#blendeddiet

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A good relationship with food♥️ scroll for Victor giving me his syringe 😂The most unexpected change in Victor since starting him on a blended diet is his willingness to try food orally. He used to hate touching food and definitely did not want to try any, but now he will happily mess around with it and even eat some! I think that all tubie parents hope that their children will eventually be tube free, as do we, so we keep trying with oral feeding every day. #blendeddiet #ketogenicdiet #keto #ketodiet #ketogeniclifestyle #lchf #lchfdiet #iamable #blenderizeddiet #oralaversion #undiagnosed #swanuk #syndromeswithoutaname

A good relationship with food️ scroll for Victor giving me his syringe The most unexpected change in Victor since starting him on a blended diet is his willingness to try food orally. He used to hate touching food and definitely did not want to try any, but now he will happily mess around with it and even eat some! I think that all tubie parents hope that their children will eventually be tube free, as do we, so we keep trying with oral feeding every day. #blendeddiet #ketogenicdiet #keto #ketodiet #ketogeniclifestyle #lchf #lchfdiet #iamable #blenderizeddiet #oralaversion #undiagnosed #swanuk #syndromeswithoutaname - 12 hours ago

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Our YouTube video is up! Check us out over at @jenny.trott channel! ・・・
What is a blended, or blenderized diet? 
My most recent video is an interview with @voodoodancing; she shares all her experience about tube feeding her gorgeous boy Victor with blended family food.

Thanks Elis for chatting to me in my first Skype film and for the beautiful photos too (including this one!). Link to my channel for this, and weekly videos for parents and parent carers in my bio, or search for Jenny Trott on YouTube.

#tubefeeding #blendeddiet #blenderizeddiet #blendeddietfortubies #meetthesenparent

Our YouTube video is up! Check us out over at @jenny.trott channel! ・・・ What is a blended, or blenderized diet? My most recent video is an interview with @voodoodancing ; she shares all her experience about tube feeding her gorgeous boy Victor with blended family food. Thanks Elis for chatting to me in my first Skype film and for the beautiful photos too (including this one!). Link to my channel for this, and weekly videos for parents and parent carers in my bio, or search for Jenny Trott on YouTube. #tubefeeding #blendeddiet #blenderizeddiet #blendeddietfortubies #meetthesenparent - 2 days ago

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What is a blended, or blenderized diet? 
My most recent video is an interview with @voodoodancing; she shares all her experience about tube feeding her gorgeous boy Victor with blended family food.

Thanks Elis for chatting to me in my first Skype film and for the beautiful photos too (including this one!). Link to my channel for this, and weekly videos for parents and parent carers in my bio, or search for Jenny Trott on YouTube.

#tubefeeding #blendeddiet #blenderizeddiet #blendeddietfortubies

What is a blended, or blenderized diet? My most recent video is an interview with @voodoodancing ; she shares all her experience about tube feeding her gorgeous boy Victor with blended family food. Thanks Elis for chatting to me in my first Skype film and for the beautiful photos too (including this one!). Link to my channel for this, and weekly videos for parents and parent carers in my bio, or search for Jenny Trott on YouTube. #tubefeeding #blendeddiet #blenderizeddiet #blendeddietfortubies - 2 days ago

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Tube feeding poster boy here! Almost looking like a stock photo 🤪 #tubefeeding #blendeddiet #disabledandcute #iamable #swanuk #syndromeswithoutaname

Tube feeding poster boy here! Almost looking like a stock photo 🤪 #tubefeeding #blendeddiet #disabledandcute #iamable #swanuk #syndromeswithoutaname - 2 days ago

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🔘 I’m a limited edition 🔘  #louilegend #louisarmy #louislife #zebedeemodel #zebedeemodellife #childrep #childmodel #choosekindness #raisingawareness #tcsawareness #treachercollinsawareness #treachercollins #gastrostomy #tubie #tracheostomy #trachlife #britishsignlanguage #bsl #blendeddiet #blendeddietfortubies #oticon #bahahearingaid #teamzebedee

I’m a limited edition #louilegend #louisarmy #louislife #zebedeemodel #zebedeemodellife #childrep #childmodel #choosekindness #raisingawareness #tcsawareness #treachercollinsawareness #treachercollins #gastrostomy #tubie #tracheostomy #trachlife #britishsignlanguage #bsl #blendeddiet #blendeddietfortubies #oticon #bahahearingaid #teamzebedee - 2 days ago

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We had an impromptu walk round Woods Mill Wildlife Trail in Sussex today because it was just down the road from the mechanics (as my car went back in to have its mot failures fixed 🙈)
What photos don’t show are the crazy imaginative games flying around this little guys head that we have to play along with over and over! Toy story was the main theme today with Loui pretending to be Buzz (he refused to respond to anything other than Buzz the whole way round) and we played games that varied from the snowdrop flowers being the toy story aliens in the claw grabber machine with Loui (Buzz) in amongst them (although for mummy there’s only so many times I can fake a claw machine and pick him up before it starts doing my head in🙄) to Zorg chasing us and having to hide and run away and fake closing and locking doors behind us to visiting spider families etc etc...you get the jist! There’s so much going on in that head of his and he’s forever creating little adventures and doing his damnedest to translate through sign and motion what he means to us. And in turn we’re forever doing our damnedest to keep up with him to keep his frustration at bay. Because how bloody frustrating must it be to have so much to say but no voice to say it! Thank god for sign language that has enabled him to come this far! Though it doesn’t help with the heartache for us to see so much going unnoticed by those around him and the barrier it creates between him and friends which will inevitably get worse in the next few years.
As we pulled up there were a few groups of kids about which instantly gave me that feeling of dread in my stomach. I just wanted to reverse back out the carpark and find a different place to go but Loui had already seen where we were and I didn’t want him to miss out. So as usual I took a deep breath, pulled myself together and carried on for Loui. I so wasn’t in the mood for the stares and comments within earshot of him for his sake. He’s such a sensitive soul behind his confident and outgoing exterior that he never forgets the words he’s called and the older he gets the worse it’s becoming.
CONTINUED IN COMMENTS

We had an impromptu walk round Woods Mill Wildlife Trail in Sussex today because it was just down the road from the mechanics (as my car went back in to have its mot failures fixed ) What photos don’t show are the crazy imaginative games flying around this little guys head that we have to play along with over and over! Toy story was the main theme today with Loui pretending to be Buzz (he refused to respond to anything other than Buzz the whole way round) and we played games that varied from the snowdrop flowers being the toy story aliens in the claw grabber machine with Loui (Buzz) in amongst them (although for mummy there’s only so many times I can fake a claw machine and pick him up before it starts doing my head in🙄) to Zorg chasing us and having to hide and run away and fake closing and locking doors behind us to visiting spider families etc etc...you get the jist! There’s so much going on in that head of his and he’s forever creating little adventures and doing his damnedest to translate through sign and motion what he means to us. And in turn we’re forever doing our damnedest to keep up with him to keep his frustration at bay. Because how bloody frustrating must it be to have so much to say but no voice to say it! Thank god for sign language that has enabled him to come this far! Though it doesn’t help with the heartache for us to see so much going unnoticed by those around him and the barrier it creates between him and friends which will inevitably get worse in the next few years. As we pulled up there were a few groups of kids about which instantly gave me that feeling of dread in my stomach. I just wanted to reverse back out the carpark and find a different place to go but Loui had already seen where we were and I didn’t want him to miss out. So as usual I took a deep breath, pulled myself together and carried on for Loui. I so wasn’t in the mood for the stares and comments within earshot of him for his sake. He’s such a sensitive soul behind his confident and outgoing exterior that he never forgets the words he’s called and the older he gets the worse it’s becoming. CONTINUED IN COMMENTS - 2 days ago

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🎞 So pleased to be asked to do a YouTube interview today with @jenny.trott about blended diets🥗! (And why not, I am always banging on about it anyway! 🤪) Coming soon! Meanwhile, check out Jenny's channel, link in her bio, so many informative videos 🙌🌈 #blendeddiet #blenderizeddiet #tubie #minibutton #mickeybutton #tubefeeding #tubefed #disabled #iamable #disabledandcute #meetthesenparent

🎞 So pleased to be asked to do a YouTube interview today with @jenny.trott about blended diets🥗! (And why not, I am always banging on about it anyway! 🤪) Coming soon! Meanwhile, check out Jenny's channel, link in her bio, so many informative videos #blendeddiet #blenderizeddiet #tubie #minibutton #mickeybutton #tubefeeding #tubefed #disabled #iamable #disabledandcute #meetthesenparent - 4 days ago

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This week I shared about our #blendeddiet life for Rosie girl who is fed via #gtube and y’all had SO MUCH to say in my DMs. It’s fun, at this stage in our #tubefeeding journey, to answer questions about the topic.
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I’d like to open up the comments here for you to ask MORE questions about tube feeding. Blended diet. Gtubes in general. It’s not something many people know a lot about and I truly believe that knowledge of something so simple (like how we feed our kids!) will help demystify the life of many families and create a bridge for inclusion and vulnerability.
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So... go! What questions do you have? And feel free to repeat any that were in my DMs 💛💙
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#tubefedkids #downsyndrome #downsyndromeadvocacy #downsyndromeawareness #gtubeawareness #tubefedlife #gtubefed #blendeddiet #blendeddietforthewin #blendeddietfortubies

This week I shared about our #blendeddiet life for Rosie girl who is fed via #gtube and y’all had SO MUCH to say in my DMs. It’s fun, at this stage in our #tubefeeding journey, to answer questions about the topic. . I’d like to open up the comments here for you to ask MORE questions about tube feeding. Blended diet. Gtubes in general. It’s not something many people know a lot about and I truly believe that knowledge of something so simple (like how we feed our kids!) will help demystify the life of many families and create a bridge for inclusion and vulnerability. . So... go! What questions do you have? And feel free to repeat any that were in my DMs . #tubefedkids #downsyndrome #downsyndromeadvocacy #downsyndromeawareness #gtubeawareness #tubefedlife #gtubefed #blendeddiet #blendeddietforthewin #blendeddietfortubies - 4 days ago

