of my “healthy point range” each day and maybe a bit over on big days like legs and back. I think this will help me balance not feeling like crap with more significant weight loss. Knowing my body, I need to get under 300lbs to do all the lifts I want and ride my bike. I am now at the point where I (and my wife 😉) can feel my muscles in my upper body. Walking is easier too. #weighin #weightlosstransformation #transformation #foodjournal #weightlifting  #ftm #mindfulness #healthandfitness #fitbit #intermittentfasting #beatdepression  #beatanxiety #healthandwellness #transman #eatingdisorderrecovery #ftmfitness #chronicpain #chroniclyme #chronicillness  #chronicallyawesome #keepswimming #nevergiveup #weightwatchers #onedayatatime #lifestyle

Today’s weigh in results down .8lbs. This week I joined a new gym and did 5 much shorter weight lifting split workouts. I also ate almost all of the points I earned for exercise (as well as weeklies). As I wrote here, I’ve concluded that I likely need to eat at the top of my “healthy point range” each day and maybe a bit over on big days like legs and back. I think this will help me balance not feeling like crap with more significant weight loss. Knowing my body, I need to get under 300lbs to do all the lifts I want and ride my bike. I am now at the point where I (and my wife ) can feel my muscles in my upper body. Walking is easier too. #weighin #weightlosstransformation #transformation #foodjournal #weightlifting #ftm #mindfulness #healthandfitness #fitbit #intermittentfasting #beatdepression #beatanxiety #healthandwellness #transman #eatingdisorderrecovery #ftmfitness #chronicpain #chroniclyme #chronicillness #chronicallyawesome #keepswimming #nevergiveup #weightwatchers #onedayatatime #lifestyle - 1 day ago

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There isn’t enough lavender in the world. #bathbomb #saturdaymorning #chronicallyawesome or whatever

There isn’t enough lavender in the world. #bathbomb #saturdaymorning #chronicallyawesome or whatever - 1 day ago

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I have so many nice negatives from the last few weeks, but I lack the gear to scan them! So frustrating!

Image description: a contact printed black and white photograph, showing four separate 120mm negatives. Depicted are a person sitting against a wall, a piano, vegetables in baskets and some cameras on a table.

#SingleLensReflux
#FilmsNotDead
#ShootFilmStayBroke
#OnFilm
#ShootOnFilm
#FilmWave
#AnalogueFilm
#AnaloguePhotography
#FilmPhotography
#FilmPhotographic
#FilmCommunity
#IShootFilm
#FemaleGaze
#FemaleGays
#WomanPhotographer
#QueerPhotographer
#CripPhotographer
#DisabledPhotographer
#FemalePhotographer
#CrippingTheArts
#DisabilityArts
#ChronicallyAwesome

I have so many nice negatives from the last few weeks, but I lack the gear to scan them! So frustrating! Image description: a contact printed black and white photograph, showing four separate 120mm negatives. Depicted are a person sitting against a wall, a piano, vegetables in baskets and some cameras on a table. #SingleLensReflux #FilmsNotDead #ShootFilmStayBroke #OnFilm #ShootOnFilm #FilmWave #AnalogueFilm #AnaloguePhotography #FilmPhotography #FilmPhotographic #FilmCommunity #IShootFilm #FemaleGaze #FemaleGays #WomanPhotographer #QueerPhotographer #CripPhotographer #DisabledPhotographer #FemalePhotographer #CrippingTheArts #DisabilityArts #ChronicallyAwesome - 2 days ago

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And now, back to your regularly scheduled post-workout selfie 👍
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Today's workout was STRONGER. And you know what? I did feel stronger. I'm nowhere near where I was 3 months ago, but that's okay. I've decided to let that past version of me stay in the past.
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Right now, I'm focusing on what I can control. I can't stop the tingling and numbness, but I can still move and stretch my body.
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So, today, I followed up my workout with a 10-minute yoga session. It felt good to stretch, even though a few poses made the tingling in my legs worse. That might be a clue I can use later...
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I've caught a few things that my labs and tests haven't lately and I attribute that to how in-tune I am with my body. I have to be. Why wait for my lab work to show a worsening of symptoms when I can do something to prevent that NOW?
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More on that later...
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#radicalwellnessrevolution #transform20 #climb #shaunt #shauntfitness #homeworkouts #yoga #bodyawareness #intune #strongereveryday #trustyourgut #trustyourintuition #fibrofighter #fibromyalgia #chronicillness #chronicallyawesome #spoonie #spooniestrong #workoutselfie

