#eds

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Fer el que t' agrada i aconseguir millorar el benestar de les persones no te preu! #elmovimentesvida #eds #benestar #

Fer el que t' agrada i aconseguir millorar el benestar de les persones no te preu! #elmovimentesvida #eds #benestar # - 5 hours ago

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IM BREAKING NEWS.

IM BREAKING NEWS. - 5 hours ago

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The great thing about weekends is that there’s nothing I need to remember 🎉🎉🎉 Happy weekend!
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#chronicpain #chronicpainwarrior #chronicillness #chronicillnesswarrior #autoimmunedisease #autoimmunewarrior #spoonie #arthritis #juvenilearthritis #rheumatoidarthritis #rawarrior #lupus #sjogrens #chrons #lymedisease #fibromyalgia #pots #pcos #eds #ibs #ulcerativecolitis #multiplesclerosis #dysautonomia #endometriosis #endowarrior #dailymemes #motivation #weekendvibes

The great thing about weekends is that there’s nothing I need to remember Happy weekend! . . . #chronicpain #chronicpainwarrior #chronicillness #chronicillnesswarrior #autoimmunedisease #autoimmunewarrior #spoonie #arthritis #juvenilearthritis #rheumatoidarthritis #rawarrior #lupus #sjogrens #chrons #lymedisease #fibromyalgia #pots #pcos #eds #ibs #ulcerativecolitis #multiplesclerosis #dysautonomia #endometriosis #endowarrior #dailymemes #motivation #weekendvibes - 5 hours ago

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Dogs definitely are the best therapy ❤️

Dogs definitely are the best therapy ️ - 5 hours ago

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When life hits you hard, get back up and fight harder than ever. #ink #blondehair #girlswithtattoos #inkedgirls #inked #tattoo #tattoos #tatt #chiarimalformation #chiariwarrior #eds #zebrastrong #ehlersdanlossyndrome #ehlersdanlos #brainsurgerysurvivor #fighter #warrior #lifesabitch

When life hits you hard, get back up and fight harder than ever. #ink #blondehair #girlswithtattoos #inkedgirls #inked #tattoo #tattoos #tatt #chiarimalformation #chiariwarrior #eds #zebrastrong #ehlersdanlossyndrome #ehlersdanlos #brainsurgerysurvivor #fighter #warrior #lifesabitch - 5 hours ago

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Thank you so much mom for this wonderful roses🌹 I love flowers😍 It makes me happy when I see flowers in my room. They are so beautiful! I love you mom 💖
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#chronicillness #chronicfatigue #chronicpain #invisibleillness #invisibledisability #spoonie #spoonielife #spooniefamily #spooniestrong #POTS #TMJ #HSD #eds #heds #MCAS #mastcell #gastroparesis #dysautonomia #hypermobility #ehlersdanlos #zebrastrong #ehlersdanlossyndrome #dontjudgeaperson #dontjudge #alwaysfighting #mylife  #everyBodyisbeautiful #butyoudontlooksick #fightlikeawarrior #chroniczebra

Thank you so much mom for this wonderful roses I love flowers It makes me happy when I see flowers in my room. They are so beautiful! I love you mom . . . #chronicillness #chronicfatigue #chronicpain #invisibleillness #invisibledisability #spoonie #spoonielife #spooniefamily #spooniestrong #POTS #TMJ #HSD #eds #heds #MCAS #mastcell #gastroparesis #dysautonomia #hypermobility #ehlersdanlos  #zebrastrong #ehlersdanlossyndrome #dontjudgeaperson #dontjudge #alwaysfighting #mylife #everyBodyisbeautiful #butyoudontlooksick #fightlikeawarrior #chroniczebra - 5 hours ago

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Fun day today 
So after spending all day sleeping due to a sinus infection, intake a new pill prescribed by one of my drs to help me retain water  since due to my pots, everything I drink litterally goes right through me. ANYWAYS. I haven’t noticed a chcange other than I get nauseated unless I don’t eat a lot of salt after taking it. Well today that changed It made me EXTREMELY nauseous. I literally threw up my guts and then some. I haven’t done that in years. It was as if I had the stomach bug. 
Y’all. 2 things I never want again. That medicine and Tostitos pizza because that didn’t taste good coming up 😩🤮🤢 #tmi 
So here I am at 6 am not able to sleep because my nausea is so bad. How’s your day going?

