#eds

368,137 posts

☀ S U N D A Y S - - Besides being the weekend, and my hubby being home and getting to be together as a family (my FAVORITE!), Sundays are the first day of a brand new week.
.
A fresh start. A time to refocus on the things that really do matter. Regardless of how down I've been during the week, I look forward to Sundays as my time to refuel and recharge.
.
I know this coming week will be hard. I know there will be pain and fatigue and sleepless nights and a host of other things. But there's nothing to do but chin up and face it. And Sundays help me gather my strength to do that.
.
How do you recharge on the weekends?
.
.
.
#sunday #weekendvibes #darlingweekend #rawmotherhood #candidmotherhood #honestmotherhood #inspirationintheeveryday #onedayatatime #eds #hEDS #ehlersdanlos #ehlersdanlossyndrome #geneticdisorder #chronicpain #chronicfatigue #chronicillness #invisibleillness #butyoudontlooksick #chronicallyill #spoonie #spoonielife #spoonies #zebrastrong #pain #hypermobility #edsawareness #honestlymothering #messy_motherhood #mentalhealth

S U N D A Y S - - Besides being the weekend, and my hubby being home and getting to be together as a family (my FAVORITE!), Sundays are the first day of a brand new week. . A fresh start. A time to refocus on the things that really do matter. Regardless of how down I've been during the week, I look forward to Sundays as my time to refuel and recharge. . I know this coming week will be hard. I know there will be pain and fatigue and sleepless nights and a host of other things. But there's nothing to do but chin up and face it. And Sundays help me gather my strength to do that. . How do you recharge on the weekends? . . . #sunday #weekendvibes #darlingweekend #rawmotherhood #candidmotherhood #honestmotherhood #inspirationintheeveryday #onedayatatime #eds #hEDS #ehlersdanlos #ehlersdanlossyndrome #geneticdisorder #chronicpain #chronicfatigue #chronicillness #invisibleillness #butyoudontlooksick #chronicallyill #spoonie #spoonielife #spoonies #zebrastrong #pain #hypermobility #edsawareness #honestlymothering #messy_motherhood #mentalhealth - 1 hour ago

1 Likes
0 Comments
0
Im cieplej na dworze tym my bardziej nie możemy się doczekać lata 🙈 Już za 3 miesiące ponownie wyruszymy do Augustowa! Nie zabraknie z nami najlepszej kadry na świecie! 🌏❤️ Będziecie z nami? 💪🏻
———————————————
#egurroladancestudio #egurrola #eds #egurroladancesummer #summer #dancecamp #camp #power #soon #augustów #obóz #obóztaneczny #dzieci #juniorzy #pasja #taniec

Im cieplej na dworze tym my bardziej nie możemy się doczekać lata Już za 3 miesiące ponownie wyruszymy do Augustowa! Nie zabraknie z nami najlepszej kadry na świecie! ️ Będziecie z nami? 🏻 ——————————————— #egurroladancestudio #egurrola #eds #egurroladancesummer #summer #dancecamp #camp #power #soon #augustów #obóz #obóztaneczny #dzieci #juniorzy #pasja #taniec - 1 hour ago

28 Likes
0 Comments
0
#brazil #상파울루🇧🇷 #ywam #300sp #dts
#eds #lovefeast #오브리가다🙏 #감사
이렇게 귀한곳에 우리부부가 함께 할수 있었던시간이 영광이고 축복이었어요 #행복

#brazil #상파울루 🇧🇷 #ywam #300sp #dts #eds #lovefeast #오브리가다 #감사 이렇게 귀한곳에 우리부부가 함께 할수 있었던시간이 영광이고 축복이었어요 #행복 - 1 hour ago

2 Likes
0 Comments
0
Springtime is coming🌼 and easter 🐣🐤 I love to decorate. It makes me very happy. All the cute rabbits🐇
.
.
.
.
#chronicillness #chronicfatigue #chronicpain #invisibleillness #invisibledisability #spoonie #spoonielife #spooniefamily #spooniestrong #POTS #TMJ #CCI #eds #heds #MCAS #mastcell #wheelchair #dysautonomia #hypermobility #ehlersdanlos  #ehlersdanlossyndrome #dontjudgeaperson #dontjudge #alwaysfighting #mylife #zebrastrong #everyBodyisbeautiful #butyoudontlooksick #fightlikeawarrior #chroniczebra

Springtime is coming and easter I love to decorate. It makes me very happy. All the cute rabbits🐇 . . . . #chronicillness #chronicfatigue #chronicpain #invisibleillness #invisibledisability #spoonie #spoonielife #spooniefamily #spooniestrong #POTS #TMJ #CCI #eds #heds #MCAS #mastcell #wheelchair #dysautonomia #hypermobility #ehlersdanlos   #ehlersdanlossyndrome #dontjudgeaperson #dontjudge #alwaysfighting #mylife #zebrastrong #everyBodyisbeautiful #butyoudontlooksick #fightlikeawarrior #chroniczebra - 1 hour ago

3 Likes
0 Comments
0
All of Koa’s patches are up on the patch mat. Now we just need to hang it! 🐾........................................................................ Check out my other pages! @k9gearco @kalika_the_service_dog 🐾........................................................................ #servicedog #sdit #germanshepherd #psychiatricservicedog #dogsofinstagram  #gsd #respectthevest #workingdog #invisibleillness #invisibleillnessawareness  #chronicillness #spoonie #spoonielife #servicedogteam #servicedoglife #servicedogsofinstagram #ehlersdanlossyndrome #eds #ehlersdanlos #edstype3 #servicedogprospect #puppies #puppylove

All of Koa’s patches are up on the patch mat. Now we just need to hang it! ........................................................................ Check out my other pages! @k9gearco @kalika_the_service_dog ........................................................................ #servicedog #sdit #germanshepherd #psychiatricservicedog #dogsofinstagram #gsd #respectthevest #workingdog #invisibleillness #invisibleillnessawareness #chronicillness #spoonie #spoonielife #servicedogteam #servicedoglife #servicedogsofinstagram #ehlersdanlossyndrome #eds #ehlersdanlos #edstype3 #servicedogprospect #puppies #puppylove - 1 hour ago

5 Likes
0 Comments
0
The @rmhbostonharbor had a group of volunteers come in yesterday.  They are all finishing school to do something in the medical field (PT,  OT,  PA). I am sure they picked up on Tori having a hard time to keep up with hitting the balloon back and forth (she started this fun little game 😊), and they quickly adapted the activity. They were so positive and encouraging. This may not be a big deal to most,  but this was a pretty big victory for Tori. @travelingwithtori #travelingwithtori #fearless #eds #potssyndrome #pots #victory #zebrastrong #raredisease #knowledgeispower #keepmovingforward #pediatricphysicaltherapy #pediatricoccupationaltherapy #ehlersdanlossyndrome

The @rmhbostonharbor had a group of volunteers come in yesterday. They are all finishing school to do something in the medical field (PT, OT, PA). I am sure they picked up on Tori having a hard time to keep up with hitting the balloon back and forth (she started this fun little game ), and they quickly adapted the activity. They were so positive and encouraging. This may not be a big deal to most, but this was a pretty big victory for Tori. @travelingwithtori #travelingwithtori #fearless #eds #potssyndrome #pots #victory #zebrastrong #raredisease #knowledgeispower #keepmovingforward #pediatricphysicaltherapy #pediatricoccupationaltherapy #ehlersdanlossyndrome - 1 hour ago

2 Likes
0 Comments
0
Juicing for the metabolically challenged!

#invisibleillness #mito #mitochondrialdisease #spoonie #EDS #Lyme #lymedisease #immunodeficiency #autoimmune#Glycogenstorage #motivation #motivational #positive #chronicillness #chronicillnessmotivation #disability #chronicpain #ptsd #cipd #CFS #dysautonomia#sufferingthesilence#zebrastrong#buhnerprotocol

Juicing for the metabolically challenged! #invisibleillness #mito #mitochondrialdisease #spoonie #EDS #Lyme #lymedisease #immunodeficiency #autoimmune #Glycogenstorage #motivation #motivational #positive #chronicillness #chronicillnessmotivation #disability #chronicpain #ptsd #cipd #CFS #dysautonomia #sufferingthesilence #zebrastrong #buhnerprotocol - 1 hour ago

6 Likes
0 Comments
0
We often overthink in the person we were before getting messed up with our conditions. When we do that we dismiss sometimes the areas that we have improved. Is true, chronic illnesses take a lot away from us, but it also makes us to become a new version, with a new set of skills, a new mindset, sometimes a better person with a new perspective. We see life in a very different way.
So yes YOU are enough, You are capable, YOU do you and You can. 
Be kind with Yourself!

#dysautonomia #pots #potsie #autonomicdysfunction #posturalorthostatictachycardiasyndrome #EDS #ehlersdanlossyndrome #hEDS #zebrastrong #hypermobility #mastcellactivationsyndrome #mcas #ibs #migraines #vestibularmigraines #intractablemigraine #basilarmigraines #chronicmigraine #chronicfatiguesyndrome #cfs #anxiety #spoonie #chronicillness #invisibleillness #chronicwarriors #chronicpain #rheumatoidarthritis #occipitalneuralgia

We often overthink in the person we were before getting messed up with our conditions. When we do that we dismiss sometimes the areas that we have improved. Is true, chronic illnesses take a lot away from us, but it also makes us to become a new version, with a new set of skills, a new mindset, sometimes a better person with a new perspective. We see life in a very different way. So yes YOU are enough, You are capable, YOU do you and You can. Be kind with Yourself! #dysautonomia #pots #potsie #autonomicdysfunction #posturalorthostatictachycardiasyndrome #EDS #ehlersdanlossyndrome #hEDS #zebrastrong #hypermobility #mastcellactivationsyndrome #mcas #ibs #migraines #vestibularmigraines #intractablemigraine #basilarmigraines #chronicmigraine #chronicfatiguesyndrome #cfs #anxiety #spoonie #chronicillness #invisibleillness #chronicwarriors #chronicpain #rheumatoidarthritis #occipitalneuralgia - 2 hours ago