And now, back to your regularly scheduled post-workout selfie . Today's workout was STRONGER. And you know what? I did feel stronger. I'm nowhere near where I was 3 months ago, but that's okay. I've decided to let that past version of me stay in the past. . Right now, I'm focusing on what I can control. I can't stop the tingling and numbness, but I can still move and stretch my body. . So, today, I followed up my workout with a 10-minute yoga session. It felt good to stretch, even though a few poses made the tingling in my legs worse. That might be a clue I can use later... . I've caught a few things that my labs and tests haven't lately and I attribute that to how in-tune I am with my body. I have to be. Why wait for my lab work to show a worsening of symptoms when I can do something to prevent that NOW? . More on that later... . #radicalwellnessrevolution #transform20 #climb #shaunt #shauntfitness #homeworkouts #yoga #bodyawareness #intune #strongereveryday #trustyourgut #trustyourintuition #fibrofighter #fibromyalgia #chronicillness #chronicallyawesome #spoonie #spooniestrong #workoutselfie - 2 days ago

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Sooo I found out that my website/blog isn't running. Like it's not available or something. I do not understand (Russian voice). If I feel like it I will look into it later today, but the way my body and fatigue are set up... I don't think so. I just feel like eating junkfood (like I've been doing for days already and yes.. it's bad) and lay on the couch the rest of the day. ✌🏽
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• 
#spoonies #spoonielife #mentalhealth #panicattacks #panic #mentalhealthawareness #anxiety #chronicalillness #chronicallyill #invisibleillness #lupus #lupusawareness #sle #lupuswarriors #cin #wordgasm #dream #chronicallyawesome #chronicallyillmom #lupuswarrior #quotes #anxietyquotes #lupusproblems #ipreview @preview.app

Sooo I found out that my website/blog isn't running. Like it's not available or something. I do not understand (Russian voice). If I feel like it I will look into it later today, but the way my body and fatigue are set up... I don't think so. I just feel like eating junkfood (like I've been doing for days already and yes.. it's bad) and lay on the couch the rest of the day. 🏽 • • #spoonies #spoonielife #mentalhealth #panicattacks #panic #mentalhealthawareness #anxiety #chronicalillness #chronicallyill #invisibleillness #lupus #lupusawareness #sle #lupuswarriors #cin #wordgasm #dream #chronicallyawesome #chronicallyillmom #lupuswarrior #quotes #anxietyquotes #lupusproblems #ipreview @preview.app - 2 days ago

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I don't know about you but my biggest dilemma during a flareup is being able to eat, eating something that will help fight through our flareup faster, and being too tired to cook... am I right or am I right?!⠀⠀⠀⠀⠀⠀⠀⠀⠀
⠀⠀⠀⠀⠀⠀⠀⠀⠀
What we eat can actually prolong our #lupusflare because of the chemicals (natural or not) that are in our foods. Sometimes eating nightshades or dairy can aggravate our GI tract, which shouldn't be a big deal, but when our body is going through a flare, it's very sensitive and this can push it over the top.⠀⠀⠀⠀⠀⠀⠀⠀⠀
When you're feeling up to it, prepare these 5 type of meals ahead of time and freeze them for our dreaded #lupusflareups.⠀⠀⠀⠀⠀⠀⠀⠀⠀
1. Soups - freeze without the noodles⠀⠀⠀⠀⠀⠀⠀⠀⠀
2. Smoothies - freeze fruits and veggies in a ziplock baggie for 1-2 servings.⠀⠀⠀⠀⠀⠀⠀⠀⠀
3. Hearty Crockpot Meals - freeze without the starch⠀⠀⠀⠀⠀⠀⠀⠀⠀
4. Frozen Dessert (shocked at that suggestion?) - of course a little chocolate never hurt anyone 😍
5. Casserole - mmmmmmmyummmy

Share your favorite quick fix below!