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The early bird catches the worm....or in our case, the shark! 🦈 Fishy find and seafront walk with Loui’s new Birthday scooter all before 9am this morning! And the weather was lovely again. We like to get up and out before the crowds as it means less stares from silly people! We don’t hide away but if we can reduce the amount Loui’s subjected to it we do. We’re always up early as a family as there’s always so much to do! Loui wakes up around 6am and it’s straight into his relentless water & feeding schedule and neck tape change. Today we did his monthly trachy change too which he hates now he’s older but we bribed him with kinder eggs (despite the fact he can’t eat them he still loves the excitement of opening them to reveal the toy) although once at the shop this evening he picked a magazine instead. I also had no syringes left for him for brekkie so had to make a batch double early which is my worst job but one that has to be done or Loui would go hungry. Sunday day of rest what? 🤔 #louilegend #louislife #louisarmy #treachercollins #tracheostomy #trachlife #tubefeeding #blendeddiet #bahaboy #oticon #fundraiseforloui #sharkfind

The early bird catches the worm....or in our case, the shark! 🦈 Fishy find and seafront walk with Loui’s new Birthday scooter all before 9am this morning! And the weather was lovely again. We like to get up and out before the crowds as it means less stares from silly people! We don’t hide away but if we can reduce the amount Loui’s subjected to it we do. We’re always up early as a family as there’s always so much to do! Loui wakes up around 6am and it’s straight into his relentless water & feeding schedule and neck tape change. Today we did his monthly trachy change too which he hates now he’s older but we bribed him with kinder eggs (despite the fact he can’t eat them he still loves the excitement of opening them to reveal the toy) although once at the shop this evening he picked a magazine instead. I also had no syringes left for him for brekkie so had to make a batch double early which is my worst job but one that has to be done or Loui would go hungry. Sunday day of rest what? 🤔 #louilegend #louislife #louisarmy #treachercollins #tracheostomy #trachlife #tubefeeding #blendeddiet #bahaboy #oticon #fundraiseforloui #sharkfind - 4 days ago

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Meals for Iman this week: 
1️⃣ Brown Rice, Beef, Tofu, Cauliflower, Nai Bai and Peas,
2️⃣ Brown Rice, Green Beans, Carrots, Apples, Pears and Pineapples,
3️⃣ Brown Rice, Chicken, Purple Sweet Potato, Brinjal, Prunes and Blueberries. #BlendedMealsByHuzzz #EatTheRainbow #BlendedDiet #BlenderizedDiet #BlendedDietForTubies #TubieMom #SpecialNeedsMom

Meals for Iman this week: 1️⃣ Brown Rice, Beef, Tofu, Cauliflower, Nai Bai and Peas, 2️⃣ Brown Rice, Green Beans, Carrots, Apples, Pears and Pineapples, 3️⃣ Brown Rice, Chicken, Purple Sweet Potato, Brinjal, Prunes and Blueberries. #BlendedMealsByHuzzz #EatTheRainbow #BlendedDiet #BlenderizedDiet #BlendedDietForTubies #TubieMom #SpecialNeedsMom - 6 days ago

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❤️Valentine’s Day is almost here!❤️ If you’re looking for a special treat that can be enjoyed by feeding tube or by mouth, give this Strawberry🍓Shortcake Blend a try.

Ingredients:
1 cup chopped strawberries 
1 cup milk of your choice 
1 small piece of shortcake or any white cake (about ½ cup if chopped)
2 tsp almond butter (protein boost!)
½ tsp vanilla extract
1 overflowing cup of love💗

Steps:
Blend all ingredients together until you have a smooth blend. Strain out the strawberry seeds if desired. Add more milk if you like a thinner consistency. Garnish with a spoonful of whipped cream and serve with hugs and lots of kisses!💋
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Nutrition:
Makes about 375 ml and provides approximately 385 calories, 13 g protein, 41 g net carbohydrate, 6 g fiber, 17 g fat when using cow’s milk (2%) in the recipe.
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💕Leave me your favourite heart💗emogi in the comments if you’re excited to cherish your loved ones on the 14th!💕

️Valentine’s Day is almost here!️ If you’re looking for a special treat that can be enjoyed by feeding tube or by mouth, give this StrawberryShortcake Blend a try. Ingredients: 1 cup chopped strawberries 1 cup milk of your choice 1 small piece of shortcake or any white cake (about ½ cup if chopped) 2 tsp almond butter (protein boost!) ½ tsp vanilla extract 1 overflowing cup of love Steps: Blend all ingredients together until you have a smooth blend. Strain out the strawberry seeds if desired. Add more milk if you like a thinner consistency. Garnish with a spoonful of whipped cream and serve with hugs and lots of kisses! . Nutrition: Makes about 375 ml and provides approximately 385 calories, 13 g protein, 41 g net carbohydrate, 6 g fiber, 17 g fat when using cow’s milk (2%) in the recipe. . Leave me your favourite heartemogi in the comments if you’re excited to cherish your loved ones on the 14th! - 9 days ago

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Thank you Blendtec! This is officially amazing! 
#blendeddiet #tubielife  #feedingtubeawarenessweek #Blendtec #smoothie #snacktime #sosmooth #itsperfect

Thank you Blendtec! This is officially amazing! #blendeddiet #tubielife #feedingtubeawarenessweek #Blendtec #smoothie #snacktime #sosmooth #itsperfect - 10 days ago

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What I would give for my little baba to be able to eat this #blendprepping #blendeddiet #tubiebaby #tubie #necsurvivor #shortgutsowhat

What I would give for my little baba to be able to eat this #blendprepping #blendeddiet #tubiebaby #tubie #necsurvivor #shortgutsowhat - 10 days ago

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Dusty pink Breton bodysuit with silver starfish, no labels, flat seams, tube access, 100% organic cotton, looks fabulous!😍#additionalneedskids #kidsfashion #organickids #specialneeds #adaptedclothing #sensoryprocessingdisorder #gastrostomy #tubikids #tubiekidsrock #blendeddiet #realfood

Dusty pink Breton bodysuit with silver starfish, no labels, flat seams, tube access, 100% organic cotton, looks fabulous!#additionalneedskids #kidsfashion #organickids #specialneeds #adaptedclothing #sensoryprocessingdisorder #gastrostomy #tubikids #tubiekidsrock #blendeddiet #realfood - 11 days ago

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Out of every eco switch we’ve made so far, I think this is the one I’m most excited about. Middly was exclusively tube fed for the first 2.5 years of his life and then partially tube fed for another 6 months. He’s had 18 months of 100% oral eating and drinking but we’re back to partial tube feeding for now whilst he waits for oesophagus surgery. There is so much waste involved in tube feeding! The syringes come individually wrapped in plastic and whilst they can be washed they soon become too stiff to use or the numbers wash off so aren’t really reusable beyond a couple of days. They are also not recyclable. This stainless steel version looks a bit old fashioned but works very well, comes apart easily for washing in the dishwasher and is reusable again and again. It can be recycled once it’s at the end of its useful life. We don’t need to use sterile feeding equipment but I presume that it could be sterilised as it’s stainless steel. The only slightly odd thing is that it comes in a plastic box! I’m sure the company can change that though once they’ve had some feedback. If only the NHS provided these, it would save so much money and waste! #feedingtubeawarenessweek #feedingtubeawarenessweek2019 #ecofamily #ecoswitch #saynotoplastic #saynotosingleuse #saynotodisposable #ecofriendly #ecotubie #blendeddiet #realfoodfortubies #enteralfeeding #tubielife #reducewaste #reducereuserecycle

Out of every eco switch we’ve made so far, I think this is the one I’m most excited about. Middly was exclusively tube fed for the first 2.5 years of his life and then partially tube fed for another 6 months. He’s had 18 months of 100% oral eating and drinking but we’re back to partial tube feeding for now whilst he waits for oesophagus surgery. There is so much waste involved in tube feeding! The syringes come individually wrapped in plastic and whilst they can be washed they soon become too stiff to use or the numbers wash off so aren’t really reusable beyond a couple of days. They are also not recyclable. This stainless steel version looks a bit old fashioned but works very well, comes apart easily for washing in the dishwasher and is reusable again and again. It can be recycled once it’s at the end of its useful life. We don’t need to use sterile feeding equipment but I presume that it could be sterilised as it’s stainless steel. The only slightly odd thing is that it comes in a plastic box! I’m sure the company can change that though once they’ve had some feedback. If only the NHS provided these, it would save so much money and waste! #feedingtubeawarenessweek #feedingtubeawarenessweek2019 #ecofamily #ecoswitch #saynotoplastic #saynotosingleuse #saynotodisposable #ecofriendly #ecotubie #blendeddiet #realfoodfortubies #enteralfeeding #tubielife #reducewaste #reducereuserecycle - 13 days ago

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Yesterday was the last day of #feedingtubeawarenessweek and I wanted to share Liam’s current #gtube feeding plan! Liam eats a blended diet (@nestle Compleat Pediatric Organic Blends) which consists of chicken, mango, butternut squash, spinach, beets, brown rice, rosemary and turmeric. The reason I opted for a blended diet versus formula is because I wanted Liam to experience REAL food and now his body knows real food which enables him to smell all the good smells and enjoy tastings. Our long term goal (after tonsillectomy) is to continue to introduce foods and increase the volume Liam gets orally. He also gets a large amount of water that is mixed with his feedings and given pre and post feeding. 
Liam is fed four times a day using large syringes that I use to push the feed in over a 30 minute time frame. This is a more manual approach but easy to bring anywhere!
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#littleliamrichard #teamlittleliam #cp #cerebralpalsy #cerebralpalsyawareness #cpwarrior #cpstrong #preemie #preemiestrong #twins #twinboys #tonsillectomy #oralfeeding #feedingtubeawareness #blendeddiet #blendeddietfortubies