13 Likes
1 Comments
0
Recently I’ve decided to try and better my life a bit more. As basically everyone who’s followed me for a while knows: I’m a vegan, I support as many animal charities as I can afford and try to minimize my carbon footprint where I can.
I’m going to go a step further, by reducing my personal AND business waste as much as I realistically can. That means reducing waste when cutting fabrics, using scraps to make little things, but also buy sustainable fabrics or at the very least, recyclable fabrics.
In order to do this the right way, I’m reading this book to learn which fabrics, other than organic cotton etc, are recyclable. I’ll also be attending a conference next week to learn more about “green” design. 
I truly believe this is the way forward, and I hope to inspire others to consider cutting their waste.
I’m certainly not saying that everyone should immediately stop buying all plastic or change every bad habit, but it would be amazing if everyone took a minute to consider what things in their lives are producing unnecessary waste, if maybe there are simple alternatives that produce less or no waste?
I’ll be posting more about this as I embark on this (for me) exciting journey and explore possibilities.
I’d love your input and love to know what you are doing for a greener planet! 
#plasticfree #reducingwaste #greendesigns #sustainablefashion #sustainableliving #thefutureisaccessible #thefutureisgreen .
.
.
.
.
#dreameries #disabledfashion #adaptedclothing #aangepastekleding #wheelchairfashion #fashiondesign #bracesandsplints #silversplints #ringsplints #eds #ehlersdanlos #ehlersdanlossyndrome #zebrawarrior #zebrastrong #spoonie #spooniesunited #spooniewarrior #invisibleillness #butyoudontlooksick #chronicillness #vegan #disabledaccessories

Recently I’ve decided to try and better my life a bit more. As basically everyone who’s followed me for a while knows: I’m a vegan, I support as many animal charities as I can afford and try to minimize my carbon footprint where I can. I’m going to go a step further, by reducing my personal AND business waste as much as I realistically can. That means reducing waste when cutting fabrics, using scraps to make little things, but also buy sustainable fabrics or at the very least, recyclable fabrics. In order to do this the right way, I’m reading this book to learn which fabrics, other than organic cotton etc, are recyclable. I’ll also be attending a conference next week to learn more about “green” design. I truly believe this is the way forward, and I hope to inspire others to consider cutting their waste. I’m certainly not saying that everyone should immediately stop buying all plastic or change every bad habit, but it would be amazing if everyone took a minute to consider what things in their lives are producing unnecessary waste, if maybe there are simple alternatives that produce less or no waste? I’ll be posting more about this as I embark on this (for me) exciting journey and explore possibilities. I’d love your input and love to know what you are doing for a greener planet! #plasticfree #reducingwaste #greendesigns #sustainablefashion #sustainableliving #thefutureisaccessible #thefutureisgreen . . . . . #dreameries #disabledfashion #adaptedclothing #aangepastekleding #wheelchairfashion #fashiondesign #bracesandsplints #silversplints #ringsplints #eds #ehlersdanlos #ehlersdanlossyndrome #zebrawarrior #zebrastrong #spoonie #spooniesunited #spooniewarrior #invisibleillness #butyoudontlooksick #chronicillness #vegan #disabledaccessories - 2 hours ago

11 Likes
0 Comments
0
I’m so excited to be joining @ehlers.danlos in Nashville this July for their Global Learning Conference. I will be speaking on the topic of movement and Pilates as a therapy to help the symptoms and management of EDS. And this year, I’m taking my very own junior zebra with me. Every year, The EDS Society run a Junior Zebra programme where children and teenagers can meet, learn and interact with other zebras. Watching him enter his teenage years is like watching history repeat itself - around the same age my headaches, migraines and pain started to emerge. We are working together on a movement therapy programme he can start right now to save him years of discomfort in the future. It’s such a valuable tool to feel the support and community these events can offer. We’re going to have a great trip! 😊. Have a lovely Sunday! .
.
.
.
.
.
.
.
.
.
.

#eds #ehlersdanlos #ehlersdanlossociety #chronicpain #migraine #zebra #raredisease #pain #movepainfree #movementtherapy #pilatesforhypermobility #pilates #zebrastrong #hypermobility #hypermobile #jointhypermobility #juniorzebra #edsconference #nashville2019

I’m so excited to be joining @ehlers.danlos in Nashville this July for their Global Learning Conference. I will be speaking on the topic of movement and Pilates as a therapy to help the symptoms and management of EDS. And this year, I’m taking my very own junior zebra with me. Every year, The EDS Society run a Junior Zebra programme where children and teenagers can meet, learn and interact with other zebras. Watching him enter his teenage years is like watching history repeat itself - around the same age my headaches, migraines and pain started to emerge. We are working together on a movement therapy programme he can start right now to save him years of discomfort in the future. It’s such a valuable tool to feel the support and community these events can offer. We’re going to have a great trip! . Have a lovely Sunday! . . . . . . . . . . . #eds #ehlersdanlos #ehlersdanlossociety #chronicpain #migraine #zebra #raredisease #pain #movepainfree #movementtherapy #pilatesforhypermobility #pilates #zebrastrong #hypermobility #hypermobile #jointhypermobility #juniorzebra #edsconference #nashville2019 - 2 hours ago

14 Likes
0 Comments
0
Goldener Kakao am Sonntag. Habe hier eine Biokakao-Mischung u.a. mit Maca und Ashwagandha gemischt mit Kurkuma und alles in warme Mandelmilch gegeben. Sehr lecker. 😊

Und die Farbe ist doch wohl toll, oder? 😍

Nur das Gerstengras kriege ich kaum runter. Wie macht ihr das??? Als Shot? Suche noch nach dem ultimativen Tipp 
Nun geht es gleich noch in der Sonne spazieren und dann ist der Sonntag schon fast rum.

Genießt das Wetter 😊

#goldenemilch #goldenerkakao #kurkumamitmyra #kurkumamitmandelmilch #lipödemkämpferin #lipoedema #healthyfood #sonntag #sundaymood #calmdown #hashimoto #eds #entzündungshemmend

Goldener Kakao am Sonntag. Habe hier eine Biokakao-Mischung u.a. mit Maca und Ashwagandha gemischt mit Kurkuma und alles in warme Mandelmilch gegeben. Sehr lecker. Und die Farbe ist doch wohl toll, oder? Nur das Gerstengras kriege ich kaum runter. Wie macht ihr das??? Als Shot? Suche noch nach dem ultimativen Tipp Nun geht es gleich noch in der Sonne spazieren und dann ist der Sonntag schon fast rum. Genießt das Wetter #goldenemilch #goldenerkakao #kurkumamitmyra #kurkumamitmandelmilch #lipödemkämpferin #lipoedema #healthyfood #sonntag #sundaymood #calmdown #hashimoto #eds #entzündungshemmend - 2 hours ago

5 Likes
1 Comments
0
Everyone check out our newest video! Start your day with jasmine and I ☺️ link in our bio☝🏻 .
.
.
.
.
.
.
#dissociativeidentity #dissociativeidentitydisorder #dissociation #dissociative #dissociativeidentitymovement #dissociativeidentitydisorderawareness #ptsd #cptsd #trauama #eds #ehlersdanlossyndrome

Everyone check out our newest video! Start your day with jasmine and I ️ link in our bio🏻 . . . . . . . #dissociativeidentity #dissociativeidentitydisorder #dissociation #dissociative #dissociativeidentitymovement #dissociativeidentitydisorderawareness #ptsd #cptsd #trauama #eds #ehlersdanlossyndrome - 2 hours ago

17 Likes
0 Comments
0
Auch wir Nordlichter haben aktuell etwas Sonne! So so schoen! Zwar vertrage ich sie nicht so gut - aber so kann ich es gut aushalten. Herrlich. Heute morgen war ich schon mit dem Tochterkind im Kino. #mamatochterzeit das machen wir viel zu selten. Tyson chillt im Garten, Wilson ist mit Nachbarn spazieren. Glueck pur #chronischeschmerzen #ehlersdanlossyndrometype3 #australianshepherd #eds #ehlersdanlos #chronischkrank #momlife #schmerzen #glück

Auch wir Nordlichter haben aktuell etwas Sonne! So so schoen! Zwar vertrage ich sie nicht so gut - aber so kann ich es gut aushalten. Herrlich. Heute morgen war ich schon mit dem Tochterkind im Kino. #mamatochterzeit das machen wir viel zu selten. Tyson chillt im Garten, Wilson ist mit Nachbarn spazieren. Glueck pur #chronischeschmerzen #ehlersdanlossyndrometype3 #australianshepherd #eds #ehlersdanlos #chronischkrank #momlife #schmerzen #glück - 2 hours ago

5 Likes
1 Comments
0
My daughter and I found a great #wheelchair #accessible trail yesterday. The trail had observation benches along the .65 mile trail so I was actually able to finish something I started. This was the longest walk I have taken since the #dysautonomia symptoms started! Yay! #walkinginnature

My daughter and I found a great #wheelchair #accessible trail yesterday. The trail had observation benches along the .65 mile trail so I was actually able to finish something I started. This was the longest walk I have taken since the #dysautonomia symptoms started! Yay! #walkinginnature - 2 hours ago

10 Likes
3 Comments
0
Yes, My tights is TOTALLY not squatproof.

Im so goddamn sore in my body after todays workout #intensestrength workout at @fitness24seven 
We really had an AMAZING coach! 
Tomorrow is a big day. Im heading at the #thorax to get some more information about my #asymmetrical issues and #fibromyalgia and probably #eds 
Wish me luck and wish me well and pray for me that i am #cancer free 🧘

#fitness  #inspiration #yoga #fitinspo #hypermobility #protein #amino #adhd #bpd #fitness24seven #workout #exercises #instadaily #bodybuilding #bodytransformation #beforeandafter #weightloss #hiit #squat #deadlift #feminism

Yes, My tights is TOTALLY not squatproof. Im so goddamn sore in my body after todays workout #intensestrength workout at @fitness24seven We really had an AMAZING coach! Tomorrow is a big day. Im heading at the #thorax to get some more information about my #asymmetrical issues and #fibromyalgia and probably #eds Wish me luck and wish me well and pray for me that i am #cancer free 🧘 #fitness #inspiration #yoga #fitinspo #hypermobility #protein #amino #adhd #bpd #fitness24seven #workout #exercises #instadaily #bodybuilding #bodytransformation #beforeandafter #weightloss #hiit #squat #deadlift #feminism - 2 hours ago

23 Likes
0 Comments
0
on friday night, my sister surprised us by coming to visit from Hickory, NC (3 hours away) and so yesterday we all got to be together! 
family time makes my heart very happy...they’re just the best😉💚 fun fact: all of us in this picture have celiac except the cute little one on the right!