#eathealthy #lupusflare #fuelyourbody #nolupus #knowlupus #dairyfreelife #guthealing #glutendreefood #heartymeals #healthyneals #mealprep #lazymealprep #lupuslife #lupusjourney #lupuspain #lupies #spooniesupport #spooniewarrior #chronicallyawesome #chroniclife #chronicpainsurvivor

I don't know about you but my biggest dilemma during a flareup is being able to eat, eating something that will help fight through our flareup faster, and being too tired to cook... am I right or am I right?!⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ What we eat can actually prolong our #lupusflare because of the chemicals (natural or not) that are in our foods. Sometimes eating nightshades or dairy can aggravate our GI tract, which shouldn't be a big deal, but when our body is going through a flare, it's very sensitive and this can push it over the top.⠀⠀⠀⠀⠀⠀⠀⠀⠀ When you're feeling up to it, prepare these 5 type of meals ahead of time and freeze them for our dreaded #lupusflareups .⠀⠀⠀⠀⠀⠀⠀⠀⠀ 1. Soups - freeze without the noodles⠀⠀⠀⠀⠀⠀⠀⠀⠀ 2. Smoothies - freeze fruits and veggies in a ziplock baggie for 1-2 servings.⠀⠀⠀⠀⠀⠀⠀⠀⠀ 3. Hearty Crockpot Meals - freeze without the starch⠀⠀⠀⠀⠀⠀⠀⠀⠀ 4. Frozen Dessert (shocked at that suggestion?) - of course a little chocolate never hurt anyone 5. Casserole - mmmmmmmyummmy Share your favorite quick fix below! #eathealthy #lupusflare #fuelyourbody #nolupus #knowlupus #dairyfreelife #guthealing #glutendreefood #heartymeals #healthyneals #mealprep #lazymealprep #lupuslife #lupusjourney #lupuspain #lupies #spooniesupport #spooniewarrior #chronicallyawesome #chroniclife #chronicpainsurvivor - 2 days ago

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I’m feeling pretty proud of myself for a little victory today. ⁣⁣
⁣⁣
Last night I went to the movies with my husband and one of my best friends and I actually used the wheelchair part of my @rollzint for the first time. ⁣⁣
⁣⁣
I was a little nervous about doing it, as it can always be stressful to venture out with a new mobility aid. You encounter accessibility obstacles you probably wouldn’t have considered before, and there’s the underlying concern of “what awful thing will a random stranger say to me now?” or “how many stares will I get?” ⁣⁣
⁣⁣
But I wanted to see a movie and I didn’t want that to exhaust me and cause me more pain, so I pushed those little fears down and sat in the chair. And it was great! ⁣⁣
⁣⁣
It was fun being pushed around. And I didn’t notice many stares. We didn’t have to worry about how tired I would be if we went to a store on the other side of the mall before the movie. I didn’t get yelled at for being a “faker” by a random stranger when I stood out of my chair to sit in the theatre seat. And the best part was that I got to enjoy the entire film without having a boat load of leg pain or muscle spasms from walking to my seat. What a novel concept!⁣⁣
⁣⁣
So it might seem like a little thing to most people. But it feels like a victory to me. ⁣⁣
⁣⁣
I was scared of this, but I did it anyway, and now I can see how much better my life can be because I took this small step. Haha see what I did there? ⁣⁣
⁣⁣
Go me!⁣⁣
*pats self on back* ⁣⁣
*dislocates shoulder in the process*⁣⁣
⁣⁣
I’m so funny.

I’m feeling pretty proud of myself for a little victory today. ⁣⁣ ⁣⁣ Last night I went to the movies with my husband and one of my best friends and I actually used the wheelchair part of my @rollzint for the first time. ⁣⁣ ⁣⁣ I was a little nervous about doing it, as it can always be stressful to venture out with a new mobility aid. You encounter accessibility obstacles you probably wouldn’t have considered before, and there’s the underlying concern of “what awful thing will a random stranger say to me now?” or “how many stares will I get?” ⁣⁣ ⁣⁣ But I wanted to see a movie and I didn’t want that to exhaust me and cause me more pain, so I pushed those little fears down and sat in the chair. And it was great! ⁣⁣ ⁣⁣ It was fun being pushed around. And I didn’t notice many stares. We didn’t have to worry about how tired I would be if we went to a store on the other side of the mall before the movie. I didn’t get yelled at for being a “faker” by a random stranger when I stood out of my chair to sit in the theatre seat. And the best part was that I got to enjoy the entire film without having a boat load of leg pain or muscle spasms from walking to my seat. What a novel concept!⁣⁣ ⁣⁣ So it might seem like a little thing to most people. But it feels like a victory to me. ⁣⁣ ⁣⁣ I was scared of this, but I did it anyway, and now I can see how much better my life can be because I took this small step. Haha see what I did there? ⁣⁣ ⁣⁣ Go me!⁣⁣ *pats self on back* ⁣⁣ *dislocates shoulder in the process*⁣⁣ ⁣⁣ I’m so funny. - 2 days ago