Yesterday was the last day of #feedingtubeawarenessweek and I wanted to share Liam’s current #gtube feeding plan! Liam eats a blended diet (@nestle Compleat Pediatric Organic Blends) which consists of chicken, mango, butternut squash, spinach, beets, brown rice, rosemary and turmeric. The reason I opted for a blended diet versus formula is because I wanted Liam to experience REAL food and now his body knows real food which enables him to smell all the good smells and enjoy tastings. Our long term goal (after tonsillectomy) is to continue to introduce foods and increase the volume Liam gets orally. He also gets a large amount of water that is mixed with his feedings and given pre and post feeding. Liam is fed four times a day using large syringes that I use to push the feed in over a 30 minute time frame. This is a more manual approach but easy to bring anywhere! : : : #littleliamrichard #teamlittleliam #cp #cerebralpalsy #cerebralpalsyawareness #cpwarrior #cpstrong #preemie #preemiestrong #twins #twinboys #tonsillectomy #oralfeeding #feedingtubeawareness #blendeddiet #blendeddietfortubies - 13 days ago

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Meals for Iman this week: 
1️⃣ Brown Rice, Oats, Salmon, Mixed Mushrooms, Sweet Peas and Edamame Beans;
2️⃣ Brown Rice, Chicken, Carrots, Sweet Corn and Peaches. #BlendedMealsByHuzzz #EatTheRainbow #BlendedDiet #BlenderizedDiet #BlendedDietForTubies #TubieMom #SpecialNeedsMom

Meals for Iman this week: 1️⃣ Brown Rice, Oats, Salmon, Mixed Mushrooms, Sweet Peas and Edamame Beans; 2️⃣ Brown Rice, Chicken, Carrots, Sweet Corn and Peaches. #BlendedMealsByHuzzz #EatTheRainbow #BlendedDiet #BlenderizedDiet #BlendedDietForTubies #TubieMom #SpecialNeedsMom - 13 days ago

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This week has been #feedingtubeawarenessweek and it blows my mind the strength that is behind tube feeding. If you do not know about tube feeding...imagine not being able to chew and swallow your food. Imagine only receiving food via a tube attached at your abdomen or inserted through your nose. ❤️❤️
When my son was born premature, all of his milk was fed to him via an NG tube (nasogastric tube) until he was able to eat orally. 💜💜
My first cousin, the closest I have to a sister, has been receiving all of her nutrition via a feeding tube for more than a decade. Her determination to never complain or give in is life changing to witness.
💙💙
She is the reason that I have decided to return to university to become a Registered Dietitian. At the age of 36, I walked myself into a class full of students nearly all half my age because I am determined to serve something greater than me. 💛💛
The standard model of nutrition for individuals that require enteral care is a variety of corn maltodextrin based formulas. There is one company that is bravely pioneering a REAL FOOD blend.
💚💚
Could you imagine never being able to eat foods you love and only able to receive refined oil, sugar, and vitamins? Thankfully you don't have to do that! It is possible to get really amazing foods via a feeding tube. 🧡🧡
This is why you see so many liquid meals on my website and social accounts. I am personally experimenting with myself to see how to create a variety of liquid meals that suit an individual with a feeding tube, and one without. 💗
To see what #feedingtubeawareness is about click the hashtags. I'll also tag some great accounts to learn more from in my stories.

This week has been #feedingtubeawarenessweek and it blows my mind the strength that is behind tube feeding. If you do not know about tube feeding...imagine not being able to chew and swallow your food. Imagine only receiving food via a tube attached at your abdomen or inserted through your nose. ️ When my son was born premature, all of his milk was fed to him via an NG tube (nasogastric tube) until he was able to eat orally. My first cousin, the closest I have to a sister, has been receiving all of her nutrition via a feeding tube for more than a decade. Her determination to never complain or give in is life changing to witness. She is the reason that I have decided to return to university to become a Registered Dietitian. At the age of 36, I walked myself into a class full of students nearly all half my age because I am determined to serve something greater than me. The standard model of nutrition for individuals that require enteral care is a variety of corn maltodextrin based formulas. There is one company that is bravely pioneering a REAL FOOD blend. Could you imagine never being able to eat foods you love and only able to receive refined oil, sugar, and vitamins? Thankfully you don't have to do that! It is possible to get really amazing foods via a feeding tube. 🧡🧡 This is why you see so many liquid meals on my website and social accounts. I am personally experimenting with myself to see how to create a variety of liquid meals that suit an individual with a feeding tube, and one without. To see what #feedingtubeawareness is about click the hashtags. I'll also tag some great accounts to learn more from in my stories. - 13 days ago

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Day 5 of #tubefeedingawarenessweek.

Esme continued to vomit every feed. On New Years Eve I couldn't handle being vomited on anymore and stopped. My milk was making her ill and I hated it. On the 3rd January 2017, Esme was re-admitted onto the ward and given an NG tube. She was officially diagnosed as failure to thrive. We spent 2 weeks just waiting for her to gain weight. She was still vomiting but because we were able to actually get high calorie milk into her she started to gain weight. Esme had an NG tube until she was 11 months old. She's not got severe oral aversion because of it. This is a common side effect of having an NG tube and GERD. She associates the vomiting with eating play simply refuses. She also NEVER gets hungry. I think this is because of her stroke but it was too early to say what sort of damage had been done. She's having a repeat MRI later this month and I'm hoping to get a more specific picture of what damage was done. 
January 2017 - NG Tube
September 2017 - Freka PEG
January 2018 - Gastrostomy button (Mickey)
January 2019 - button changed to a Mini.
Esme thrived once she got a feeding tube. Without it she would've starved to death. Her reflux meds were changed and she stopped being sick as much. It takes a long time to feed her, she can't tolerate more than 180ml and can't be moved for about 20 minutes afterwards. 
In January 2018, Esme's gastro consultant asked me if I'd heard about the Blended Diet. I had heard of it from thegkurs I'd spent on Google reading and was so happy to be doing it. For Esme, the blended diet has been amazing! Within 2 weeks she'd stopped being sick. She gained weight quicker than she ever did before and she looked healthy. Her hair was shiny and her complexion alot brighter. She still gets formula because she still has to work hard to gain weight and she loses weight very quickly if she doesn't get the right amount of calories. 
I love her tube. It saved her. ❤
That's it! Esme's #tubefeeding story!

#enteralnutrition #enteralfeeding
#tubie #iloveatubie #blendeddiet

Day 5 of #tubefeedingawarenessweek . Esme continued to vomit every feed. On New Years Eve I couldn't handle being vomited on anymore and stopped. My milk was making her ill and I hated it. On the 3rd January 2017, Esme was re-admitted onto the ward and given an NG tube. She was officially diagnosed as failure to thrive. We spent 2 weeks just waiting for her to gain weight. She was still vomiting but because we were able to actually get high calorie milk into her she started to gain weight. Esme had an NG tube until she was 11 months old. She's not got severe oral aversion because of it. This is a common side effect of having an NG tube and GERD. She associates the vomiting with eating play simply refuses. She also NEVER gets hungry. I think this is because of her stroke but it was too early to say what sort of damage had been done. She's having a repeat MRI later this month and I'm hoping to get a more specific picture of what damage was done. January 2017 - NG Tube September 2017 - Freka PEG January 2018 - Gastrostomy button (Mickey) January 2019 - button changed to a Mini. Esme thrived once she got a feeding tube. Without it she would've starved to death. Her reflux meds were changed and she stopped being sick as much. It takes a long time to feed her, she can't tolerate more than 180ml and can't be moved for about 20 minutes afterwards. In January 2018, Esme's gastro consultant asked me if I'd heard about the Blended Diet. I had heard of it from thegkurs I'd spent on Google reading and was so happy to be doing it. For Esme, the blended diet has been amazing! Within 2 weeks she'd stopped being sick. She gained weight quicker than she ever did before and she looked healthy. Her hair was shiny and her complexion alot brighter. She still gets formula because she still has to work hard to gain weight and she loses weight very quickly if she doesn't get the right amount of calories. I love her tube. It saved her. That's it! Esme's #tubefeeding story! #enteralnutrition #enteralfeeding #tubie #iloveatubie #blendeddiet - 13 days ago

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Last to the party to wish everyone a happy tube feeding awareness week- Whatever tube you are being fed from and whatever feed you are getting fed.. love those tubes! 😊

#tubefeeding #tubefed #blendeddiet #minibutton #enteralnutrion #tubie

Last to the party to wish everyone a happy tube feeding awareness week- Whatever tube you are being fed from and whatever feed you are getting fed.. love those tubes! #tubefeeding #tubefed #blendeddiet #minibutton #enteralnutrion #tubie - 14 days ago

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Feeding tube awareness is: •Blending food/ prepping formula and having it explode all over your body, carpet, and walls on a regular basis •Praying that there aren’t any oral aversions to one day feed by mouth, but working relentlessly with therapy if there are •Trying to introduce new textures and tastes and hoping that with the hundreds of attempts- even one will be successful •Prepping formula/ blends and priming bags/drawing up syringes •Watching the clock and hoping you’re still on schedule for feeds • Being thankful for the pump that feeds the bag into the feeding tube, but also wanting to throw it out of the window in fits of frustration when “FLOW OUT” alarms. And then again when your extension comes unattached or the port pops open and you’ve lost an unknown amount of feeds into the bed your child is sleeping in.
(Time to change the sheets and prep a bath too!) •Measuring & scooping to stay on track with kcals, water intake and total volume in during a given 24 hour time •Having hands constantly soaked in formula, blends, or meds because ports. pop. open. •Having the patience to talk about, and bring positive light and education to the outside world who doesn’t know how amazing our modern medicine is to TUBE FEED in public and at home. 
#feedingtubeawarenessweek 🥳 #gtubebaby  #njtube ➡️#gjtube ➡️ #gtube 🙌🏽 #mickeybutton #feedingthebaby #blendeddiet #tubie #tubiebaby @cdlsfoundation #cdls #cdhsurvivor

Feeding tube awareness is: •Blending food/ prepping formula and having it explode all over your body, carpet, and walls on a regular basis •Praying that there aren’t any oral aversions to one day feed by mouth, but working relentlessly with therapy if there are •Trying to introduce new textures and tastes and hoping that with the hundreds of attempts- even one will be successful •Prepping formula/ blends and priming bags/drawing up syringes •Watching the clock and hoping you’re still on schedule for feeds • Being thankful for the pump that feeds the bag into the feeding tube, but also wanting to throw it out of the window in fits of frustration when “FLOW OUT” alarms. And then again when your extension comes unattached or the port pops open and you’ve lost an unknown amount of feeds into the bed your child is sleeping in. (Time to change the sheets and prep a bath too!) •Measuring & scooping to stay on track with kcals, water intake and total volume in during a given 24 hour time •Having hands constantly soaked in formula, blends, or meds because ports. pop. open. •Having the patience to talk about, and bring positive light and education to the outside world who doesn’t know how amazing our modern medicine is to TUBE FEED in public and at home. #feedingtubeawarenessweek 🥳 #gtubebaby #njtube #gjtube #gtube 🏽 #mickeybutton #feedingthebaby #blendeddiet #tubie #tubiebaby @cdlsfoundation #cdls #cdhsurvivor - 14 days ago