on friday night, my sister surprised us by coming to visit from Hickory, NC (3 hours away) and so yesterday we all got to be together! family time makes my heart very happy...they’re just the best fun fact: all of us in this picture have celiac except the cute little one on the right! - 2 hours ago

51 Likes
6 Comments
0
The only way to truly believe in yourself is to stop comparing yourself to others. Allow yourself to enjoy every moment of the journey.#makeupmom #mompreneur #momlife #changeyourmindsetchangeyourlife #workfromanywhere #livewithpassionandpurpose #beautiful #beyourownboss #beautyrevolution #getoutofyourownway #grow #fitmom #momboss #beyourownbossbabe #momboss #survivor #chronicillness #eds #butyoudontlooksick #nomoreexcuses

The only way to truly believe in yourself is to stop comparing yourself to others. Allow yourself to enjoy every moment of the journey.#makeupmom #mompreneur #momlife #changeyourmindsetchangeyourlife #workfromanywhere #livewithpassionandpurpose #beautiful #beyourownboss #beautyrevolution #getoutofyourownway #grow #fitmom #momboss #beyourownbossbabe #momboss #survivor #chronicillness #eds #butyoudontlooksick #nomoreexcuses - 2 hours ago

11 Likes
0 Comments
0
I found an interesting article on #EDS the other day that said compression leggings (yoga pants) can be helpful for hip subluxations so I thought I’d give it a try and ordered myself some. Anyone else already tried this and felt any benefits? #chronicillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #cfs #cfsme #myalgicencephalomyelitis #ehlersdanlossyndrome #hEDS #hypermobility #hipsubluxation #potssyndrome #spoonie #spoonielife #spoonieawareness

I found an interesting article on #EDS the other day that said compression leggings (yoga pants) can be helpful for hip subluxations so I thought I’d give it a try and ordered myself some. Anyone else already tried this and felt any benefits? #chronicillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #cfs #cfsme #myalgicencephalomyelitis #ehlersdanlossyndrome #hEDS #hypermobility #hipsubluxation #potssyndrome #spoonie #spoonielife #spoonieawareness - 2 hours ago

10 Likes
3 Comments
0
Lubimy aktywnie spędzać czas w niedzielne popołudnie!!🏋🏋🏋 Jeśli Wy również, dołączcie do naszej tanecznej rodziny...🔔🔔🔔 Każdy znajdzie coś dla siebie! Gwarantujemy profesjonalną naukę tańca oraz świetną zabawę w doborowym towarzystwie❤❤❤
______________________________
#sunday #egurroladancestudiokatowice #training #course#dancelesson #silesiacitycenter #eds#katowice#aktywneniedziele

Lubimy aktywnie spędzać czas w niedzielne popołudnie!!🏋🏋🏋 Jeśli Wy również, dołączcie do naszej tanecznej rodziny... Każdy znajdzie coś dla siebie! Gwarantujemy profesjonalną naukę tańca oraz świetną zabawę w doborowym towarzystwie ______________________________ #sunday #egurroladancestudiokatowice #training #course #dancelesson #silesiacitycenter #eds #katowice #aktywneniedziele - 2 hours ago

43 Likes
0 Comments
0
stashbust #2: complete. already dreading sewing ends in but that's my future self's problem 😶 i've enjoyed this little granny square interlude whilst smashing through some Line of Duty but still an awful lot of stash remains...
.
back to crocheting keyrings now in support of @ehlersdanlosuk 🦓 thank you so much to those of you who've already donated 🙏 still time to get some orders in before I inevitably have to start doing some work for uni again...🤓📚

stashbust #2 : complete. already dreading sewing ends in but that's my future self's problem 😶 i've enjoyed this little granny square interlude whilst smashing through some Line of Duty but still an awful lot of stash remains... . back to crocheting keyrings now in support of @ehlersdanlosuk 🦓 thank you so much to those of you who've already donated still time to get some orders in before I inevitably have to start doing some work for uni again...🤓 - 2 hours ago

11 Likes
2 Comments
0
Here’s another tiny victory. ⁣⁣⁣
⁣⁣⁣
Yesterday I prepped and cooked our supper on my own. I don’t do that very often anymore. But I tried to be way more strategic about it this time. I gathered everything I needed together on one counter and then sat in my chair and didn’t get up once throughout the process. ⁣⁣
⁣⁣
I prepped at my accessible counter and scooted around the kitchen to do what needed to be done. I had energy and wasn’t falling over. It took a little longer but it was a far more enjoyable experience and I got through it all on my own. Sitting down makes life a lot easier (when things are accessible of course). ⁣⁣⁣
⁣⁣⁣
⭐️ ⭐️ ⭐️ ⭐️ ⭐️ ⁣⁣⁣
⁣
Would cook without using my legs again.

Here’s another tiny victory. ⁣⁣⁣ ⁣⁣⁣ Yesterday I prepped and cooked our supper on my own. I don’t do that very often anymore. But I tried to be way more strategic about it this time. I gathered everything I needed together on one counter and then sat in my chair and didn’t get up once throughout the process. ⁣⁣ ⁣⁣ I prepped at my accessible counter and scooted around the kitchen to do what needed to be done. I had energy and wasn’t falling over. It took a little longer but it was a far more enjoyable experience and I got through it all on my own. Sitting down makes life a lot easier (when things are accessible of course). ⁣⁣⁣ ⁣⁣⁣ ️ ⁣⁣⁣ ⁣ Would cook without using my legs again. - 3 hours ago

144 Likes
10 Comments
0
It’s been a nice lil week of training 👌🏽 #he #him #ftm #femaletomale #trans #transgender #transmasc #transmale #transman #transmen #lgbT #t #testerone #hrt #spoons #spoonie #spoonielife #zebra #eds #ehlerdanlossyndrome #chronicillness #chronicallyill #tatts #tattoos #tattoo #fire #firefighter #volunteerfirefighter #training #ems

It’s been a nice lil week of training 🏽 #he #him #ftm #femaletomale #trans #transgender #transmasc #transmale #transman #transmen #lgbT #t #testerone #hrt #spoons #spoonie #spoonielife #zebra #eds #ehlerdanlossyndrome #chronicillness #chronicallyill #tatts #tattoos #tattoo #fire #firefighter #volunteerfirefighter #training #ems - 3 hours ago

13 Likes
0 Comments
0
Life of someone with EDS #EDS #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #POTS #posturalorthostatictachycardiasyndrome #cyclicvomitingsyndrome #CVS #delayedgastricemptying #gastroparesis #UTI’S #EUPD #ASPD

Life of someone with EDS #EDS #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #POTS #posturalorthostatictachycardiasyndrome #cyclicvomitingsyndrome #CVS #delayedgastricemptying #gastroparesis #UTI ’S #EUPD #ASPD - 3 hours ago

3 Likes
0 Comments
0
You’re awesome and ily
•
•
{Image description} two drawings by Emm Roy both on black backgrounds. The first is a drawing of a pink seahorse with darker pink heart markings. The light pink text above reads: “had to readjust my timeline because of my health, but still awesome”. The second drawing is of a blue seahorse with small dark and light blue dot patterning and a light blue blush mark on its cheek. The light blue text above it reads: “had to cancel plans because of my health, but still awesome”. •
•
•
•
•
~tags~
#chronicpain #pain #fibro #fms #fibromyalgia #eds #ehlersdanlos #chronicfatigue #cfs #pots #spoonie #spooniememe #cpunk #cripplepunk #arthritis #endometriosis #caneuser #cane #wheelchair #wheelchairuser #mobilityaid #imagedescription #id #disabledqueer #disabledgay #disabledtrans #disabledlesbian #disabledbisexual

You’re awesome and ily • • {Image description} two drawings by Emm Roy both on black backgrounds. The first is a drawing of a pink seahorse with darker pink heart markings. The light pink text above reads: “had to readjust my timeline because of my health, but still awesome”. The second drawing is of a blue seahorse with small dark and light blue dot patterning and a light blue blush mark on its cheek. The light blue text above it reads: “had to cancel plans because of my health, but still awesome”. • • • • • ~tags~ #chronicpain #pain #fibro #fms #fibromyalgia #eds #ehlersdanlos #chronicfatigue #cfs #pots #spoonie #spooniememe #cpunk #cripplepunk #arthritis #endometriosis #caneuser #cane #wheelchair #wheelchairuser #mobilityaid #imagedescription #id #disabledqueer #disabledgay #disabledtrans #disabledlesbian #disabledbisexual - 3 hours ago

10 Likes
0 Comments
0
🤰
Over the last month I was able to take @kathosbern.fitrd Pre & Postnatal Pregnancy Workshop @pilatesofkansascity!
💕💙💕
I am NOT pregnant but I am a #foreverstudent and I learned so much great information that I can offer future pregnant clients for a safe and effective workout pre & post baby!
👶🏻
This course also taught me some really great  modifications to incorporate into my workouts, because I have Hypermobility Disorder and Ehlers Danlos Syndrome. One of the many many reasons I started #Pilates was to learn to manage my conditions through movement. I’ve been cautioned that women with #HSD & #EDS (not to mention #Endometriosis and #Migraine) may experience particular difficulties when pregnant. Among other changes, during pregnancy the body releases certain hormones such as relaxin. #Relaxin alters ligament physiology, easing the stretching needed to accommodate fetal growth as well as the birthing process. I anticipate the struggles that may lie ahead and I continue to do what I can to stack the odds in my favor and gather information. I will say, I’ve had a lot of support because, SIX, yes SIX- ✋☝️ of our loved ones are expecting this summer! 😱😍🙏 As I talk with the mamas-to-be, I am relating to my friends entering motherhood on a whole new level. While I hate hearing that they are experiencing difficulties, I finally have friends who can relate to nausea, vomiting, fatigue, back pain, migraines, odor sensitivities, etc. and it’s just kinda nice not being the only “Sensitive Sally” in the room.
💕💙💕
Now, bring on all these babies & keep your eyes out for future Pre & Postnatal workshops lead by @kathosbern.fitrd at @pilatesofkansascity!!!
💕👶🏻🍼🤰💙
.
.
#movementismedicine #movementheals #ehlersdanlossyndrome #hypermobility #pilatesapprentice #bendsoyoudontbreak #fragilebutunbreakable #pilatesbody #alwayslearning #fitpregnancy #healthymom #healthybaby #prenatalfitness  #postnatalfitness #mamatobe #themoreyouknow #knowledgeispower #healingjourney #invisiblydisabledlookslike #kcblogger #livfully #invisiblyenhanced