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• I VOTED •
A few days ago, there was an election here in the Netherlands. My humom made this rule for herself: ‘If you don’t vote, then you can’t whine when things don’t go the way you like’, so we went voting. Humom wasn’t feeling too well - she’s had a few off days - but I’m still proud we went. There was another dog there, a non-SD, who wanted to play with me. But humom had the best treats, so after a bit of hesitation I decided to focus back on her. Which was a good choice: she was so proud and I got so many treats 😇 Afterwards, we went to a play field so I could get some energy out. That was great, there were lots of new scents I’ve never smelled before! I love exploring new places 😍
#ivoted
•
•
Go follow our pawsome pawtners! 
@hulphondblue 🐾
@hulphond_august 🐾
@the.service.doodle 🐾
@my.life.saving.shepherd 🐾
@louie_the_autism_service_cat 🐾
@piper_the_psych_service_dog 🐾
@beccaandraven 🐾
•
•
#servicedog #assistancedog #seizurealertdog #hulphond #assistentiehond #bultersmekke #happycappies  #happytheservicedog #becauseimhappy #ifyourehappyandyouknowit #teamhappy #teamhappycappies #goodgirlhappy #bestservicedogever #mommarazzi #myhumomlovesme #ichoosehappyness #ehlersdanlossyndrome #epilepsy #zebrastrong #chronicallyawesome #medicalalertservicedog #mixbreedsofinstagram #maltese #ratterrier #miniaturepinscher
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Remember to participate in our giveaway! Check out our previous post for more information 🎁

• I VOTED • A few days ago, there was an election here in the Netherlands. My humom made this rule for herself: ‘If you don’t vote, then you can’t whine when things don’t go the way you like’, so we went voting. Humom wasn’t feeling too well - she’s had a few off days - but I’m still proud we went. There was another dog there, a non-SD, who wanted to play with me. But humom had the best treats, so after a bit of hesitation I decided to focus back on her. Which was a good choice: she was so proud and I got so many treats 😇 Afterwards, we went to a play field so I could get some energy out. That was great, there were lots of new scents I’ve never smelled before! I love exploring new places #ivoted • • Go follow our pawsome pawtners! @hulphondblue @hulphond_august @the.service.doodle @my.life.saving.shepherd @louie_the_autism_service_cat @piper_the_psych_service_dog @beccaandraven • • #servicedog #assistancedog #seizurealertdog #hulphond #assistentiehond #bultersmekke #happycappies #happytheservicedog #becauseimhappy #ifyourehappyandyouknowit #teamhappy #teamhappycappies #goodgirlhappy #bestservicedogever #mommarazzi #myhumomlovesme #ichoosehappyness #ehlersdanlossyndrome #epilepsy #zebrastrong #chronicallyawesome #medicalalertservicedog #mixbreedsofinstagram #maltese #ratterrier #miniaturepinscher • • Remember to participate in our giveaway! Check out our previous post for more information - 2 days ago

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There are no words that can fully capture the last few days. They’ve been unbelievably challenging but also incredibly beautiful at the same time. We’ve celebrated life and love through the opposing force of death by saying goodbye to a grandmother, a mother, a sister, an aunt, a friend and a sparkling strength of connectivity in all our lives. Even in her passing, she’s brought together people with complicated histories in a shared human experience. We’ve seen the power of vulnerability that comes with feeling loss in all our unique ways. We’ve seen how her nurturing, compassion and support touched the lives of so many. We’ve shared countless soulful, heartfelt hugs and many, many tears. We’ve seen little signs and reminders that she’ll be with us, watching over us, always. Rest easy Nana, you’ve left us with a lifetime of love to carry us forward 💜