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🎉TRUTHFUL THURSDAY 🎉
It is Feeding Tube Awareness Week!! It has been so fun to have a week of connecting and learning from so many new people! I’m so grateful! Ya’ll have asked awesome questions all week about my feeding tube so here we go! Also, thanks Mama for sending me these pictures! I was so cute!
🔹I’ve had my tube since I was a few days old because there are so many cysts in my esophagus that I can only swallow liquids. I believe I’ve always had a g-tube (Mom and Dad feel free to correct me!) 🔹 I snack on and taste a lot of food by mouth (and definitely crave things, like cool ranch Doritos!) but can’t swallow any of it. I either wipe it out with a tissue or brush my teeth right after. 🔹 I blend all my own food and put it all through my tube as well as water to flush it and to be hydrated. I definitely still burp so I can taste food that way. You’re welcome. 🔹 I can DEFINITELY feel temperature through my tube!! Hot food or water makes me instantly sick and cold stuff turns my belly into a frozen tundra! Room temp is ideal. 🔹 Best benefit: I’m still alive!!! I would not be alive or thriving like I am without a feeding tube. Most frustrating benefit: ruining so many clothes from food leaking, stomach acid leaking, etc. 🔹 I don’t actively see a doctor. I change it myself about every 6 months (or whenever it explodes!) but I do all my own care and have for many years!! 🔹 Honestly it can hurt often. Leaks can hurt, it can be painful in general, for some reason I can feel it a lot more when I lay on my left side than my right side. It’s not like tylonal needed pain, just like an ache mostly. (shoutout to @bedrockskin for healing me!) 🔹Do doctors really know how to work with kids with feeding tubes? I would say at least one doctor did since I’m still here! Overall, probably not though. In high school I had tons of gallstones and for a year they couldn’t figure out what was giving me pain because they just assumed it HAD to be my feeding tube. They forgot I had regular organs too. 🔹Strangest place I’ve hung my food: probs from trees in Brazil. I’d be playing outside with the kids I lived with and would just hang my food in a tree and carry on😂

TRUTHFUL THURSDAY It is Feeding Tube Awareness Week!! It has been so fun to have a week of connecting and learning from so many new people! I’m so grateful! Ya’ll have asked awesome questions all week about my feeding tube so here we go! Also, thanks Mama for sending me these pictures! I was so cute! I’ve had my tube since I was a few days old because there are so many cysts in my esophagus that I can only swallow liquids. I believe I’ve always had a g-tube (Mom and Dad feel free to correct me!) I snack on and taste a lot of food by mouth (and definitely crave things, like cool ranch Doritos!) but can’t swallow any of it. I either wipe it out with a tissue or brush my teeth right after. I blend all my own food and put it all through my tube as well as water to flush it and to be hydrated. I definitely still burp so I can taste food that way. You’re welcome. I can DEFINITELY feel temperature through my tube!! Hot food or water makes me instantly sick and cold stuff turns my belly into a frozen tundra! Room temp is ideal. Best benefit: I’m still alive!!! I would not be alive or thriving like I am without a feeding tube. Most frustrating benefit: ruining so many clothes from food leaking, stomach acid leaking, etc. I don’t actively see a doctor. I change it myself about every 6 months (or whenever it explodes!) but I do all my own care and have for many years!! Honestly it can hurt often. Leaks can hurt, it can be painful in general, for some reason I can feel it a lot more when I lay on my left side than my right side. It’s not like tylonal needed pain, just like an ache mostly. (shoutout to @bedrockskin for healing me!) Do doctors really know how to work with kids with feeding tubes? I would say at least one doctor did since I’m still here! Overall, probably not though. In high school I had tons of gallstones and for a year they couldn’t figure out what was giving me pain because they just assumed it HAD to be my feeding tube. They forgot I had regular organs too. Strangest place I’ve hung my food: probs from trees in Brazil. I’d be playing outside with the kids I lived with and would just hang my food in a tree and carry on - 14 days ago

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There are choices we make as parents and sometimes it’s as simple as choosing survival and life. #iloveatubie #we wereoralaslongasitmadesense #feedingtube #feedingtubeawareness #feedingtubeawarenessweek #fedisbest #hestillovesfood #icecream #tacotuesday #blendeddiet #vitamix

There are choices we make as parents and sometimes it’s as simple as choosing survival and life. #iloveatubie #we wereoralaslongasitmadesense #feedingtube #feedingtubeawareness #feedingtubeawarenessweek #fedisbest #hestillovesfood #icecream #tacotuesday #blendeddiet #vitamix - 15 days ago

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There are choices we make as parents and sometimes it’s as simple as choosing survival and life. #iloveatubie #wewereoralaslongasitmadesense #feedingtube #feedingtubeawareness #feedingtubeawarenessweek #fedisbest #hestillovesfood #icecream #tacotuesday #blendeddiet #vitamix

There are choices we make as parents and sometimes it’s as simple as choosing survival and life. #iloveatubie #wewereoralaslongasitmadesense #feedingtube #feedingtubeawareness #feedingtubeawarenessweek #fedisbest #hestillovesfood #icecream #tacotuesday #blendeddiet #vitamix - 15 days ago

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My precious amazing little hero. Without the option of an NG (nasal gastric tube) or his PEG/Mickey button Lucas might not be here. Or if he was to be he'd be living on a drip. Lucas is small for his age for a few reasons one being his prematurity two his CDH (cdh children are usually small due to a few reasons one being they burnt alot of their calorie intake working hard on their breathing) 3 and probably the main one really was his failure to thrive for his first 20m of life. Hed fell so far behind on growth and weight gain. He's still petite thin and very pale but he's here and he's happy and he's healthier for it. @cdhuk @feedingtubeawarenessfoundation @nationalscoliosiscenter #cdhfighter #cdhsurvivor #cdhusucks #cdhuk #tubie #tubefed #tubielife #blendeddiet #blendedfamily #feedingtubeawarenessweek #feedingtubelife #tubefeeding #pectusexcavatum #harrisonssulcus #scoliosis #bentnotbroken

My precious amazing little hero. Without the option of an NG (nasal gastric tube) or his PEG/Mickey button Lucas might not be here. Or if he was to be he'd be living on a drip. Lucas is small for his age for a few reasons one being his prematurity two his CDH (cdh children are usually small due to a few reasons one being they burnt alot of their calorie intake working hard on their breathing) 3 and probably the main one really was his failure to thrive for his first 20m of life. Hed fell so far behind on growth and weight gain. He's still petite thin and very pale but he's here and he's happy and he's healthier for it. @cdhuk @feedingtubeawarenessfoundation @nationalscoliosiscenter #cdhfighter #cdhsurvivor #cdhusucks #cdhuk #tubie #tubefed #tubielife #blendeddiet #blendedfamily #feedingtubeawarenessweek #feedingtubelife #tubefeeding #pectusexcavatum #harrisonssulcus #scoliosis #bentnotbroken - 15 days ago

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#feedingtubeawarenessweek #gtube #ngtube #realfood #blendeddiet

#feedingtubeawarenessweek #gtube #ngtube #realfood #blendeddiet - 16 days ago

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Breakfast in bed for the soldier today after having lots of seizures yesterday.Weetabix,fruit and honey
#blendeddiet
#blendedfamily 
#disabled 
#disabledchildren 
#lissencephaly 
#braindisorder 
#familylife

Breakfast in bed for the soldier today after having lots of seizures yesterday.Weetabix,fruit and honey #blendeddiet #blendedfamily #disabled #disabledchildren #lissencephaly #braindisorder #familylife - 16 days ago

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What do I eat? Mostly Nourish, a pre-made gluten free plant based meal. 🌱 It’s super healthy & kinda like an astronaut food pack! Swipe to see it & my monthly delivery. I used to eat formula, but once we switched to a blended diet, I have been healthier & had more energy! 💪🏻 #feedingtubeawarenessweek2019 #ftwa2019 #blendeddiet

What do I eat? Mostly Nourish, a pre-made gluten free plant based meal. It’s super healthy & kinda like an astronaut food pack! Swipe to see it & my monthly delivery. I used to eat formula, but once we switched to a blended diet, I have been healthier & had more energy! 🏻 #feedingtubeawarenessweek2019 #ftwa2019 #blendeddiet - 16 days ago

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🥳 FEEDING TUBE AWARENESS WEEK
FULL VIDEO available at My Hero Calls me Mama on Facebook. Follow us there!