🤰 Over the last month I was able to take @kathosbern.fitrd Pre & Postnatal Pregnancy Workshop @pilatesofkansascity ! I am NOT pregnant but I am a #foreverstudent and I learned so much great information that I can offer future pregnant clients for a safe and effective workout pre & post baby! 🏻 This course also taught me some really great modifications to incorporate into my workouts, because I have Hypermobility Disorder and Ehlers Danlos Syndrome. One of the many many reasons I started #Pilates was to learn to manage my conditions through movement. I’ve been cautioned that women with #HSD & #EDS (not to mention #Endometriosis and #Migraine ) may experience particular difficulties when pregnant. Among other changes, during pregnancy the body releases certain hormones such as relaxin. #Relaxin alters ligament physiology, easing the stretching needed to accommodate fetal growth as well as the birthing process. I anticipate the struggles that may lie ahead and I continue to do what I can to stack the odds in my favor and gather information. I will say, I’ve had a lot of support because, SIX, yes SIX- ️ of our loved ones are expecting this summer! As I talk with the mamas-to-be, I am relating to my friends entering motherhood on a whole new level. While I hate hearing that they are experiencing difficulties, I finally have friends who can relate to nausea, vomiting, fatigue, back pain, migraines, odor sensitivities, etc. and it’s just kinda nice not being the only “Sensitive Sally” in the room. Now, bring on all these babies & keep your eyes out for future Pre & Postnatal workshops lead by @kathosbern.fitrd at @pilatesofkansascity !!! 🏻🍼🤰 . . #movementismedicine #movementheals #ehlersdanlossyndrome #hypermobility #pilatesapprentice #bendsoyoudontbreak #fragilebutunbreakable #pilatesbody #alwayslearning #fitpregnancy #healthymom #healthybaby #prenatalfitness #postnatalfitness #mamatobe #themoreyouknow #knowledgeispower #healingjourney #invisiblydisabledlookslike #kcblogger #livfully #invisiblyenhanced - 3 hours ago

23 Likes
0 Comments
0
Thank you to @chronicnotes for this, go follow this page, such a lovely way to spread encouragement and support! .
. 
#Repost from @chronicnotes with @regram.app ... Request from @chronically_inspiring 🐢 she asked for something turtle related! Did I do it?💚
.
.
.
.
.
#chronicallycutecards #aesthetic #influencerswanted #chronicnotes #pots #eds #pcos #posturalorthostatictachycardiasyndrome #ehlersdanlossyndrome #polycysticovariansyndrome #chronicillness #chronicpain #invisibleillness #disabled #disability #support #makingpeoplesmile #quotes #inspirationalquotes #motivationalquotes #inspiration #motivation #turtles

Thank you to @chronicnotes for this, go follow this page, such a lovely way to spread encouragement and support! . . #Repost from @chronicnotes with @regram.app ... Request from @chronically_inspiring she asked for something turtle related! Did I do it? . . . . . #chronicallycutecards #aesthetic #influencerswanted #chronicnotes #pots #eds #pcos #posturalorthostatictachycardiasyndrome #ehlersdanlossyndrome #polycysticovariansyndrome #chronicillness #chronicpain #invisibleillness #disabled #disability #support #makingpeoplesmile #quotes #inspirationalquotes #motivationalquotes #inspiration #motivation #turtles - 3 hours ago

63 Likes
4 Comments
0
Nicholas Cage says it all. Happy Sunday!
.
.
.
#chronicpain #chronicpainwarrior #chronicillness #chronicillnesswarrior #autoimmunedisease #autoimmunewarrior #spoonie #arthritis #juvenilearthritis #rheumatoidarthritis #rawarrior #lupus #sjogrens #chrons #lymedisease #fibromyalgia #pots #pcos #eds #ibs #ulcerativecolitis #multiplesclerosis #invisibleillness #dysautonomia #endometriosis #endowarrior #dailymemes #motivation #weekendvibes

Nicholas Cage says it all. Happy Sunday! . . . #chronicpain #chronicpainwarrior #chronicillness #chronicillnesswarrior #autoimmunedisease #autoimmunewarrior #spoonie #arthritis #juvenilearthritis #rheumatoidarthritis #rawarrior #lupus #sjogrens #chrons #lymedisease #fibromyalgia #pots #pcos #eds #ibs #ulcerativecolitis #multiplesclerosis #invisibleillness #dysautonomia #endometriosis #endowarrior #dailymemes #motivation #weekendvibes - 3 hours ago

267 Likes
5 Comments
0
I never thought I'd reach the end of this terrible flare, but I'm finally beginning to see light at the end of the tunnel! Even with some activity, I'm feeling a little better every day. Some days it feels like the onslaught will never end, but somehow it always does. If you're going through a hard time, keep hanging in there and doing what you need to recover. I know the bad days can feel soul crushing, but if you have patience, the sun will shine again. 
#spoonies #chargie #chronicillness #ehlersdanlossyndrome #EDS #MCAS #POTS #fibromyalgia #mecfs #interstitialcystitis #dysautonomia #IBS #Gastroparesis #degenerativediscdisease #complexPTSD #spoonielife #zebrastrong #inspiration

I never thought I'd reach the end of this terrible flare, but I'm finally beginning to see light at the end of the tunnel! Even with some activity, I'm feeling a little better every day. Some days it feels like the onslaught will never end, but somehow it always does. If you're going through a hard time, keep hanging in there and doing what you need to recover. I know the bad days can feel soul crushing, but if you have patience, the sun will shine again. #spoonies #chargie #chronicillness #ehlersdanlossyndrome #EDS #MCAS #POTS #fibromyalgia #mecfs #interstitialcystitis #dysautonomia #IBS #Gastroparesis #degenerativediscdisease #complexPTSD #spoonielife #zebrastrong #inspiration - 3 hours ago

8 Likes
1 Comments
0
#TB to Saturday 16th March  as I had the absolute pleasure to meet these young people. We all felt normal, as every single one of us had something in common = EDS. My words cannot express how impactful this day and their future will now be. Somethings such as all of them had NEVER meet anyone outside of their family with EDS before!!! We had the pleasure of teaching them “confidence building, when you have EDS”...in that room we all felt NORMAL!
.
.
#EDS #ElherDanlosSyndrome .
.
@cassandra_a_campbell, @ehlersdanlosuk @eds_unplugged

#TB to Saturday 16th March as I had the absolute pleasure to meet these young people. We all felt normal, as every single one of us had something in common = EDS. My words cannot express how impactful this day and their future will now be. Somethings such as all of them had NEVER meet anyone outside of their family with EDS before!!! We had the pleasure of teaching them “confidence building, when you have EDS”...in that room we all felt NORMAL! . . #EDS #ElherDanlosSyndrome . . @cassandra_a_campbell , @ehlersdanlosuk @eds_unplugged - 3 hours ago

5 Likes
1 Comments
0
MYSTERY SOLVED!

After a couple of exhausting days trying to solve this mystery we finally solved it this morning. This is Sobo. Sobo is a troll girl from The Hidden World of Iceland. The second picture is of Sobo on the airplane coming back from Iceland where Mommie adopted her.

Sobo, was born deep inside the mountains and glaciers of Iceland. Sobo is the only daughter of Gryla, Iceland's most famous troll. She and her friends in the Hidden World do their best to keep the earth healthy and clean. So they pick up all that they can of what humans leave behind and reuse everything possible. Sobo and her friends make all their clothes with bits of rags. The rest of the stuff they pick up is made into ornaments,jewelry and musical instruments.

Mommie is going on a plushie adventure today with Sobo and dogs of course! She says she needs to take Sobo, because of Sobo's big feet. Mommie has a lot of problems walking and she wants to follow in Sobo's big foot prints. Also since Sobo is from the Hidden World, Mommie is taking her because we are going to a little unknown place in the city. It's Mommie's own little Hidden World!

Mommie made Sobo a new sweater for spring from one of her old sweaters.

MYSTERY SOLVED! After a couple of exhausting days trying to solve this mystery we finally solved it this morning. This is Sobo. Sobo is a troll girl from The Hidden World of Iceland. The second picture is of Sobo on the airplane coming back from Iceland where Mommie adopted her. Sobo, was born deep inside the mountains and glaciers of Iceland. Sobo is the only daughter of Gryla, Iceland's most famous troll. She and her friends in the Hidden World do their best to keep the earth healthy and clean. So they pick up all that they can of what humans leave behind and reuse everything possible. Sobo and her friends make all their clothes with bits of rags. The rest of the stuff they pick up is made into ornaments,jewelry and musical instruments. Mommie is going on a plushie adventure today with Sobo and dogs of course! She says she needs to take Sobo, because of Sobo's big feet. Mommie has a lot of problems walking and she wants to follow in Sobo's big foot prints. Also since Sobo is from the Hidden World, Mommie is taking her because we are going to a little unknown place in the city. It's Mommie's own little Hidden World! Mommie made Sobo a new sweater for spring from one of her old sweaters. - 3 hours ago

12 Likes
3 Comments
0
Happy Sunday! The sun's shining & I am feeling good (still a 7 out of 10 on the pain scale, but it could be worse) #sunnysunday #sundaysareforchilling #edsisforlife #neverpainfree #couldbeworse #eds #subluxation #shoulderoutAGAIN #cantusemyrighthandproperly #righthanded #sunshinemakesmehappy #needanewholeonmybelt #weightlossjourney

Happy Sunday! The sun's shining & I am feeling good (still a 7 out of 10 on the pain scale, but it could be worse) #sunnysunday #sundaysareforchilling #edsisforlife #neverpainfree #couldbeworse #eds #subluxation #shoulderoutAGAIN #cantusemyrighthandproperly #righthanded #sunshinemakesmehappy #needanewholeonmybelt #weightlossjourney - 3 hours ago

3 Likes
1 Comments
0
OVERCORRECTING? I’ve taken on a LOT lately. As I type this I can hear past-me laughing down the time/space continuum, who more often than not worked 12hr+ days & most weekends during my career in advertising agencies.
.
But past-me isn’t present-me, not by a long shot. My mind is still ravaged by the detrimental neurological & cognitive effects of 5+ years of heavy medications. My body is still relatively deconditioned from 4+ years of being confined mostly to bed. .
The end of this week rounded out my first month of not only working in my new part-time job, but also teaching 2nd & 3rd year classes part-time at university AND studying x3 units myself.
.
Last week alone I worked 25hrs, attended all of my classes, completed all of my homework & smashed out 1,200 word essays x2. This time last year it was a struggle to leave the house for more than 1hr at a time.
.
People seem to think now that I have legal access to medical cannabis, my pain is gone.
.
It’s not.
.
I have a very painful connective tissue disorder that hurts like a mofo daily. The major difference is that now the pain is bearable. I can push through.
.
But not without a major effort & a very strict routine that includes: physical therapy; personal training; carefully executed rehabilitation; a strict nutrition regime; lots of sleep; and a shitload of grit & determination to make up for a fucktonne of time that was lost to this “ball ache” of a chronic illness (to quote my fellow EDS Queen @jameelajamilofficial).
.
The trick is to know when to push myself & extend my capabilities, & when to pull back. It’s a delicate dance that unfortunately all of those with a chronic illness have no choice but to partake in.
.
Have I overcorrected? Maybe. I remain ever vigilant for signs & signals of a flare.
.
But for now I am enjoying this exhaustion, because for the first time in years I feel like I’ve accomplished something, other than just surviving the day, to arrive at this feeling.
.
It’s hard, but it’s worth it & I’m living proof that you can reclaim your life, you just have to be prepared for the reality that it will look very different to how you might have imagined it. And that’s ok too.