#ehlersdanlossyndrome #chronicillnesswarrior #dysautonomiaawareness #fibromyalgia #scoliosis #pots #potslife #lifewithpots #chronicillnesswarrior #eds #sick

Fun day today So after spending all day sleeping due to a sinus infection, intake a new pill prescribed by one of my drs to help me retain water since due to my pots, everything I drink litterally goes right through me. ANYWAYS. I haven’t noticed a chcange other than I get nauseated unless I don’t eat a lot of salt after taking it. Well today that changed It made me EXTREMELY nauseous. I literally threw up my guts and then some. I haven’t done that in years. It was as if I had the stomach bug. Y’all. 2 things I never want again. That medicine and Tostitos pizza because that didn’t taste good coming up 🤮🤢 #tmi So here I am at 6 am not able to sleep because my nausea is so bad. How’s your day going? #ehlersdanlossyndrome #chronicillnesswarrior #dysautonomiaawareness #fibromyalgia #scoliosis #pots #potslife #lifewithpots #chronicillnesswarrior #eds #sick - 6 hours ago

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Relatable #💗🦄
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#chronicpain #anxiety #psychology #illness #fibromyalgia #invisibleillness #meme #funny #narcolepsy #spoonie #fibromyalgia #spoonielife #chronicillness #chronicfatigue #EDS #lymedisease #mcas #lupus #pots #bp1 #tmjd #relatable #ibs #autoimmune #celiac #multiplesclerosis #endometriosis #mentalhealthawareness #migraine

Relatable #🦄 . . . #chronicpain #anxiety #psychology #illness #fibromyalgia #invisibleillness #meme #funny #narcolepsy #spoonie #fibromyalgia #spoonielife #chronicillness #chronicfatigue #EDS #lymedisease #mcas #lupus #pots #bp1 #tmjd #relatable #ibs #autoimmune #celiac #multiplesclerosis #endometriosis #mentalhealthawareness #migraine - 6 hours ago

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Anyone else? #💗🦄
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#chronicpain #anxiety #psychology #illness #fibromyalgia #invisibleillness #meme #funny #narcolepsy #spoonie #fibromyalgia #spoonielife #chronicillness #chronicfatigue #EDS #lymedisease #mcas #lupus #pots #bp1 #tmjd #relatable #ibs #autoimmune #celiac #multiplesclerosis #endometriosis #mentalhealthawareness #migraine

Anyone else? #🦄 . . . #chronicpain #anxiety #psychology #illness #fibromyalgia #invisibleillness #meme #funny #narcolepsy #spoonie #fibromyalgia #spoonielife #chronicillness #chronicfatigue #EDS #lymedisease #mcas #lupus #pots #bp1 #tmjd #relatable #ibs #autoimmune #celiac #multiplesclerosis #endometriosis #mentalhealthawareness #migraine - 6 hours ago

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I have some good news and some okay news. 
The good news is we're making progress, the not so good news is that my health team suspect POTS could be the culprit of all the passing out/ low bp/ high heart rate/ dizzyness I've been having.
I'm not sure what to think about that atm, it's not the end of the world, and I prefer to be diagnosed than un-diagnosed, but I was rather hoping they would come back saying it was an easy fix.