#feedingtubeawareness #feedingtube #feedingtubeawarenessweek #gtube #enteralnutrition #gastric #syringe #nutrition #blendeddiet #tubie #cdls #cdh #trachbaby #ecmosurvivor @cdlsfoundation @cdhintl

🥳 FEEDING TUBE AWARENESS WEEK FULL VIDEO available at My Hero Calls me Mama on Facebook. Follow us there! #feedingtubeawareness #feedingtube #feedingtubeawarenessweek #gtube #enteralnutrition #gastric #syringe #nutrition #blendeddiet #tubie #cdls #cdh #trachbaby #ecmosurvivor @cdlsfoundation @cdhintl - 16 days ago

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Look at this superstar getting involved and pushing in his own tea 😍 mackerel in tomato sauce, rice, carrot and swede, blended with oatly milk. He’s found the transition back to being partially tube fed very hard even though it’s just temporary whilst he waits for oesophagus surgery. We’re so proud of him ❤️ #noformulathanks #blendeddiet #realfoodfortubies #dresskids_likekids @hatchretail @zoobuglondon @welovefrugi

Look at this superstar getting involved and pushing in his own tea mackerel in tomato sauce, rice, carrot and swede, blended with oatly milk. He’s found the transition back to being partially tube fed very hard even though it’s just temporary whilst he waits for oesophagus surgery. We’re so proud of him #noformulathanks #blendeddiet #realfoodfortubies #dresskids_likekids @hatchretail @zoobuglondon @welovefrugi - 17 days ago

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Avas journey with feeding tubes started the day she was born and without them she wouldn't have survived. #lifeofthedifferentlyabled #tubie #gastrostomy #blendeddiet #myhero #unsafeswallow #sickkids #Glasgow #scotland #scotland_insta

Avas journey with feeding tubes started the day she was born and without them she wouldn't have survived. #lifeofthedifferentlyabled #tubie #gastrostomy #blendeddiet #myhero #unsafeswallow #sickkids #Glasgow #scotland #scotland_insta - 17 days ago

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The blended diet, delicious high cal nutritious food...cooked and blended...simple!😊#blendeddiet #tubiebaby #tubielife #gastrostomyfeeding #dysphagia #braininjury

The blended diet, delicious high cal nutritious food...cooked and blended...simple!#blendeddiet #tubiebaby #tubielife #gastrostomyfeeding #dysphagia #braininjury - 18 days ago

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Feeding tube awareness week
#2: Judd gets 100% of his food through his feeding tube. He has passed one swallow study for yogurt consistency food, but oral feeding causes anxiety for him. He’s never been able to eat orally, so since we’ve started to try he panics and is afraid to choke when food is actually in his mouth. He is slowly getting better but it is a very long process that takes a lot of work. He knows how to use a spoon and will scoop up food and put it in his mouth, but will then fish the food out of his mouth. He’s trying though, which is big. 
We get a replacement button every few months. His button can break, get pulled out, etc. the button has a balloon that inflates inside his stomach to hold it in a place. We change his button at home. The stoma can close within hours, so if the button is unable to get back in and it closes up, surgery is needed to replace it. Thankfully, we’ve never had that problem. 
An extension tubing hooks up to the feeding tube, then hooks up to a syringe which is how food is pushed into him(which is what Finley is doing). It’s been about 2 years since I made the best decision to change his diet to a blended real food diet. He eats anything we do! It’s just blended up to a liquid consistency. Many doctors believe tubies should be getting formula, but Judd has been SO much healthier off formula. He isn’t pale anymore. He started gaining weight and stopped refluxing almost instantly. He had more energy and is overall in a better mood. On top of that we cut out 2 reflux medications right away after the transition. How awesome is that?
#momphotographer #momtographer #momtogs #momtog #toddlersofinstagram #chargesyndrome #feedingtubeawarenessweek #blendeddiet #letthekids #childhoodunplugged #childhoodmemories #candidchildhood #candidphotography #documentyourdays #snaplovegrow #chasinglight #the_sugar_jar #thehonestlens #lookslikefilmkids #dearestviewfinder #clickinmoms #lifewellcaptured #pixel_kids #momswithcameras #storytellingmama #theheartcaptured #lettherebelight #magicofchildhood #thepursuitofjoy

Feeding tube awareness week #2 : Judd gets 100% of his food through his feeding tube. He has passed one swallow study for yogurt consistency food, but oral feeding causes anxiety for him. He’s never been able to eat orally, so since we’ve started to try he panics and is afraid to choke when food is actually in his mouth. He is slowly getting better but it is a very long process that takes a lot of work. He knows how to use a spoon and will scoop up food and put it in his mouth, but will then fish the food out of his mouth. He’s trying though, which is big. We get a replacement button every few months. His button can break, get pulled out, etc. the button has a balloon that inflates inside his stomach to hold it in a place. We change his button at home. The stoma can close within hours, so if the button is unable to get back in and it closes up, surgery is needed to replace it. Thankfully, we’ve never had that problem. An extension tubing hooks up to the feeding tube, then hooks up to a syringe which is how food is pushed into him(which is what Finley is doing). It’s been about 2 years since I made the best decision to change his diet to a blended real food diet. He eats anything we do! It’s just blended up to a liquid consistency. Many doctors believe tubies should be getting formula, but Judd has been SO much healthier off formula. He isn’t pale anymore. He started gaining weight and stopped refluxing almost instantly. He had more energy and is overall in a better mood. On top of that we cut out 2 reflux medications right away after the transition. How awesome is that? #momphotographer #momtographer #momtogs #momtog #toddlersofinstagram #chargesyndrome #feedingtubeawarenessweek #blendeddiet #letthekids #childhoodunplugged #childhoodmemories #candidchildhood #candidphotography #documentyourdays #snaplovegrow #chasinglight #the_sugar_jar #thehonestlens #lookslikefilmkids #dearestviewfinder #clickinmoms #lifewellcaptured #pixel_kids #momswithcameras #storytellingmama #theheartcaptured #lettherebelight #magicofchildhood #thepursuitofjoy - 19 days ago

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My girl ♥️

My girl ️ - 19 days ago

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Blend day. 8 days of meals for my tubie rockstar! #teamsophie #tubefeeding #blendeddiet #realfood #andsomeformulatoo

Blend day. 8 days of meals for my tubie rockstar! #teamsophie #tubefeeding #blendeddiet #realfood #andsomeformulatoo - 19 days ago

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Batch blending morning for the #tubie #blendeddiet #gastrostomy #enteral #enteralnutrition #cerebralpalsy #colourful #vegan #vegans #vegansofig #vegansofinstagram #veganeats #veganfood #protein #foodporn #nutrition #vegancooking #vegancommunity #veganliving #veganlife #plantbased #plantpower #whatveganseat #veganlifestyle🌱 #veganuk #vegantubie

Batch blending morning for the #tubie #blendeddiet #gastrostomy #enteral #enteralnutrition #cerebralpalsy #colourful #vegan #vegans #vegansofig #vegansofinstagram #veganeats #veganfood #protein #foodporn #nutrition #vegancooking #vegancommunity #veganliving #veganlife #plantbased #plantpower #whatveganseat #veganlifestyle #veganuk #vegantubie - 20 days ago

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Some days the smallest things can make you happy cry. My mother in law watches Little T every Friday afternoon. Today she washed the pile of dishes that has been staring at me for 2 maybe 3 days. She even put them all away. Imagine my delight to come home from work to a tidy kitchen! 
Helping us out doesn't always mean taking Little T away for a few hours. It can mean doing some of the shitty jobs so we can spend this extra 30 minutes just relaxing. 
Two of my jobs to do after work were done. Dishes and tidying up the toys. All i have to do is cook tea. 
Sometimes the smallest thing make the biggest difference

#blendeddiet #realfood #healthyfood #dairyfree #nhs #tests #family #mumlife #toddler #winterwalks #localpark #oralaversion #tubefed #tubie #SEND #additionalneeds #disabilities #gastricvolvulus #gastroparesis #dysmotility #delayedswallow #diaphragmaticeventration #mumlife #toddler #instamum #mumnurse #parenting #parenthood #kids #selfcare #holistichealth

Some days the smallest things can make you happy cry. My mother in law watches Little T every Friday afternoon. Today she washed the pile of dishes that has been staring at me for 2 maybe 3 days. She even put them all away. Imagine my delight to come home from work to a tidy kitchen! Helping us out doesn't always mean taking Little T away for a few hours. It can mean doing some of the shitty jobs so we can spend this extra 30 minutes just relaxing. Two of my jobs to do after work were done. Dishes and tidying up the toys. All i have to do is cook tea. Sometimes the smallest thing make the biggest difference #blendeddiet #realfood #healthyfood #dairyfree #nhs #tests #family #mumlife #toddler #winterwalks #localpark #oralaversion #tubefed #tubie #SEND #additionalneeds #disabilities #gastricvolvulus #gastroparesis #dysmotility #delayedswallow #diaphragmaticeventration #mumlife #toddler #instamum #mumnurse #parenting #parenthood #kids #selfcare #holistichealth - 20 days ago

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Today's breakfast

How is the kid meant to ever feel hungry enough to try eat orally when I spend all day filling him with medication and tube feeds. I only tube feed if he's refused a meal but the medication must be quite filling too. He has 188ml of movicol per day. If I added up ml for ml I bet he has nearly 350ml a day of medications and flushes. Then his milk he drinks morning and night. Then at least 500ml of Frebini. 
I've tried the withholding feeds to try encourage hunger but he doesn't understand that feeling and he continues to refuse and eventually his blood sugars drop and he becomes quite ill. So I don't do that anymore.

I suppose right now though his medication is needed more than oral eating. 
#blendeddiet #realfood #healthyfood #dairyfree #nhs #tests #family #mumlife #toddler #winterwalks #localpark #oralaversion #tubefed #tubie #SEND #additionalneeds #disabilities #gastricvolvulus #gastroparesis #dysmotility #delayedswallow #diaphragmaticeventration #mumlife #toddler #instamum #mumnurse #parenting #parenthood #kids #selfcare #holistichealth

Today's breakfast How is the kid meant to ever feel hungry enough to try eat orally when I spend all day filling him with medication and tube feeds. I only tube feed if he's refused a meal but the medication must be quite filling too. He has 188ml of movicol per day. If I added up ml for ml I bet he has nearly 350ml a day of medications and flushes. Then his milk he drinks morning and night. Then at least 500ml of Frebini. I've tried the withholding feeds to try encourage hunger but he doesn't understand that feeling and he continues to refuse and eventually his blood sugars drop and he becomes quite ill. So I don't do that anymore. I suppose right now though his medication is needed more than oral eating. #blendeddiet #realfood #healthyfood #dairyfree #nhs #tests #family #mumlife #toddler #winterwalks #localpark #oralaversion #tubefed #tubie #SEND #additionalneeds #disabilities #gastricvolvulus #gastroparesis #dysmotility #delayedswallow #diaphragmaticeventration #mumlife #toddler #instamum #mumnurse #parenting #parenthood #kids #selfcare #holistichealth - 21 days ago

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This was probably the only time of the day little T didn't cry. 
He's poorly. Full of cold. HIS chest sounds awful. His ears hurting and his bowels not working very well so hea feeling miserable and teary and a tad bit sensitive. Calpol and ibuprofen have been my friend today. Vicks has been liberally applied numerous times too. I even upped the prokinetic antibiotics to treatment dose for infection ad opposed to treatment dose for gastroparesis. Pretty sure I shouldn't do it because doctors haven't said so but I'm also not stupid. His body is struggling immensely and if a 5 day course of antiBs helps then so be it. If it doesn't then well at least we tried and shit i might have added to the antibiotic resistance problem.