OVERCORRECTING? I’ve taken on a LOT lately. As I type this I can hear past-me laughing down the time/space continuum, who more often than not worked 12hr+ days & most weekends during my career in advertising agencies. . But past-me isn’t present-me, not by a long shot. My mind is still ravaged by the detrimental neurological & cognitive effects of 5+ years of heavy medications. My body is still relatively deconditioned from 4+ years of being confined mostly to bed. . The end of this week rounded out my first month of not only working in my new part-time job, but also teaching 2nd & 3rd year classes part-time at university AND studying x3 units myself. . Last week alone I worked 25hrs, attended all of my classes, completed all of my homework & smashed out 1,200 word essays x2. This time last year it was a struggle to leave the house for more than 1hr at a time. . People seem to think now that I have legal access to medical cannabis, my pain is gone. . It’s not. . I have a very painful connective tissue disorder that hurts like a mofo daily. The major difference is that now the pain is bearable. I can push through. . But not without a major effort & a very strict routine that includes: physical therapy; personal training; carefully executed rehabilitation; a strict nutrition regime; lots of sleep; and a shitload of grit & determination to make up for a fucktonne of time that was lost to this “ball ache” of a chronic illness (to quote my fellow EDS Queen @jameelajamilofficial ). . The trick is to know when to push myself & extend my capabilities, & when to pull back. It’s a delicate dance that unfortunately all of those with a chronic illness have no choice but to partake in. . Have I overcorrected? Maybe. I remain ever vigilant for signs & signals of a flare. . But for now I am enjoying this exhaustion, because for the first time in years I feel like I’ve accomplished something, other than just surviving the day, to arrive at this feeling. . It’s hard, but it’s worth it & I’m living proof that you can reclaim your life, you just have to be prepared for the reality that it will look very different to how you might have imagined it. And that’s ok too. - 3 hours ago

261 Likes
35 Comments
0
In south Florida, air conditioners aren’t just a luxury, but a necessity! When you walk through that door after a long day at work you deserve some time to cool down and relax a little. To make sure your unit keeps you cool all summer click the link in our bio. // #EDS #Plumbing #AirConditioning #HVAC #Tips

In south Florida, air conditioners aren’t just a luxury, but a necessity! When you walk through that door after a long day at work you deserve some time to cool down and relax a little. To make sure your unit keeps you cool all summer click the link in our bio. // #EDS #Plumbing #AirConditioning #HVAC #Tips - 3 hours ago

86 Likes
0 Comments
0
No nezlepšuje se to.😣😢
#heds #chronicpainlife #eds

No nezlepšuje se to. #heds #chronicpainlife #eds - 4 hours ago

5 Likes
0 Comments
0
Buy any of our Social & Digital Marketing Services to promote your brand or business & get Free IMG World Ticket.

Limited Time Offer!

Contact us: 97145193444 / info@edsfze.com / www.edsfze.com 
#EDS #imgworlddubai #imgworld #themepark  #instafun #socialmedia #socialmediamarketing #instagram #marketing  #dubai #digitalmarketing #digitalmarketer #socialmediamarketing #seo #adwords #smsmarketing #emailmarketing #pushnotification

Buy any of our Social & Digital Marketing Services to promote your brand or business & get Free IMG World Ticket. Limited Time Offer! Contact us: 97145193444 / info@edsfze.com / www.edsfze.com #EDS #imgworlddubai #imgworld #themepark #instafun #socialmedia #socialmediamarketing #instagram #marketing #dubai #digitalmarketing #digitalmarketer #socialmediamarketing #seo #adwords #smsmarketing #emailmarketing #pushnotification - 4 hours ago

21 Likes
0 Comments
0
❤️Свободные окошки на следующую неделю❤️
✅25.03 в 10:00 и 12:30 к Юле
✅26.03 в 10:00, 12:30, 16:00 и 18:30 к Тане и Юле
✅27.03 в 10:00, 12:30, 16:00 к Тане
✅28.03 в 10:00, 12:30, 16:00 и 18:30 к Тане
✅29.03 в 11:30, 15:00 к Кате и в 10:00, 12:30, 16;00 и 18:30 к Тане и Юле
✅30.03 в 10:00, 12:30 к Кате и в 10:00, 16:00 и 18:30 к Юле и в 18:30 к Тане
✅31.03 в 10:00 и 16:00 к Кате
Скорее выбирайте время и день, и звоните нашему администратору Анастасии❤️😍😍
⛳Москва, Верхняя Радищевская 6стр3 (7 минут от метро)
📲 What's app/SMS/Direct 8(999)839-01-77
🗓Запись новых клиентов осуществляется по предоплате 500р на карту Сбербанка или наличными в студии
⏱Работаем каждый день с 10:00 до 21:00

️Свободные окошки на следующую неделю25.03 в 10:00 и 12:30 к Юле 26.03 в 10:00, 12:30, 16:00 и 18:30 к Тане и Юле 27.03 в 10:00, 12:30, 16:00 к Тане 28.03 в 10:00, 12:30, 16:00 и 18:30 к Тане 29.03 в 11:30, 15:00 к Кате и в 10:00, 12:30, 16;00 и 18:30 к Тане и Юле 30.03 в 10:00, 12:30 к Кате и в 10:00, 16:00 и 18:30 к Юле и в 18:30 к Тане 31.03 в 10:00 и 16:00 к Кате Скорее выбирайте время и день, и звоните нашему администратору Анастасии Москва, Верхняя Радищевская 6стр3 (7 минут от метро) What's app/SMS/Direct 8(999)839-01-77 🗓Запись новых клиентов осуществляется по предоплате 500р на карту Сбербанка или наличными в студии ⏱Работаем каждый день с 10:00 до 21:00 - 4 hours ago

171 Likes
2 Comments
0
Warsztaty Hip Hop z @klaudiakoruba!🔥Przyszedł czas na nasze Kidsy!❤️ Jest konkretne choreo i moc pozytywnej energii!💥
#egurroladancestudio #egurrola #eds #hiphopdance #kids #egurroladancekids #taniec #workshops #wroclaw #wroclove

Warsztaty Hip Hop z @klaudiakoruba !Przyszedł czas na nasze Kidsy!️ Jest konkretne choreo i moc pozytywnej energii! #egurroladancestudio #egurrola #eds #hiphopdance #kids #egurroladancekids #taniec #workshops #wroclaw #wroclove - 4 hours ago

34 Likes
0 Comments
0
Hip hop style 😀
#hiphopdancer #egurroladancestudio #hiphopdance #eds #hiphopstyle #dance

Hip hop style 😀 #hiphopdancer #egurroladancestudio #hiphopdance #eds #hiphopstyle #dance - 4 hours ago

14 Likes
2 Comments
0
Next up we have the lovely @kianarandrews 💙💙

Next up we have the lovely @kianarandrews - 4 hours ago

22 Likes
5 Comments
0
Beautiful places. Beautiful memories.
Paris is beautiful everywhere but Notre Dame is very special to me.
I could visit it every day, and I always get emotional when I go inside.

However, the world is going crazy and last time we were there, there was security everywhere. It is fine by me but very sad at the same time.

The world has gone insane, you don't feel safe anywhere now.

We need more kindness and less guns. We are all equals.
Why do some people feel they are superior and can take whatever they want from other people, other countries... Why are people fighting because of religious beliefs?
Is it so difficult to be kind to one another and help each other?