There are no words that can fully capture the last few days. They’ve been unbelievably challenging but also incredibly beautiful at the same time. We’ve celebrated life and love through the opposing force of death by saying goodbye to a grandmother, a mother, a sister, an aunt, a friend and a sparkling strength of connectivity in all our lives. Even in her passing, she’s brought together people with complicated histories in a shared human experience. We’ve seen the power of vulnerability that comes with feeling loss in all our unique ways. We’ve seen how her nurturing, compassion and support touched the lives of so many. We’ve shared countless soulful, heartfelt hugs and many, many tears. We’ve seen little signs and reminders that she’ll be with us, watching over us, always. Rest easy Nana, you’ve left us with a lifetime of love to carry us forward - 2 days ago

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Das erste Sonnenbad ☀️ des Jahres  konnte ich mir gestern gönnen und es hat mir sichtlich & spürbar gutgetan...! 😌👌
➡️Kostenloses und bedarfsgerechtes Vitamin-D-Auffüllen...✔️
Nature always knows it best! 🙏💚🙏
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#frühling #sonnenbad #sunbath #sunkissed #tan #sunkissedblonde #sunlovers #wellness #vitamind #vitamindmangel #cholecalciferol #autoimmunthyreoiditis #hormones #positivevibes #positivity #healthcare #selfcare #beauty #healthylifehappylife #feelinggoodvibes #nomakeup #chronicallyawesome #farbtypen #sommertyp #summergirl #summerblonde #longhair #fitnessbra #relaxed

Das erste Sonnenbad ️ des Jahres konnte ich mir gestern gönnen und es hat mir sichtlich & spürbar gutgetan...! ️Kostenloses und bedarfsgerechtes Vitamin-D-Auffüllen...️ Nature always knows it best! . . . . . . #frühling #sonnenbad #sunbath #sunkissed #tan #sunkissedblonde #sunlovers #wellness #vitamind #vitamindmangel #cholecalciferol #autoimmunthyreoiditis #hormones #positivevibes #positivity #healthcare #selfcare #beauty #healthylifehappylife #feelinggoodvibes #nomakeup #chronicallyawesome #farbtypen #sommertyp #summergirl #summerblonde #longhair #fitnessbra #relaxed - 2 days ago

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Are you coming to this year’s Naidex disability exhibition @naidex_show ?
Don’t forget to check out my talk on Tuesday 26 March in Theatre 4 at 3.30pm-4.00pm on Living With CRPS & Bilateral Amputation.
I’ll be talking about not only my life with Complex Regional Pain Syndrome (CRPS), being a bilateral or double above knee amputee but also about learning to live with a chronic illness & why I set up Burning Nights CRPS Support charity @burningnightscrps 
Don’t forget to visit Burning Nights CRPS Support team at Stand N9053!
There’s still chance to get your FREE ticket via the following link ➡️ https://bit.ly/2HHos6F ⬅️ Or ➡️ LINK IN BIO ⬅️
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#crpsguru #crpsauthor #crps #crpsawareness #crpswarrior #crpssucks #crpsstrong #crpsfighter #crpswarriors #chronicpain #chronicillness #invisibleillnessawareness #invisibleillnesses #chronicallyill #spoonie #spoonielife  #amputeegirl #spooniecommunity #chronicillnessawareness  #spooniwarrior #chronicallyawesome #spooniesisters #chronicpainlife #disabilityexhibition #chronicpainfighter #naidex45 #naidex2019

Are you coming to this year’s Naidex disability exhibition @naidex_show ? Don’t forget to check out my talk on Tuesday 26 March in Theatre 4 at 3.30pm-4.00pm on Living With CRPS & Bilateral Amputation. I’ll be talking about not only my life with Complex Regional Pain Syndrome (CRPS), being a bilateral or double above knee amputee but also about learning to live with a chronic illness & why I set up Burning Nights CRPS Support charity @burningnightscrps Don’t forget to visit Burning Nights CRPS Support team at Stand N9053! There’s still chance to get your FREE ticket via the following link ️ https://bit.ly/2HHos6F ️ Or ️ LINK IN BIO ️ . . #crpsguru #crpsauthor #crps #crpsawareness #crpswarrior #crpssucks #crpsstrong #crpsfighter #crpswarriors #chronicpain #chronicillness #invisibleillnessawareness #invisibleillnesses #chronicallyill #spoonie #spoonielife #amputeegirl #spooniecommunity #chronicillnessawareness #spooniwarrior #chronicallyawesome #spooniesisters #chronicpainlife #disabilityexhibition #chronicpainfighter #naidex45 #naidex2019 - 2 days ago