He's sleeping now. Blissfully drugged up on painkillers to ease whatever discomfort is bothering him. Snuggled in his fave dinosaur onesie with a tummy full of Frebini. 
Today has tested me. It's exhausted me. It's handed me my arse on a silver platter. Today was a hard day. 
Tomorrow might be better.

#blendeddiet #realfood #healthyfood #dairyfree #nhs #tests #family #mumlife #toddler #winterwalks #localpark #oralaversion #tubefed #tubie #SEND #additionalneeds #disabilities #gastricvolvulus #gastroparesis #dysmotility #delayedswallow #diaphragmaticeventration #mumlife #toddler #instamum #mumnurse #parenting #parenthood #kids #selfcare #holistichealth

This was probably the only time of the day little T didn't cry. He's poorly. Full of cold. HIS chest sounds awful. His ears hurting and his bowels not working very well so hea feeling miserable and teary and a tad bit sensitive. Calpol and ibuprofen have been my friend today. Vicks has been liberally applied numerous times too. I even upped the prokinetic antibiotics to treatment dose for infection ad opposed to treatment dose for gastroparesis. Pretty sure I shouldn't do it because doctors haven't said so but I'm also not stupid. His body is struggling immensely and if a 5 day course of antiBs helps then so be it. If it doesn't then well at least we tried and shit i might have added to the antibiotic resistance problem. He's sleeping now. Blissfully drugged up on painkillers to ease whatever discomfort is bothering him. Snuggled in his fave dinosaur onesie with a tummy full of Frebini. Today has tested me. It's exhausted me. It's handed me my arse on a silver platter. Today was a hard day. Tomorrow might be better. #blendeddiet #realfood #healthyfood #dairyfree #nhs #tests #family #mumlife #toddler #winterwalks #localpark #oralaversion #tubefed #tubie #SEND #additionalneeds #disabilities #gastricvolvulus #gastroparesis #dysmotility #delayedswallow #diaphragmaticeventration #mumlife #toddler #instamum #mumnurse #parenting #parenthood #kids #selfcare #holistichealth - 21 days ago

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Food... the first box shows how our day starts, I blend and prepare Elizabeth’s food for the day. I was craving comfort food so I had a bowl of cauliflower with cheese and chicken. This morning I whipped up some keto pancakes with almond and lupin flours. And coffee... always coffee. #keto #ketosis #ketolife #lchf #lc #gtube #tubie #jtube #blendeddiet #enzymes #health

Food... the first box shows how our day starts, I blend and prepare Elizabeth’s food for the day. I was craving comfort food so I had a bowl of cauliflower with cheese and chicken. This morning I whipped up some keto pancakes with almond and lupin flours. And coffee... always coffee. #keto #ketosis #ketolife #lchf #lc #gtube #tubie #jtube #blendeddiet #enzymes #health - 21 days ago

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Ever since we started Evanna's blended g-tube diet 16 months ago, we've used Plum Organics Mighty 4 pouches to supplement our blends and as a snack while traveling. I checked every pouch in multiple stores, looking for the highest calorie pouch that had fat and protein.  Nearly every pouch was 50-70 calories and just 1-2 grams of protein. At 90-110 calories and 4 grams of protein, Mighty 4 was the clear winner and we have been brand loyal ever since despite the fact they usually cost more than others pouches. They recently came out with new packaging. I don't care about packaging so I continued to buy them. Yesterday,  just happened to notice the calories on a pouch was different. Comparing the old nutrient label to the new labels reveals that they completely changed the formulation. Nothing on the packaging suggests such a drastic change...20% fewer calories, 50% less iron, 16% less carbohydrates, 50% less fat, and 50% less protein. The vitamin c content is no longer listed. Plum Organics has changed everything that made us brand loyal and paying more for their product. #specialneeds #tubie #gtube #blendeddiet #plumorganics

Ever since we started Evanna's blended g-tube diet 16 months ago, we've used Plum Organics Mighty 4 pouches to supplement our blends and as a snack while traveling. I checked every pouch in multiple stores, looking for the highest calorie pouch that had fat and protein. Nearly every pouch was 50-70 calories and just 1-2 grams of protein. At 90-110 calories and 4 grams of protein, Mighty 4 was the clear winner and we have been brand loyal ever since despite the fact they usually cost more than others pouches. They recently came out with new packaging. I don't care about packaging so I continued to buy them. Yesterday, just happened to notice the calories on a pouch was different. Comparing the old nutrient label to the new labels reveals that they completely changed the formulation. Nothing on the packaging suggests such a drastic change...20% fewer calories, 50% less iron, 16% less carbohydrates, 50% less fat, and 50% less protein. The vitamin c content is no longer listed. Plum Organics has changed everything that made us brand loyal and paying more for their product. #specialneeds #tubie #gtube #blendeddiet #plumorganics - 21 days ago

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Day 2 of blended diet. 
Banana and Coconut for breakfast - 177calories. I mix it with 25ml of boiled water so it's a warm puree which must feel lovely for him in this weather. 
He's also eating a slice of wholemeal toast. 
I'm working at cutting down his dairy intake so if we do have to go dairy free it won't be that difficult. Hopefully the added puree peg feed will reduce his need for milk. 
It feels so amazing as a parent to give him something as healthy as fruit. I know it's processed still but it's real food still and that's important for me.

#blendeddiet #realfood #healthyfood #dairyfree #nhs #tests #family #mumlife #toddler #winterwalks #localpark #oralaversion #tubefed #tubie #SEND #additionalneeds #disabilities #gastricvolvulus #gastroparesis #dysmotility #delayedswallow #diaphragmaticeventration #mumlife #toddler #instamum #mumnurse #parenting #parenthood #kids #selfcare #holistichealth

Day 2 of blended diet. Banana and Coconut for breakfast - 177calories. I mix it with 25ml of boiled water so it's a warm puree which must feel lovely for him in this weather. He's also eating a slice of wholemeal toast. I'm working at cutting down his dairy intake so if we do have to go dairy free it won't be that difficult. Hopefully the added puree peg feed will reduce his need for milk. It feels so amazing as a parent to give him something as healthy as fruit. I know it's processed still but it's real food still and that's important for me. #blendeddiet #realfood #healthyfood #dairyfree #nhs #tests #family #mumlife #toddler #winterwalks #localpark #oralaversion #tubefed #tubie #SEND #additionalneeds #disabilities #gastricvolvulus #gastroparesis #dysmotility #delayedswallow #diaphragmaticeventration #mumlife #toddler #instamum #mumnurse #parenting #parenthood #kids #selfcare #holistichealth - 22 days ago

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Last nights blend was chicken chasseur with new potatoes and real butter. (Pre blend) 
#blendeddiet #pegfed #realfood #weightgain

Last nights blend was chicken chasseur with new potatoes and real butter. (Pre blend) #blendeddiet #pegfed #realfood #weightgain - 23 days ago

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Beautiful Breton bodysuits, 100% softest organic cotton from £17 #gastrostomy #blendeddiet #tubefeeding #blendeddietfortubies #additionalneeds #additionalneedskids #tubie #tubielife #specialneeds #organicclothingforkids #adaptedclothing #wheelchairclothingforkids #sensoryprocessingdisorder #inclusivechic #cerebralpalsy #cerebralpalsyawareness #braininjury #brainstars #breton

Beautiful Breton bodysuits, 100% softest organic cotton from £17 #gastrostomy #blendeddiet #tubefeeding #blendeddietfortubies #additionalneeds #additionalneedskids #tubie #tubielife #specialneeds #organicclothingforkids #adaptedclothing #wheelchairclothingforkids #sensoryprocessingdisorder #inclusivechic #cerebralpalsy #cerebralpalsyawareness #braininjury #brainstars #breton - 24 days ago

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Over the past two weeks ,I have been trying Reuben on something called a blended diet .  Instead of his prescribed milk,  I have been replacing one feed a day with a proper home cooked meal , blended  down and then given via his PEG into his tummy .  He is tolerating these well , and it is so nice to feel like a Mother by being able to give me son real food . He has also been taking small amounts orally . This evening he ate a whole bowl of pureed banana and strawberries. I aim to increase to two meals , and so on to establish a full blended diet giving my son the real food he needs.  #blendeddiet #blendeddietfortubies

Over the past two weeks ,I have been trying Reuben on something called a blended diet . Instead of his prescribed milk, I have been replacing one feed a day with a proper home cooked meal , blended down and then given via his PEG into his tummy . He is tolerating these well , and it is so nice to feel like a Mother by being able to give me son real food . He has also been taking small amounts orally . This evening he ate a whole bowl of pureed banana and strawberries. I aim to increase to two meals , and so on to establish a full blended diet giving my son the real food he needs. #blendeddiet #blendeddietfortubies - 24 days ago

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All done and frozen 😍 
#blendeddiet #tubefed #cerebralpalsy #toddlermeals #mealprep

All done and frozen #blendeddiet #tubefed #cerebralpalsy #toddlermeals #mealprep - 25 days ago

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I made pizza, and Johnathon just had his first slice in 8oz form! #homemadepizza #tubielife #blendeddiet #fightingforJohnathon

I made pizza, and Johnathon just had his first slice in 8oz form! #homemadepizza #tubielife #blendeddiet #fightingforJohnathon - 25 days ago

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Last blend of the day is simmering away 😍. Stewed fruit + beetroot. My house smells AMAZING right now. (This will also have protein and grains added) 
#blendeddiet #mealprep #prepday #tubie #strawberries #beetroot #sored #smellsamazing

Last blend of the day is simmering away . Stewed fruit + beetroot. My house smells AMAZING right now. (This will also have protein and grains added) #blendeddiet #mealprep #prepday #tubie #strawberries #beetroot #sored #smellsamazing - 26 days ago

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Another’s picture of Annalise’s blends! Sorry haha it’s just so pretty. 
This looks like some kind of delicious start to soup, unfortunately not 😂 
Guess what the orange thing is, I’ll give you a clue.. it’s not a vegetable. 🤔 
#blendeddiet #tubefed #realfoodfortubies #healthyfood #toddlermeals

Another’s picture of Annalise’s blends! Sorry haha it’s just so pretty. This looks like some kind of delicious start to soup, unfortunately not Guess what the orange thing is, I’ll give you a clue.. it’s not a vegetable. 🤔 #blendeddiet #tubefed #realfoodfortubies #healthyfood #toddlermeals - 26 days ago

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Beef, peas and black beans cooking for another one of Annalise’s blends 😍😊
#tubie #tubiebaby #blendeddiet #healthyfood #toddlermeals #tubefed #madebymum

Beef, peas and black beans cooking for another one of Annalise’s blends #tubie #tubiebaby #blendeddiet #healthyfood #toddlermeals #tubefed #madebymum - 26 days ago

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It’s prep day for Annalise’s food. 
All up I’ll be making 3 separate meals and 17 days worth of food. 😱
#tubefed #tubie #blendeddiet #cerebralpalsy #toddlermeals #vitamix #cooking #yum #healthyfood

It’s prep day for Annalise’s food. All up I’ll be making 3 separate meals and 17 days worth of food. #tubefed #tubie #blendeddiet #cerebralpalsy #toddlermeals #vitamix #cooking #yum #healthyfood - 26 days ago

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Some of Iman’s meals I prepared this weekend. Batches of 1️⃣ Rice, Red Potatoes, Beef, Broccoli and Kale; 2️⃣ Rice, Salmon, Zucchini, Red Capsicums and Canned Tomatoes.