Anyways, it is what it is 🤷🏻‍♀️ Enjoy your Sunday

#mindfulness#mentalhealth #ptsd#hypervigilance #anxiety #pic #bestoftheday #picoftheday #invisibleillness #beautiful #paris #photography #nofilter #notredame #strong #fibrowarrior #fibromyalgia #follow #fibromyalgiaawareness #hypermobility #butyoudontlooksick #eds#ehlerddanlos #love #kindness #religion #loveyourself

Beautiful places. Beautiful memories. Paris is beautiful everywhere but Notre Dame is very special to me. I could visit it every day, and I always get emotional when I go inside. However, the world is going crazy and last time we were there, there was security everywhere. It is fine by me but very sad at the same time. The world has gone insane, you don't feel safe anywhere now. We need more kindness and less guns. We are all equals. Why do some people feel they are superior and can take whatever they want from other people, other countries... Why are people fighting because of religious beliefs? Is it so difficult to be kind to one another and help each other? Anyways, it is what it is 🤷🏻‍♀️ Enjoy your Sunday #mindfulness #mentalhealth #ptsd #hypervigilance #anxiety #pic #bestoftheday #picoftheday #invisibleillness #beautiful #paris #photography #nofilter #notredame #strong #fibrowarrior #fibromyalgia #follow #fibromyalgiaawareness #hypermobility #butyoudontlooksick #eds #ehlerddanlos #love #kindness #religion #loveyourself - 4 hours ago

16 Likes
1 Comments
0
Hello!
So I haven't posted in a few days, I have been sleeping CONSTANTLY and am still tired so probably going to sleep for The whole Day today but as I have to be awake to eat I thought I'd come on and ask how you are?
-
I don't have any pictures to post, so I thought I'd post a picture that was taken during my first aboard holiday in Portugal because why not? -
#portugal #aboardholiday
#LowICP #Tired #VP shunt problem

Hello! So I haven't posted in a few days, I have been sleeping CONSTANTLY and am still tired so probably going to sleep for The whole Day today but as I have to be awake to eat I thought I'd come on and ask how you are? - I don't have any pictures to post, so I thought I'd post a picture that was taken during my first aboard holiday in Portugal because why not? - #portugal #aboardholiday #LowICP #Tired #VP shunt problem - 4 hours ago

16 Likes
1 Comments
0
Nice aerial of our Silly Creek project, Oceanside Tower
.
.
.
📷 @provopictures
#projectmanagement #remoteconstruction #luxuryrenovation #luxuryhomes #ICC #islandconsultingco #BSD #EDS #coastarchitects #BCQS #islandconsultingcompany #caribbeanconstruction #sillycreek #oceansidetower #turksandcaicosislands🌴

Nice aerial of our Silly Creek project, Oceanside Tower . . . @provopictures #projectmanagement #remoteconstruction #luxuryrenovation #luxuryhomes #ICC #islandconsultingco #BSD #EDS #coastarchitects #BCQS #islandconsultingcompany #caribbeanconstruction #sillycreek #oceansidetower #turksandcaicosislands - 4 hours ago

14 Likes
1 Comments
0
Sunday, Lazy Sunday
Resting
🤯💚🦋💜🦓💜😉
#mindfulness#mentalhealth #chronicpain#fibrowarrior #follow #instagood #beautiful#instagram#followme #fibromyalgia #fibromyalgiaawareness #fibrowarrior #pic #picoftheday #bestoftheday #selfie #loveyourself #eds#ehlerddanlos #hypermobile #hope #love #home

Sunday, Lazy Sunday Resting 🤯🦋🦓 #mindfulness #mentalhealth #chronicpain #fibrowarrior #follow #instagood #beautiful #instagram #followme #fibromyalgia #fibromyalgiaawareness #fibrowarrior #pic #picoftheday #bestoftheday #selfie #loveyourself #eds #ehlerddanlos #hypermobile #hope #love #home - 4 hours ago

12 Likes
0 Comments
0
i know i need to do college work but i'm too exhausted to think straight 🥺
-
what's everyone's sunday plans? 🌻
-
#spoonie#chronicillness#chronicfatigue#posturalorthostatictachycardiasyndrome#undiagnosed#chronicpain#eds#ehlersdanlossyndrome#pots#sundayfunday

i know i need to do college work but i'm too exhausted to think straight 🥺 - what's everyone's sunday plans? - #spoonie #chronicillness #chronicfatigue #posturalorthostatictachycardiasyndrome #undiagnosed #chronicpain #eds #ehlersdanlossyndrome #pots #sundayfunday - 5 hours ago

10 Likes
2 Comments
0
Missed my aerials this week as body said oh hell no! Loved this pose from the other week though, strop hug hang or whatever the technical name is 🤣🤣
#lyra #aerialist #spoonlessspoonie #throwback #progressnotperfection #circuseverydamnday #aerialistsofig #autoimmuneaerials #autoimmunecircus #eds #stubbornzebra #stropwork #juststrong #itsokaynottobeokay #circusgirlshavemorefun #juststrongwomen #juststrongambassador

Missed my aerials this week as body said oh hell no! Loved this pose from the other week though, strop hug hang or whatever the technical name is 🤣🤣 #lyra #aerialist #spoonlessspoonie #throwback #progressnotperfection #circuseverydamnday #aerialistsofig #autoimmuneaerials #autoimmunecircus #eds #stubbornzebra #stropwork #juststrong #itsokaynottobeokay #circusgirlshavemorefun #juststrongwomen #juststrongambassador - 5 hours ago

16 Likes
0 Comments
0
A4 print of my #invisibleillness artwork. I am so chuffed with how this turned out. 
#awareness #migraine #chronicmigraine #depression #anxiety #Fibromyalgia #cfs #pots #eds #chronicillness #chronicpain #print #a4print #myart #art #originalart #lilhcrafts

A4 print of my #invisibleillness artwork. I am so chuffed with how this turned out. #awareness #migraine #chronicmigraine #depression #anxiety #Fibromyalgia #cfs #pots #eds #chronicillness #chronicpain #print #a4print #myart #art #originalart #lilhcrafts - 5 hours ago

14 Likes
0 Comments
0
#polishgirls#eds#besttime @aradwanska @tanieczgwiazdami ❤️

#polishgirls #eds #besttime @aradwanska @tanieczgwiazdami ️ - 5 hours ago

25 Likes
0 Comments
0
Tattoo #6

Pretty little butterfly Xoxoxoxo 
#pots #potsie #posturalorthostatictachycardiasyndrome #ehlersdanlossyndrome #eds #chronicillness #fighter #reflexsyncope #aquagenicurticaria #waterallergy #gastroparesis #lowbloodsugar #tachycardia #potsiestrong #keepfighting #hypoglycemia #hypos #diabetes #mcas #mastcellactivationsyndrome #neuropathy #chronicpain #nhs #health

Tattoo #6 Pretty little butterfly Xoxoxoxo #pots #potsie #posturalorthostatictachycardiasyndrome #ehlersdanlossyndrome #eds #chronicillness #fighter #reflexsyncope #aquagenicurticaria #waterallergy #gastroparesis #lowbloodsugar #tachycardia #potsiestrong #keepfighting #hypoglycemia #hypos #diabetes #mcas #mastcellactivationsyndrome #neuropathy #chronicpain #nhs #health - 5 hours ago

34 Likes
3 Comments
0
Relatable. Follow @meme_the_sick_away for more posts like this #💗🦄
.
.
.
#chronicpain #anxiety #fibromyalgia #narcolepsy #spoonie  #chronicillness #chronicfatigue #EDS #lymedisease #mcas #lupus #pots #celiac #multiplesclerosis #endometriosis #mentalhealthawareness #migraine

Relatable. Follow @meme_the_sick_away for more posts like this #🦄 . . . #chronicpain #anxiety #fibromyalgia #narcolepsy #spoonie   #chronicillness #chronicfatigue #EDS #lymedisease #mcas #lupus #pots #celiac #multiplesclerosis #endometriosis #mentalhealthawareness #migraine - 5 hours ago

228 Likes
8 Comments
0
It’s a CBD filled Sunday here @dorsethempco get yours to www.dorsethempco.com
.
.
.
Use discount code INTRO10 for 10% off all orders
.
.
.
See how CBD could help you today.
✅Chronic Pain
✅Depression and Anxiety ⠀
✅Arthritis⠀
✅Insomnia⠀
✅Diabetes⠀
✅PTSD⠀
✅Alcoholism and addiction⠀
✅Epilepsy and other neurological disorders ⠀
✅MS ⠀
✅Schizophrenia⠀
✅Antibiotic-resistant infections
.
.
.
#dorsethempco #hemp #anxiety #depression #fibromyalgia #EDS #hypermobility #MS #ME #parkinsons #epilepsy #cancer #backpain #degenerativediskdisease #arthritis #osteoarthritus #raynauds #chronicpain #dorsetcbd #cbddorset #cannabisoil #cannabiscommunity #cannabisculture #cbd #cbdbenefits #cbdcommunity #cbdheals #cbdhealth #vegan #glutenfree

It’s a CBD filled Sunday here @dorsethempco get yours to www.dorsethempco.com . . . Use discount code INTRO10 for 10% off all orders . . . See how CBD could help you today. Chronic Pain Depression and Anxiety ⠀ Arthritis⠀ Insomnia⠀ Diabetes⠀ PTSD⠀ Alcoholism and addiction⠀ Epilepsy and other neurological disorders ⠀ MS ⠀ Schizophrenia⠀ Antibiotic-resistant infections . . . #dorsethempco #hemp #anxiety #depression #fibromyalgia #EDS #hypermobility #MS #ME #parkinsons #epilepsy #cancer #backpain #degenerativediskdisease #arthritis #osteoarthritus #raynauds #chronicpain #dorsetcbd #cbddorset #cannabisoil #cannabiscommunity #cannabisculture #cbd #cbdbenefits #cbdcommunity #cbdheals #cbdhealth #vegan #glutenfree - 5 hours ago

46 Likes
7 Comments
0
Making soup with alllllllllllll the carrots from @trjfproject in my Freegan box 🥰

#eds #fibromyalgia #pots #pcos #migraine #gastroparesis #chronicpain #spoonielife #spooniewarrior #spooniestrong #trjfp #therealjunkfoodproject #whatveganseat #healthy #batchcook #veganfood #veganeats #zerowaste #carrot #sweetpotato #pepper #swede #lentils #soup #invisibledisability #vegansofig

Making soup with alllllllllllll the carrots from @trjfproject in my Freegan box 🥰 #eds #fibromyalgia #pots #pcos #migraine #gastroparesis #chronicpain #spoonielife #spooniewarrior #spooniestrong #trjfp #therealjunkfoodproject #whatveganseat #healthy #batchcook #veganfood #veganeats #zerowaste #carrot #sweetpotato #pepper #swede #lentils #soup #invisibledisability #vegansofig - 5 hours ago

39 Likes
1 Comments
0
Happy national puppy day! #nationalpuppyday 🐶🐾🦴 #EDS #ehlersdanlos #ehlersdanlossyndrome #hypermobility #hypermobilitysyndrome #hms #pots #posturalorthostatictachycardiasyndrome #scoliosis #spinalfusion #spinalsurgery #spinalrejection #kyphosis #arthritis #sacroiliacjoint #sjögrens #sjögrenssyndrome #raynauds #autoimmunedisease #neuropathy #chronicpain #chronicfatigue #chronicillness #chronicallyill #spoonie #zebra

Happy national puppy day! #nationalpuppyday 🦴 #EDS #ehlersdanlos #ehlersdanlossyndrome #hypermobility #hypermobilitysyndrome #hms #pots #posturalorthostatictachycardiasyndrome #scoliosis #spinalfusion #spinalsurgery #spinalrejection #kyphosis #arthritis #sacroiliacjoint #sjögrens #sjögrenssyndrome #raynauds #autoimmunedisease #neuropathy #chronicpain #chronicfatigue #chronicillness #chronicallyill #spoonie #zebra - 5 hours ago