The rheumatologist I saw back in February who formally** diagnosed me with hEDS has been in contact with my favourite GP Dr. Ruth (nobody can prenounce her last name) about the fainting episodes I keep having where I go unconscious for short amounts of time.
She thinks it sounds like POTS and recommends I be referred to Cardiology for "diagnosis and management". I have had tachycardia for ages and have a 'working diagnosis' of Continual/Chronic Sinus Tachycardia' which basically just tells health professionals that my resting heart rate is unusually high, and that it's been like that for a while aha; it's less a diagnosis and more a description.
I have had numerous laying down heart ecgs because of chest pain and high heart rate, and other than mild palpitations and a high resisting hr, my heart has always been okay. 🤞🤞🤞 Fingers crossed everything goes okay, that the referal won't take too long,  and if it is POTS then I can recive treatment soon. **(I had a working dx from my pain team and was receiving treatment as an EDS patient while we waited for the formal diagnosis, unconventional I know, but it worked.)
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Continues in comments. .
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#spoonie #ehlersdanlossyndrome #hEDS #EDS #edsawareness #ehlersdanlossyndromeawareness #POTS? #undiagnosed #rheumatology #cardiology #tachycardia #intestinaldysmotility #intestinaldysmotilitysucks #gerd #TMJ #intestinaldysmotilitysucks #lazybowelsyndrome #starvingforacure #chronicpain #chronicfatiguesyndrome #mecfs #CFS #nervedamage #nervedysfunction #NEAD #chronicillnessawareness #jointdeformity #zoesstory

I have some good news and some okay news. The good news is we're making progress, the not so good news is that my health team suspect POTS could be the culprit of all the passing out/ low bp/ high heart rate/ dizzyness I've been having. I'm not sure what to think about that atm, it's not the end of the world, and I prefer to be diagnosed than un-diagnosed, but I was rather hoping they would come back saying it was an easy fix. The rheumatologist I saw back in February who formally** diagnosed me with hEDS has been in contact with my favourite GP Dr. Ruth (nobody can prenounce her last name) about the fainting episodes I keep having where I go unconscious for short amounts of time. She thinks it sounds like POTS and recommends I be referred to Cardiology for "diagnosis and management". I have had tachycardia for ages and have a 'working diagnosis' of Continual/Chronic Sinus Tachycardia' which basically just tells health professionals that my resting heart rate is unusually high, and that it's been like that for a while aha; it's less a diagnosis and more a description. I have had numerous laying down heart ecgs because of chest pain and high heart rate, and other than mild palpitations and a high resisting hr, my heart has always been okay. 🤞🤞🤞 Fingers crossed everything goes okay, that the referal won't take too long, and if it is POTS then I can recive treatment soon. **(I had a working dx from my pain team and was receiving treatment as an EDS patient while we waited for the formal diagnosis, unconventional I know, but it worked.) . . Continues in comments. . . #spoonie #ehlersdanlossyndrome #hEDS #EDS #edsawareness #ehlersdanlossyndromeawareness #POTS ? #undiagnosed #rheumatology #cardiology #tachycardia #intestinaldysmotility #intestinaldysmotilitysucks #gerd #TMJ #intestinaldysmotilitysucks #lazybowelsyndrome #starvingforacure #chronicpain #chronicfatiguesyndrome #mecfs #CFS #nervedamage #nervedysfunction #NEAD #chronicillnessawareness #jointdeformity #zoesstory - 6 hours ago

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Through the entire month of November @JPaulSkinCare 😎 is making a generous donation of 10% of their sales to the Ehlers-Danlos Society.  Let's help #JPaulSkinCare Support the Cause in #Movember! The Ehlers Danlos Society helps raise awareness and funds for the connective tissue genetic disorder #EDS. 🙆 Post a photo you or your friend's new #beard, #mustache or close #shave and let's help spread the word and #support men’s #health!! ❤ #raiseawareness

If you would like learn more about EDS and the Ehlers-Danlos Society visit https://Ehlers-Danlos.com -link in my bio. #findacure #sponsored  #supportthecause .
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#giveback #showusyourhair #ehlersdanlossyndrome #fundresearch #JPaulsupports 
#mensgrooming, #anti-aging, #closeshave #beard #goodskin,#mensskincare, #menskincare, #skincareformen, #menskin, #menskincarepeoducts, #menblogger, #menstyle, #manskincare, #antiaging,