Fresh blends of Nenek’s Ikan Bilis Fried Rice she made for our Saturday breakfast to which I added Papaya and Peanut Butter plus her Sunday lunch of Rice with Lentil and Egg in Coconut Curry. I added lots of fresh ginger and turmeric to the curry and it smelt so good! #BlendedMealsByHuzzz #EatTheRainbow #BlendedDiet #BlenderizedDiet #BlendedDietForTubies #TubieMom #SpecialNeedsMom

Some of Iman’s meals I prepared this weekend. Batches of 1️⃣ Rice, Red Potatoes, Beef, Broccoli and Kale; 2️⃣ Rice, Salmon, Zucchini, Red Capsicums and Canned Tomatoes. Fresh blends of Nenek’s Ikan Bilis Fried Rice she made for our Saturday breakfast to which I added Papaya and Peanut Butter plus her Sunday lunch of Rice with Lentil and Egg in Coconut Curry. I added lots of fresh ginger and turmeric to the curry and it smelt so good! #BlendedMealsByHuzzz #EatTheRainbow #BlendedDiet #BlenderizedDiet #BlendedDietForTubies #TubieMom #SpecialNeedsMom - 26 days ago

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#Blendeddiet #tubiemama #dork #shhhh

#Blendeddiet #tubiemama #dork #shhhh - 27 days ago

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My new @freearm.tube.feeding.assistant , just got this in the mail today thanks to @life.with.stripes partnering up with freearm I was able to get one for absolutely no cost. I’m not even sure how to say thank you or if I can even say thank you enough. #gastroparesis #freearmtubefeedingassistant #blendeddiet. #gjtube #tubefeeds #tubefedlife

My new @freearm.tube.feeding.assistant , just got this in the mail today thanks to @life.with.stripes partnering up with freearm I was able to get one for absolutely no cost. I’m not even sure how to say thank you or if I can even say thank you enough. #gastroparesis #freearmtubefeedingassistant #blendeddiet . #gjtube #tubefeeds #tubefedlife - 27 days ago

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It’s Friday!#mumofthree. #blendeddiet #carer #hoist

It’s Friday!#mumofthree . #blendeddiet #carer #hoist - 28 days ago

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Lunch time.
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Today Ameli had jacket potatoe, cheese, clover and spaghetti hoops.
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#jacketpotatoe
#cheese 
#spagetti 
#hoops 
#clover 
#oatsmilk 
#tubie 
#tubielife 
#tubiekid 
#tubiemum 
#tubiebaby 
#blend 
#blendeddiet

Lunch time. . . Today Ameli had jacket potatoe, cheese, clover and spaghetti hoops. . . #jacketpotatoe #cheese #spagetti #hoops #clover #oatsmilk #tubie #tubielife #tubiekid #tubiemum #tubiebaby #blend #blendeddiet - 28 days ago

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"When will he be like me?!"
The lastest in a long list of questions from Oshi's 4 year old cousin, Bess. 
Hit me like a brick wall when the answer is simple, "never". "Bess is like Bess and Oshi is like Oshi, and that's the way that you are both meant to be". . 
What she really meant was when will Oshi walk, talk and eat "like her". She must be thinking that he's been a "baby" for a really long time now! She's trying to process the fact that they are about the same size as one another and only a year apart in age, but their relationship is "different." She looks at him expectantly for him to play with her but his dark eyes look back and he beams as she showers him with kisses.
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Bess has only just noticed that Oshi is "different" compared to the other children she knows. She's noticed and accepted that no two people are the same. 💕
To be different from the majority opens up your mind to new thoughts and new ways to play, communicate and interact with the world. (Different is the BEST!)
.
. 
She said "OK", read him a story and tried to feed him a piece of her apple 😆 .
Often, inclusion focuses on the difference, but to be truly inclusive is to involve everyone! We can learn a lot from this 4 year old! 💙💚💛🧡💜🖤
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#cousins #siblings #sen #storytime #picoftheday #4yearsold #disability #aicardigoutieressyndrome 
#kids #inclusion #teacher #communitymatters #tubie #tubefed #blendeddiet #play #sensory #differentisbest

"When will he be like me?!" The lastest in a long list of questions from Oshi's 4 year old cousin, Bess. Hit me like a brick wall when the answer is simple, "never". "Bess is like Bess and Oshi is like Oshi, and that's the way that you are both meant to be". . What she really meant was when will Oshi walk, talk and eat "like her". She must be thinking that he's been a "baby" for a really long time now! She's trying to process the fact that they are about the same size as one another and only a year apart in age, but their relationship is "different." She looks at him expectantly for him to play with her but his dark eyes look back and he beams as she showers him with kisses. . Bess has only just noticed that Oshi is "different" compared to the other children she knows. She's noticed and accepted that no two people are the same. To be different from the majority opens up your mind to new thoughts and new ways to play, communicate and interact with the world. (Different is the BEST!) . . She said "OK", read him a story and tried to feed him a piece of her apple . Often, inclusion focuses on the difference, but to be truly inclusive is to involve everyone! We can learn a lot from this 4 year old! 🧡🖤 . #cousins #siblings #sen #storytime #picoftheday #4yearsold #disability #aicardigoutieressyndrome #kids #inclusion #teacher #communitymatters #tubie #tubefed #blendeddiet #play #sensory #differentisbest - 28 days ago

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Morning snack with a cup of green tea
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Today's snack is raspberries, blueberries, strawberries blackberries, cherries mixed with cream. .
#tubie
#gastronomy
#diet
#snack
#blendeddiet
#amelisjourney
#food
#nomoremilk
#healthyfood
#health
#tubiebaby
#tubielife
#babygirl
#strawberry
#raspberry
#blackberry
#cherries
#cream
#tea

Morning snack with a cup of green tea . Today's snack is raspberries, blueberries, strawberries blackberries, cherries mixed with cream. . #tubie #gastronomy #diet #snack #blendeddiet #amelisjourney #food #nomoremilk #healthyfood #health #tubiebaby #tubielife #babygirl #strawberry #raspberry #blackberry #cherries #cream #tea - 28 days ago

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Breakfast time
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Granola with raisins, gojiberries, honey, banana, full fat milk with a little bit of cream. .
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#granola 
#banana 
#raisins 
#gojiberries 
#honey 
#cream 
#fullbelly 
#milk 
#pretty 
#breakfast 
#healthyfood 
#health 
#babygirl 
#tubie 
#tubielife 
#tubies 
#tubiekid 
#tubiemum 
#mumslife 
#blend 
#blendeddiet

Breakfast time . . Granola with raisins, gojiberries, honey, banana, full fat milk with a little bit of cream. . . #granola #banana #raisins #gojiberries #honey #cream #fullbelly #milk #pretty #breakfast #healthyfood #health #babygirl #tubie #tubielife #tubies #tubiekid #tubiemum #mumslife #blend #blendeddiet - 28 days ago

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Bashy boy is throwing up the duces ✌🏼
I’m also happy to report our neurologist called back with positive news regarding Sebastian’s 24 hour EEG. He didn’t see any seizures except for a few tiny spasms, but he said they were soo small and he wouldn’t have even noticed them if I hadn’t hit the seizure button they give us while they are being observed. So the news was positive and we were instructed to continue to do whatever it is we already are doing 😊👍🏽 🌿
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#lissencephaly #infantilespasms #tucsonkids #lissencephalyawareness #blenderizeddiet #gtubebaby #blendeddietfortubies #blendeddiet #specialneedsfamily #haleighshope #cbdforepilepsy

Bashy boy is throwing up the duces 🏼 I’m also happy to report our neurologist called back with positive news regarding Sebastian’s 24 hour EEG. He didn’t see any seizures except for a few tiny spasms, but he said they were soo small and he wouldn’t have even noticed them if I hadn’t hit the seizure button they give us while they are being observed. So the news was positive and we were instructed to continue to do whatever it is we already are doing 🏽 . . . #lissencephaly #infantilespasms #tucsonkids #lissencephalyawareness #blenderizeddiet #gtubebaby #blendeddietfortubies #blendeddiet #specialneedsfamily #haleighshope #cbdforepilepsy - 28 days ago

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Tonight’s pudding thanks to @iamcinnamonbear #tubefed #blendeddiet #goodfriends

Tonight’s pudding thanks to @iamcinnamonbear #tubefed #blendeddiet #goodfriends - 28 days ago

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Tea time.
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Sausage slow cooked in gravy with mushrooms and onions, mixed with shredded cauliflower rice. .
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#slowcooked 
#sausages 
#onions 
#mushrooms 
#gravy 
#cauliflower 
#rice 
#blend 
#blendeddiet 
#diet 
#tubie 
#tubielife 
#tubies 
#tubiekid 
#tubiemum 
#babygirl 
#amelisjourney