19 Likes
1 Comments
0
Happy Sunday!💛happy hangover to some of you and happy end if the week for others! I am so happy with how productive this week has been thanks to the help of my best friend @kate_701 👑 we have been cheer buddies for a year now and I am so excited with this fitness project that she can be involved as well! One step closer to an amazing end result and helping fight mental health! 💪🏼 #mentalhealth #mentalhealthawareness #mentalhealthrecovery #eds #selfcare #selflove #loveyou #loveyourself #newday #newweek #newweeknewgoals #freshstart #girls #girlboss #girlpower #ukgalaxypageants #galaxypageants #galaxygirl #missgalaxy #selfie #hardwork #dedication #changinglives #makeadifference #mentalbeauty  #slay #slayqueen #queen #ownit

Happy Sunday!happy hangover to some of you and happy end if the week for others! I am so happy with how productive this week has been thanks to the help of my best friend @kate_701 we have been cheer buddies for a year now and I am so excited with this fitness project that she can be involved as well! One step closer to an amazing end result and helping fight mental health! 🏼 #mentalhealth #mentalhealthawareness #mentalhealthrecovery #eds #selfcare #selflove #loveyou #loveyourself #newday #newweek #newweeknewgoals #freshstart #girls #girlboss #girlpower #ukgalaxypageants #galaxypageants #galaxygirl #missgalaxy #selfie #hardwork #dedication #changinglives #makeadifference #mentalbeauty #slay #slayqueen #queen #ownit - 5 hours ago

20 Likes
2 Comments
0
300 followers thank you so much for everyone whos followed me and shown support, it means so much to me💙
---------------------------------
#thanks #followers #support #blog #blogging #hinchers #hinching #lifestyle #love #chronicillness #eds

300 followers thank you so much for everyone whos followed me and shown support, it means so much to me --------------------------------- #thanks #followers #support #blog #blogging #hinchers #hinching #lifestyle #love #chronicillness #eds - 5 hours ago

13 Likes
4 Comments
0
Ja zeker! Het is precies wat je denkt.

Bestel het in onze shop: www.energydrinkshop.nl
.
.
.
.
.
#gfuel #nederland #belgie #belgium #thenetherlands #netherlands #eds #energydrinkshop

Ja zeker! Het is precies wat je denkt. Bestel het in onze shop: www.energydrinkshop.nl . . . . . #gfuel #nederland #belgie #belgium #thenetherlands #netherlands #eds #energydrinkshop - 6 hours ago

11 Likes
0 Comments
0
Foto by @_aikis📸 at @samson.dancecontest 
#samsondancecontest2019  #jazz #solo #EDS #equilibriumdancestudio

Foto by @_aikis 📸 at @samson.dancecontest #samsondancecontest2019 #jazz #solo #EDS #equilibriumdancestudio - 6 hours ago

37 Likes
0 Comments
0
Właśnie trwają w naszym studiu warsztaty hip hop z Klaudią Korubą @klaudiakoruba!❤️ Jako pierwsi naszą salę opanowali Juniorzy!🔥 Uwielbiamy takie niedziele! 💪💪💪
#egurroladancestudio #egurrola #eds #dance #taniec #hiphopdance #workshops #power #sunday #happy #egurrolastore #wroclaw #wroclove

Właśnie trwają w naszym studiu warsztaty hip hop z Klaudią Korubą @klaudiakoruba !️ Jako pierwsi naszą salę opanowali Juniorzy! Uwielbiamy takie niedziele! #egurroladancestudio #egurrola #eds #dance #taniec #hiphopdance #workshops #power #sunday #happy #egurrolastore #wroclaw #wroclove - 6 hours ago

78 Likes
1 Comments
0
This morning I fell out of bed and onto a cactus, specifically this bastard, which is a good metaphor for my second year at university... Click the link in my bio to watch my latest video and find out why! ✨
.
.
[Image description: Max is holding up a guilty cactus to a scratch on their stomach. The cactus is short and round with long yellow spikes, and is housed in a small yellow pot with cartoon bees on it. There is a 3 inch scratch across their stomach from falling on the cactus]
.
.
#cactus #cactusrelatedinjury #cactuslovers #scratch #tattoos #tattoosofinstagram #stomachtattoo #underbusttattoo #sunflower #sunflowertattoo #badmorning #notamorningperson #felloutofbed  #youtube #student #disability #fibromyalgia #fibro #eds #pots #dysautonomia #cripplepunk #disabledandcute #babeswithmobilityaids #spoonielife #chronicpain #chronicillness #imagedescription #disabledpeoplearehot

This morning I fell out of bed and onto a cactus, specifically this bastard, which is a good metaphor for my second year at university... Click the link in my bio to watch my latest video and find out why! . . [Image description: Max is holding up a guilty cactus to a scratch on their stomach. The cactus is short and round with long yellow spikes, and is housed in a small yellow pot with cartoon bees on it. There is a 3 inch scratch across their stomach from falling on the cactus] . . #cactus #cactusrelatedinjury #cactuslovers #scratch #tattoos #tattoosofinstagram #stomachtattoo #underbusttattoo #sunflower #sunflowertattoo #badmorning #notamorningperson #felloutofbed #youtube #student #disability #fibromyalgia #fibro #eds #pots #dysautonomia #cripplepunk #disabledandcute #babeswithmobilityaids #spoonielife #chronicpain #chronicillness #imagedescription #disabledpeoplearehot - 6 hours ago

28 Likes
5 Comments
0
A little video for my YouTube channel. It's about to make bear with roses! I love it! ❤ please subscribe on YouTube if you want to see more creativity video's 💋 my first vlog goes online to today!

#eds #EDS #ehrlosdanlos #ehrlosdanlossyndrome #edsawareness #invisibleillness #invisibleillnessawareness #wheelchair #wheelchairlife #wheelchairchick #wheelchairgirl #wheelchairidontcare #spoonie #chronicalillness #blogger #lifeblogger #vlogger #spoonie #edszebra #youtube #youtuber #creative #happy #creatief #bear #roses #aliexpress

A little video for my YouTube channel. It's about to make bear with roses! I love it! please subscribe on YouTube if you want to see more creativity video's my first vlog goes online to today! #eds #EDS #ehrlosdanlos #ehrlosdanlossyndrome #edsawareness #invisibleillness #invisibleillnessawareness #wheelchair #wheelchairlife #wheelchairchick #wheelchairgirl #wheelchairidontcare #spoonie #chronicalillness #blogger #lifeblogger #vlogger #spoonie #edszebra #youtube #youtuber #creative #happy #creatief #bear #roses #aliexpress - 6 hours ago

19 Likes
0 Comments
0
Be nice to people. SIMPLE

#mindfulness#mentalhealth #chronicpain #fibrowarrior#spoonie#love #photo #pic #fibromyalgia #fibromyalgiaawareness #instagram #instamood #support #follow #blogger #family #eds#ehlerddanlos #hypermobile #love #loveyourself

Be nice to people. SIMPLE #mindfulness #mentalhealth #chronicpain #fibrowarrior #spoonie #love #photo #pic #fibromyalgia #fibromyalgiaawareness #instagram #instamood #support #follow #blogger #family #eds #ehlerddanlos #hypermobile #love #loveyourself - 7 hours ago

15 Likes
1 Comments
0
It is not uncommon for people with EDS/HSD to say that their pain symptoms started in their first pregnancy. It is possible that the increased laxity of pregnancy does not settle properly postnatally.⠀
⠀
In any event, women with EDS/HSD need to be particularly careful to protect their joints throughout pregnancy and during the postnatal period. Regular check-ups with a specialist physiotherapist, carefully monitored use of painkillers, and timely appointments with other specialists such as podiatrists and occupational therapists can ensure that symptoms are reduced and managed.⠀
⠀
Many people with EDS/HSD suffer from tinnitus as a result of the instability of the bones in the middle ear. Extra pregnancy progesterone may make your tinnitus worse.⠀
⠀
The increased laxity and instability of the pelvic joints cause pain all around the pelvis, which can range from mild aching after sitting still, to considerable disability requiring use of crutches or a wheelchair. Some studies have found that, whilst the general pregnant population has a 7% incidence of PGP, this is increased to 26% in the woman with EDS/HSD. Symptoms can begin earlier in the woman with EDS/HSD and it may take a lot longer for them to disappear after birth. Some women with EDS/HSD continue to suffer with PGP for many years after childbirth and considerable support may be needed. (continues, link in bio)⠀
.⠀
.⠀
.⠀
#dysautonomia #mastcell #hypermobility #bendy #fibromyalgia #chronicpain #eds #ehlersdanlos #fatigue #pain #chronicillness #physiotherapy #invisiblefight #hypermobile #mentalhealth #spoonie #raredisease #raredisease #spoonielife #invisibleillness #butyoudontlooksick #chronicallyill #ehlersdanlossyndrome #pregnancy #midwife #midwifery #pregnant

It is not uncommon for people with EDS/HSD to say that their pain symptoms started in their first pregnancy. It is possible that the increased laxity of pregnancy does not settle properly postnatally.⠀ ⠀ In any event, women with EDS/HSD need to be particularly careful to protect their joints throughout pregnancy and during the postnatal period. Regular check-ups with a specialist physiotherapist, carefully monitored use of painkillers, and timely appointments with other specialists such as podiatrists and occupational therapists can ensure that symptoms are reduced and managed.⠀ ⠀ Many people with EDS/HSD suffer from tinnitus as a result of the instability of the bones in the middle ear. Extra pregnancy progesterone may make your tinnitus worse.⠀ ⠀ The increased laxity and instability of the pelvic joints cause pain all around the pelvis, which can range from mild aching after sitting still, to considerable disability requiring use of crutches or a wheelchair. Some studies have found that, whilst the general pregnant population has a 7% incidence of PGP, this is increased to 26% in the woman with EDS/HSD. Symptoms can begin earlier in the woman with EDS/HSD and it may take a lot longer for them to disappear after birth. Some women with EDS/HSD continue to suffer with PGP for many years after childbirth and considerable support may be needed. (continues, link in bio)⠀ .⠀ .⠀ .⠀ #dysautonomia #mastcell #hypermobility #bendy #fibromyalgia #chronicpain #eds #ehlersdanlos #fatigue #pain #chronicillness #physiotherapy #invisiblefight #hypermobile #mentalhealth #spoonie #raredisease #raredisease #spoonielife #invisibleillness #butyoudontlooksick #chronicallyill #ehlersdanlossyndrome #pregnancy #midwife #midwifery #pregnant - 7 hours ago