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Well, well, a little progress here, 😃😃😃.
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#fitnessmama #fitafterfourty #fitat50 #fitmoms_of_ig #fitmomsrock #fitmam #fitnessfreak #fitatig #fitnessmama #fitnessfreaks #fitnessmotivation #fibrofighter #fibrowarrior #fibroworrior #Fibromyalgia #fibromyalgiafighter #fibromialgyawarrior #chronicallyawesome #chronicillnessworrier #motivation #trymybest #badass

Well, well, a little progress here, . . . #fitnessmama #fitafterfourty #fitat50 #fitmoms_of_ig #fitmomsrock #fitmam #fitnessfreak #fitatig #fitnessmama #fitnessfreaks #fitnessmotivation #fibrofighter #fibrowarrior #fibroworrior #Fibromyalgia #fibromyalgiafighter #fibromialgyawarrior #chronicallyawesome #chronicillnessworrier #motivation #trymybest #badass - 2 days ago

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💛 📣 ENDOMETRIOSIS MARCH TODAY.... in London 2️⃣3️⃣0️⃣3️⃣1️⃣9️⃣🎗
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🌟✨The colour is yellow 🎗👑
I’m so proud to be part of this amazing group! 🙌🏾👍🏾💯✊🏾
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Thank you to @endometriosis.uk for all the support and arranging this on behalf of all the #endometriosis sufferers.....
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Thank you for the friends; family and partners that listen and understand us too.... 🙏🏾
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Oh! I think there’s a BREXIT March in London tooooo! Lol..... ❌
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#endo #endoawareness #endometriosisawareness #1in10 #invisibleillnessawareness #women #health #london #endometriosisawarenessmonth #endoftheworld #endowarrior #endometriosiswarrior #chronicillness #chronicallyfabulous #womenshealth #letstalkhealth #chronicallyawesome #adenomyosis #adenomyosisawareness #fibroids #gynecologist #faith #disability #follow #health #doingitforthegram #beautiful #support #endowarrior #endosister #periods

ENDOMETRIOSIS MARCH TODAY.... in London 2️⃣3️⃣0️⃣3️⃣1️⃣9️⃣🎗 . . The colour is yellow 🎗 I’m so proud to be part of this amazing group! 🏾🏾🏾 . . Thank you to @endometriosis.uk for all the support and arranging this on behalf of all the #endometriosis sufferers..... . . Thank you for the friends; family and partners that listen and understand us too.... 🏾 . . Oh! I think there’s a BREXIT March in London tooooo! Lol..... . . #endo #endoawareness #endometriosisawareness #1in10 #invisibleillnessawareness #women #health #london #endometriosisawarenessmonth #endoftheworld #endowarrior #endometriosiswarrior #chronicillness #chronicallyfabulous #womenshealth #letstalkhealth #chronicallyawesome #adenomyosis #adenomyosisawareness #fibroids #gynecologist #faith #disability #follow #health #doingitforthegram #beautiful #support #endowarrior #endosister #periods - 2 days ago

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Me and Oli went out for breakfast this morning. I'm finally starting to feel normal again after spending the week in bed. However new medication does wonders for weight loss! 😂 #pseudomonasaeruginosa #psedumonas #sucks #chronicillness #chronicpain #chronic #illness #chronicpainwarrior #coccyxpain #coccyx #issues #coccygectomy #cant #come #quick #enough #chronicillnesslife #chronicpainawareness #chronicillnesses #chronicallyawesome #chronicblogger #bloggermom #healthblog #chronicillnessblogger #hurts #like #a #bitch #timetokickbonemarrowsbutt #disabilityaware xx