Tea time. . . Sausage slow cooked in gravy with mushrooms and onions, mixed with shredded cauliflower rice. . . #slowcooked #sausages #onions #mushrooms #gravy #cauliflower #rice #blend #blendeddiet #diet #tubie #tubielife #tubies #tubiekid #tubiemum #babygirl #amelisjourney - 29 days ago

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Sorry late up load for amelis lunch.
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Omelette with ham, cheese, peas,brocolli, mushrooms.
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#omelette
#eggs
#oakmilk
#mushrooms
#cheese
#brocolli
#ham
#clover
#tubie
#tubielife
#tubies
#tubiebaby
#tubiemum
#mumslife
#diet
#healthyfood
#health
#juice 
#blendeddiet
#blend
#blender
#lunch

Sorry late up load for amelis lunch. . . Omelette with ham, cheese, peas,brocolli, mushrooms. . . #omelette #eggs #oakmilk #mushrooms #cheese #brocolli #ham #clover #tubie #tubielife #tubies #tubiebaby #tubiemum #mumslife #diet #healthyfood #health #juice #blendeddiet #blend #blender #lunch - 29 days ago

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🔊LISTEN UP. 🔊
I'm probably the only person using @vadenutrition protein powder pods through a feeding tube. I don't hate it. I've said it before and I'll say it again, I am SO grateful to be working with a company who wasn't scared of my differences, but embraced them. I could stand on top of a mountain and clap for #vadenutrition. I've talked to the owner, Joe, and he's said several times how supportive he is of my story and my mission. I don't know his life story. I don't know if he knows other people with disabilities or medical conditions. I don't know if someone clued him in that in 2019 he should be as inclusive as humanly possible with his company. However it happened, I'm grateful. I'm grateful that he knows HOW DANG IMPORTANT it is to champion people of all abilities and all shapes, sizes, and colors. These protein powder pods really do make my life better. 1) they are awesome after working out 2) Brandon always makes my shake for me and packs it in my lunchbox for me and that's really nice and cute 3) the added calories are only helping my muscles grow and for that I'm very happy! 
Also, I LAUGH OUT LOUD every time someone says they feel sorry for me that I eat through a feeding tube. Ya'll. I CAN EAT WHILE I AM ASLEEP. I can eat in the shower. I can literally MacGyver up a way to hang my bag and carry on with my life. I eat REALLY HEALTHY FOODS because chocolate chip cookies don't blend up well. So, you can keep on feeling sorry for me all you want but I'm going to keep living my best life. Thank you @vadenutrition for believing in me and for doing things right in 2019.

LISTEN UP. I'm probably the only person using @vadenutrition protein powder pods through a feeding tube. I don't hate it. I've said it before and I'll say it again, I am SO grateful to be working with a company who wasn't scared of my differences, but embraced them. I could stand on top of a mountain and clap for #vadenutrition . I've talked to the owner, Joe, and he's said several times how supportive he is of my story and my mission. I don't know his life story. I don't know if he knows other people with disabilities or medical conditions. I don't know if someone clued him in that in 2019 he should be as inclusive as humanly possible with his company. However it happened, I'm grateful. I'm grateful that he knows HOW DANG IMPORTANT it is to champion people of all abilities and all shapes, sizes, and colors. These protein powder pods really do make my life better. 1) they are awesome after working out 2) Brandon always makes my shake for me and packs it in my lunchbox for me and that's really nice and cute 3) the added calories are only helping my muscles grow and for that I'm very happy! Also, I LAUGH OUT LOUD every time someone says they feel sorry for me that I eat through a feeding tube. Ya'll. I CAN EAT WHILE I AM ASLEEP. I can eat in the shower. I can literally MacGyver up a way to hang my bag and carry on with my life. I eat REALLY HEALTHY FOODS because chocolate chip cookies don't blend up well. So, you can keep on feeling sorry for me all you want but I'm going to keep living my best life. Thank you @vadenutrition for believing in me and for doing things right in 2019. - 29 days ago

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For being a good girl at her appointment, treat time. .
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Banoffee cupcake and oatly cream.
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#treat
#treattime 
#banoffee 
#cupcake 
#cream 
#beingagoodgirl 
#babygirl 
#tubie 
#tubielife 
#tubies 
#tubiekid 
#tubiemum 
#tubiebaby 
#blend 
#blendeddiet 
#food

For being a good girl at her appointment, treat time. . . Banoffee cupcake and oatly cream. . . #treat #treattime #banoffee #cupcake #cream #beingagoodgirl #babygirl #tubie #tubielife #tubies #tubiekid #tubiemum #tubiebaby #blend #blendeddiet #food - 30 days ago

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Tea time
.
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Today Ameli had chicken stir fry with egg noodles, I pureed it down with oaks milk. .
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She has a little treat for later for being a good girl at her appointment today which I will upload later. .
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#eggnoodles 
#stirfry 
#stir 
#peas 
#greenbeans 
#carrot 
#peppers 
#sweetcorn 
#mushrooms 
#veggies 
#blend 
#blendeddiet
#colourful 
#welovecolours 
#tubie 
#tubielife 
#tubies 
#tubiekid 
#tubiebaby 
#tubiemum 
#babygirl

Tea time . . Today Ameli had chicken stir fry with egg noodles, I pureed it down with oaks milk. . . She has a little treat for later for being a good girl at her appointment today which I will upload later. . . #eggnoodles #stirfry #stir #peas #greenbeans #carrot #peppers #sweetcorn #mushrooms #veggies #blend #blendeddiet #colourful #welovecolours #tubie #tubielife #tubies #tubiekid #tubiebaby #tubiemum #babygirl - 30 days ago

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Leighton’s story 💞#blendeddiet #disabledchildren #lissencephaly

Leighton’s story #blendeddiet #disabledchildren #lissencephaly - 30 days ago

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Lunch time
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Egg fried rice with pink salmon, added a knob of clover butter and some oats milk.
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#eggs
#eggfriedrice
#peas
#pinksalmon
#salmon
#clover
#oatsmilk
#blend
#blendeddiet
#lunch
#tubielife
#tubie
#tubies
#tubiekid
#tubiemum
#syringes
#healthyfood
#health
#babygirl

Lunch time . . Egg fried rice with pink salmon, added a knob of clover butter and some oats milk. . . #eggs #eggfriedrice #peas #pinksalmon #salmon #clover #oatsmilk #blend #blendeddiet #lunch #tubielife #tubie #tubies #tubiekid #tubiemum #syringes #healthyfood #health #babygirl - 30 days ago

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Breakfast time
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Ready brek, banana, honey with a bit of double cream and full fat milk. .
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#breakfast 
#readybrek 
#banana 
#cream 
#milk 
#honey 
#tubielife 
#tubie 
#tubies 
#tubielife 
#tubiekid 
#tubiebaby 
#syringes 
#itsnotgreen 
#blend 
#blendeddiet 
#meds

Breakfast time . . Ready brek, banana, honey with a bit of double cream and full fat milk. . . #breakfast #readybrek #banana #cream #milk #honey #tubielife #tubie #tubies #tubielife #tubiekid #tubiebaby #syringes #itsnotgreen #blend #blendeddiet #meds - 30 days ago

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Lunch time
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Mediterranean vegetables with pink salmon, added a knob of clover butter and some oats milk. Finished off with a flush of red grape. .
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#mediterraneanfood 
#brocolli 
#greenbeans 
#cherrytomato 
#courgettes 
#peppers 
#onions 
#pinksalmon 
#salmon 
#clover 
#oatsmilk 
#blend 
#blendeddiet 
#lunch 
#tubielife 
#tubie 
#tubies 
#tubiekid 
#tubiemum 
#grape 
#drink 
#syringes 
#healthyfood 
#health 
#babygirl

Lunch time . . Mediterranean vegetables with pink salmon, added a knob of clover butter and some oats milk. Finished off with a flush of red grape. . . . #mediterraneanfood #brocolli #greenbeans #cherrytomato #courgettes #peppers #onions #pinksalmon #salmon #clover #oatsmilk #blend #blendeddiet #lunch #tubielife #tubie #tubies #tubiekid #tubiemum #grape #drink #syringes #healthyfood #health #babygirl - 1 month ago

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Morning snack with a cup of super green tea
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#tubie
#gastronomy
#diet
#snack
#blendeddiet
#amelisjourney
#food
#nomoremilk
#healthyfood
#health
#tubiebaby
#tubielife
#babygirl 
#avacardos
#spinach
#grapefruit
#pineapple
#banana
#kale
#lime
#sunflowerseeds
#greekyogurt
#tea 
#vitamind

Morning snack with a cup of super green tea . . . #tubie #gastronomy #diet #snack #blendeddiet #amelisjourney #food #nomoremilk #healthyfood #health #tubiebaby #tubielife #babygirl #avacardos #spinach #grapefruit #pineapple #banana #kale #lime #sunflowerseeds #greekyogurt #tea #vitamind - 1 month ago

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Vitabiotics
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Along side the blended diet I give Ameli 5mls of Well baby every morning with her medications. She had recent blood test and everything has come back above perfect. I believe with the blended diet and well baby her levels have increased, her skin is looking amazing and bowel movement has improved massively. If anyone is unsure if they want to transition over to blended diet from prescribed milk the benefits are outstanding. .
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#wellbaby 
#vitabiotics 
#vitamins 
#minerals 
#growth 
#development 
#blendeddiet 
#blend 
#bloods 
#levels 
#improvement 
#tubielife 
#tubiekid 
#tubie 
#tubies 
#tubiemum 
#tubiebaby 
#babygirl 
#amelisjourney

Vitabiotics . . Along side the blended diet I give Ameli 5mls of Well baby every morning with her medications. She had recent blood test and everything has come back above perfect. I believe with the blended diet and well baby her levels have increased, her skin is looking amazing and bowel movement has improved massively. If anyone is unsure if they want to transition over to blended diet from prescribed milk the benefits are outstanding. . . . #wellbaby #vitabiotics #vitamins #minerals #growth #development #blendeddiet #blend #bloods #levels #improvement #tubielife #tubiekid #tubie #tubies #tubiemum #tubiebaby #babygirl #amelisjourney - 1 month ago

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