305 Likes
38 Comments
0
Take care of yourself today, and please don't beat yourself up if your Sunday is looking a little different to others', or how it used to be before you got sick 💜 .
.
Credit @thechronicills .
.
Image description: white writing on a mottled pink background says: "You're not unreliable. Your health is."
.
.
.
.
.
.
.
#spoonielife #spoonie #chronicillness #zebra #chronicallyill #ehlersdanlos #chronicpain #chronicfatigue #chronicfatiguesyndrome #ehlersdanlossyndrome #potssyndrome #posturalorthostatictachycardiasyndrome #potsie #warriorstrong #potsiestrong #EDS #chronicillnesswarrior #spooniewarrior #cfs #fibromyalgia #raredisease #careaboutrare #invisibleillness #invisibledisability #dysautonomia #sundaymorning #healthjourney #doinglifedifferently #disabled #disability

Take care of yourself today, and please don't beat yourself up if your Sunday is looking a little different to others', or how it used to be before you got sick . . Credit @thechronicills . . Image description: white writing on a mottled pink background says: "You're not unreliable. Your health is." . . . . . . . #spoonielife #spoonie #chronicillness #zebra #chronicallyill #ehlersdanlos #chronicpain #chronicfatigue #chronicfatiguesyndrome #ehlersdanlossyndrome #potssyndrome #posturalorthostatictachycardiasyndrome #potsie #warriorstrong #potsiestrong #EDS #chronicillnesswarrior #spooniewarrior #cfs #fibromyalgia #raredisease #careaboutrare #invisibleillness #invisibledisability #dysautonomia #sundaymorning #healthjourney #doinglifedifferently #disabled #disability - 7 hours ago

29 Likes
1 Comments
0
This is something that many doctors still insist on saying, and it's just not helpful! Technically where cartilage joins bone it's not called a dislocation, but when it's out, arguing semantics is pointless. And with a collagen defect, dislocations almost impossible usually, really can happen without needing a car crash!⠀
Book from our website.⠀
#HSD #EDS #hEDS #HMS #hypermobility

This is something that many doctors still insist on saying, and it's just not helpful! Technically where cartilage joins bone it's not called a dislocation, but when it's out, arguing semantics is pointless. And with a collagen defect, dislocations almost impossible usually, really can happen without needing a car crash!⠀ Book from our website.⠀ #HSD #EDS #hEDS #HMS #hypermobility - 7 hours ago

52 Likes
2 Comments
0
#Repost @vaguely.composed
• • • • •
After being cooped up in bed for most of the last few weeks I woke up this morning feeling pretty decent. So I decided to put one of my good days to use and I took my best friend to the Santa Barbara Zoo. It was so much fun and definitely worth the soreness and tiredness I'll feel in the morning.

#eds #ehlersdanlossyndrome #gastroparesisawareness #gastroparesis #feedingtubeawareness #feedingtube #crps #crpsawareness #chronicillness #chronicwarrior #invisibleillness #invisibleillnessawareness

#Repost @vaguely.composed • • • • • After being cooped up in bed for most of the last few weeks I woke up this morning feeling pretty decent. So I decided to put one of my good days to use and I took my best friend to the Santa Barbara Zoo. It was so much fun and definitely worth the soreness and tiredness I'll feel in the morning. #eds #ehlersdanlossyndrome #gastroparesisawareness #gastroparesis #feedingtubeawareness #feedingtube #crps #crpsawareness #chronicillness #chronicwarrior #invisibleillness #invisibleillnessawareness - 7 hours ago

12 Likes
0 Comments
0
What's your thoughts on this?🙃 #EDS #motivation #smile #beauty  #instafun#socialmedia #socialmediamarketing #instagram #success #inspiration #life  #dubai #digitalmarketing #digitalmarketer #socialmediamarketing #seo #adwords #smsmarketing #emailmarketing #pushnotifications

What's your thoughts on this?🙃 #EDS #motivation #smile #beauty #instafun #socialmedia #socialmediamarketing #instagram #success #inspiration #life #dubai #digitalmarketing #digitalmarketer #socialmediamarketing #seo #adwords #smsmarketing #emailmarketing #pushnotifications - 7 hours ago

29 Likes
4 Comments
0
🏴‍☠️💸🔌#EDS #SDT #Justepourlecarteletlebinkspourlerestemercibien#Freestyle

🏴‍☠️#EDS #SDT #Justepourlecarteletlebinkspourlerestemercibien #Freestyle - 7 hours ago

10 Likes
2 Comments
0
I woke up this morning feeling pretty great. A rarity these days! But boy has this gone downhill over the last 3 hours. 
The spasms currently distorting and twisting my back dont understand that Ive got a lively toddler. Whilst I have  painkillers available to me Im trying to cope purely on TENS for now. 
Disability doesn't care whether your young/old/pregnant/a parent; it doesn't discriminate.

Hit me up with your coping tips! 
#spoonie #chronicillness #chronicillnesswarrior #mummyblogger #mumblogger #blogger #pregnant #teamyellow #tensmachine #pain #seizures #pots #dystonia #eds #classicaleds #osteoarthritis #disability #mytruth #livinginpain #fightingthroughpain

I woke up this morning feeling pretty great. A rarity these days! But boy has this gone downhill over the last 3 hours. The spasms currently distorting and twisting my back dont understand that Ive got a lively toddler. Whilst I have painkillers available to me Im trying to cope purely on TENS for now. Disability doesn't care whether your young/old/pregnant/a parent; it doesn't discriminate. Hit me up with your coping tips! #spoonie #chronicillness #chronicillnesswarrior #mummyblogger #mumblogger #blogger #pregnant #teamyellow #tensmachine #pain #seizures #pots #dystonia #eds #classicaleds #osteoarthritis #disability #mytruth #livinginpain #fightingthroughpain - 8 hours ago

11 Likes
2 Comments
0
✖️ Spring on my mind. I finally have the right charger for my electric handbike. Can’t wait to get out in nature with my “bike” 👌🏻 #happysunday

️ Spring on my mind. I finally have the right charger for my electric handbike. Can’t wait to get out in nature with my “bike” 🏻 #happysunday - 8 hours ago

52 Likes
5 Comments
0
Can I brag for a moment? After weeks of not being able to eat more than 5 food items, and day after day of crying because I'm so hungry and almost everything triggering anaphylaxis. Tonight we went to @sprouts  and I broke down crying again because I'm so hungry. Seeing all the food I'd like to eat but can't just got to me. I told my husband I wanted to try a steak. I wanted to try beef! I have never been so hungry I'm my life, I've lost almost 50lbs since November and my body needs food, I need nourishment. This beautiful rare ribeye with a side of asparagus only triggered a very small reaction! 🙌 I feel amazing just knowing I ate an adequate meal. #ribeye #sproutsfarmersmarket #steak #foodallergies #histamineintolerance #mastcellactivationdisorder #mastcellactivationsyndrome #mastcelldisease #celiac #igadeficiency #eds #edsawareness #ehlersdanlossyndrome #dysautonomia #potssyndrome #autoimmunedisease #anaphalaxis #lowhistaminediet #redmeat #delicious #blessed #feelinggreat #thankyou #healthandwellness #meateater #beef #gressfedbeef

Can I brag for a moment? After weeks of not being able to eat more than 5 food items, and day after day of crying because I'm so hungry and almost everything triggering anaphylaxis. Tonight we went to @sprouts and I broke down crying again because I'm so hungry. Seeing all the food I'd like to eat but can't just got to me. I told my husband I wanted to try a steak. I wanted to try beef! I have never been so hungry I'm my life, I've lost almost 50lbs since November and my body needs food, I need nourishment. This beautiful rare ribeye with a side of asparagus only triggered a very small reaction! I feel amazing just knowing I ate an adequate meal. #ribeye #sproutsfarmersmarket #steak #foodallergies #histamineintolerance #mastcellactivationdisorder #mastcellactivationsyndrome #mastcelldisease #celiac #igadeficiency #eds #edsawareness #ehlersdanlossyndrome #dysautonomia #potssyndrome #autoimmunedisease #anaphalaxis #lowhistaminediet #redmeat #delicious #blessed #feelinggreat #thankyou #healthandwellness #meateater #beef #gressfedbeef - 8 hours ago

22 Likes
0 Comments
0
#cannadifyi💯💚 GNST y’all eh!
Thanks for sticking with me while I’ve been under the weather for so long. ...
Love love love #MyTribe #WeAreFamily
....
#Dabbing 
This is my second large #dab before I turn in again. ...
Sometimes we have days when our engines just don’t start. Sometimes we have days when our engine starts and  stalls out right away.
It happens.
Most of us here in the PNW are still fighting off the Cucamunga. It really can knock  your system out of whack.
....
I’m grateful and blessed to have the best medicine and earth to fight the good fight against anything and everything that comes my way. #Cannabis concentrates
#FitOver55 #EDS #MS #DDD #Dysautonomia

#cannadifyi GNST y’all eh! Thanks for sticking with me while I’ve been under the weather for so long. ... Love love love #MyTribe #WeAreFamily .... #Dabbing This is my second large #dab before I turn in again. ... Sometimes we have days when our engines just don’t start. Sometimes we have days when our engine starts and stalls out right away. It happens. Most of us here in the PNW are still fighting off the Cucamunga. It really can knock your system out of whack. .... I’m grateful and blessed to have the best medicine and earth to fight the good fight against anything and everything that comes my way. #Cannabis concentrates #FitOver55 #EDS #MS #DDD #Dysautonomia - 8 hours ago

34 Likes
2 Comments
0
Today is one of those days where my body is wiped out 😴
🦓🦓✌️✌️🌈🌈 #EDS #hEDS #paingoawayplease #ouch #zebra #zebrasofinstagram

Today is one of those days where my body is wiped out 😴 🦓🦓 #EDS #hEDS #paingoawayplease #ouch #zebra #zebrasofinstagram - 8 hours ago

3 Likes
0 Comments
0
Load more posts
2018 - © Deskgram. All rights reserved.