Me and Oli went out for breakfast this morning. I'm finally starting to feel normal again after spending the week in bed. However new medication does wonders for weight loss! #pseudomonasaeruginosa #psedumonas #sucks #chronicillness #chronicpain #chronic #illness #chronicpainwarrior #coccyxpain #coccyx #issues #coccygectomy #cant #come #quick #enough #chronicillnesslife #chronicpainawareness #chronicillnesses #chronicallyawesome #chronicblogger #bloggermom #healthblog #chronicillnessblogger #hurts #like #a #bitch #timetokickbonemarrowsbutt #disabilityaware xx - 2 days ago

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When your friends know you.⁣⁣⁣⁣⁣⁣
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In the midst of my flare, when I was down for the count in every way possible, my sweet friend sent me this beauty. These word, they are exactly what I need to read some days. This does suck but keep fucking going. We’ve got your back.⁣⁣⁣⁣⁣ I wear it every day as a reminder.⁣
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You’ve got this, even if it feels like you don’t. I am talking to you, warrior 🧡⁣ ⁣⁣⁣
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⁣ #myms #mystory #mswarrior #thisisms #strongerthanMS #MSstrong #mommywithMS #wifewithMS #multiplesclerosis #msfight #newlydiagnosedwithms #copaxone #warrior #autoimmunedisease #veganlife #vegan #plantbasedeating #oms #wecandothis #anythingispossible #overcomingobstacles #grateful #thankful #strongwomen #fitmom #strength #stronggirl #chronicalillness #chronicallyawesome #msawareness

When your friends know you.⁣⁣⁣⁣⁣⁣ •⁣⁣⁣⁣⁣⁣ In the midst of my flare, when I was down for the count in every way possible, my sweet friend sent me this beauty. These word, they are exactly what I need to read some days. This does suck but keep fucking going. We’ve got your back.⁣⁣⁣⁣⁣ I wear it every day as a reminder.⁣ •⁣⁣⁣⁣⁣⁣ •⁣ •⁣⁣⁣⁣⁣⁣ •⁣⁣⁣⁣⁣⁣ •⁣⁣⁣⁣⁣⁣ •⁣⁣⁣⁣⁣⁣ •⁣⁣⁣⁣⁣⁣ •⁣⁣⁣⁣⁣⁣ •⁣⁣⁣⁣⁣⁣ •⁣⁣⁣⁣⁣⁣ •⁣⁣⁣⁣⁣⁣ You’ve got this, even if it feels like you don’t. I am talking to you, warrior 🧡⁣ ⁣⁣⁣ •⁣⁣⁣⁣⁣⁣ ⁣ #myms #mystory #mswarrior #thisisms #strongerthanMS #MSstrong #mommywithMS #wifewithMS #multiplesclerosis #msfight #newlydiagnosedwithms #copaxone #warrior #autoimmunedisease #veganlife #vegan #plantbasedeating #oms #wecandothis #anythingispossible #overcomingobstacles #grateful #thankful #strongwomen #fitmom #strength #stronggirl #chronicalillness #chronicallyawesome #msawareness - 2 days ago

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Something a bit personal, but yesterday I smiled like I haven't for years. I've learned that mobility aids are not shackles, they are beautiful tools of freedom. Feeling grateful for the innovations that keep me mobile, in the garden, the bush, the beach. For anyone out there struggling with needing assistive devices, I know it's hard to accept, but one day you'll reach a point where you like (even love) your wheels, cane etc because they give you freedom and independence. 
#babeswithmobilityaids #trionic #rollator #disabilityawareness #mobilityexercises #inclusion #chronicpainwarrior #chronicallyawesome #disabledandoutdoors #chronicallyfabulous #accessiblegardening

Something a bit personal, but yesterday I smiled like I haven't for years. I've learned that mobility aids are not shackles, they are beautiful tools of freedom. Feeling grateful for the innovations that keep me mobile, in the garden, the bush, the beach. For anyone out there struggling with needing assistive devices, I know it's hard to accept, but one day you'll reach a point where you like (even love) your wheels, cane etc because they give you freedom and independence. #babeswithmobilityaids #trionic #rollator #disabilityawareness #mobilityexercises #inclusion #chronicpainwarrior #chronicallyawesome #disabledandoutdoors #chronicallyfabulous #accessiblegardening - 2 days ago

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