Through the entire month of November @JPaulSkinCare 😎 is making a generous donation of 10% of their sales to the Ehlers-Danlos Society. Let's help #JPaulSkinCare Support the Cause in #Movember ! The Ehlers Danlos Society helps raise awareness and funds for the connective tissue genetic disorder #EDS . Post a photo you or your friend's new #beard , #mustache or close #shave and let's help spread the word and #support men’s #health !! #raiseawareness If you would like learn more about EDS and the Ehlers-Danlos Society visit https://Ehlers-Danlos.com -link in my bio. #findacure #sponsored #supportthecause . . . . . . . . . . . . . . . . . #giveback #showusyourhair #ehlersdanlossyndrome #fundresearch #JPaulsupports #mensgrooming , #anti -aging, #closeshave #beard #goodskin ,#mensskincare , #menskincare , #skincareformen , #menskin , #menskincarepeoducts , #menblogger , #menstyle , #manskincare , #antiaging , - 6 hours ago

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Always a smile... by Astrid

Fotografie: @acfotografie.nl 
#eds #edsawareness #facing-EDS #HSD #spoonie #chronicillness #chronicpainwarrior

Always a smile... by Astrid Fotografie: @acfotografie.nl #eds #edsawareness #facing -EDS #HSD #spoonie #chronicillness #chronicpainwarrior - 6 hours ago

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I got the best early christmas from Eds @terrapod .He is so giving and willing to share .I love all this awesome cactus.I m so happy to meet Eds the mystery man behind this Ig account...He is a awesome, cheerful and one of the friends who always help me when I have doubt in the cactus ID thanks Eds @terrapod ...#nofilter
#earlychristmas #eds #terrapod #giving#share #awesome #cactus #happy#mystery #igaccount #cheerful #friends #cactus #id #nofilter #succulentslover #cactuslover

I got the best early christmas from Eds @terrapod .He is so giving and willing to share .I love all this awesome cactus.I m so happy to meet Eds the mystery man behind this Ig account...He is a awesome, cheerful and one of the friends who always help me when I have doubt in the cactus ID thanks Eds @terrapod ...#nofilter #earlychristmas #eds #terrapod #giving #share #awesome #cactus #happy #mystery #igaccount #cheerful #friends #cactus #id #nofilter #succulentslover #cactuslover - 7 hours ago

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#lymedisease #lyme #lupus #autoimmune #pain #chronicpain #arthritis #rhumatoidarthritis #intracranialhypertension #trigeminalneuralgia #chiarimalformation #hydrocephalus #lymeawareness #eds #pots #mastcellactivationdisorder #spoonie #chronicpain #chronicfatigue

#lymedisease #lyme #lupus #autoimmune #pain #chronicpain #arthritis #rhumatoidarthritis #intracranialhypertension #trigeminalneuralgia #chiarimalformation #hydrocephalus #lymeawareness #eds #pots #mastcellactivationdisorder #spoonie #chronicpain #chronicfatigue - 7 hours ago

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NEW BLOG POST (link in bio)

I’ve been asked a lot recently about my spoke guards on my wheelchair. Honestly I’ve had more compliments in the past month than I’ve had in the year since I painted them. So I’d thought I would share my simple way of creating planets with spray paint. (This method can work on anything you can spray paint)  I decided to write it as if I was telling myself how to do it again...🤗 #DIY #wheelchairdiy #spokeguards #wheelchair #mummy #mumblog #wheelie #wheelchairmum #disabilityawareness #blogger #disabledblogger #disabilitygamechanger #hypermobility #EDS #POTS #wheelchaircommunity #makemotherhooddiverse #thismumcan #momlife #wheelchairlife #strongmama #makingtheworldworkforus

NEW BLOG POST (link in bio) I’ve been asked a lot recently about my spoke guards on my wheelchair. Honestly I’ve had more compliments in the past month than I’ve had in the year since I painted them. So I’d thought I would share my simple way of creating planets with spray paint. (This method can work on anything you can spray paint)  I decided to write it as if I was telling myself how to do it again...🤗 #DIY #wheelchairdiy #spokeguards #wheelchair #mummy #mumblog #wheelie #wheelchairmum #disabilityawareness #blogger #disabledblogger  #disabilitygamechanger #hypermobility #EDS #POTS  #wheelchaircommunity #makemotherhooddiverse #thismumcan #momlife #wheelchairlife #strongmama  #makingtheworldworkforus - 7 hours ago

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#lymedisease #lyme #lupus #autoimmune #pain #chronicpain #arthritis #rhumatoidarthritis #intracranialhypertension #trigeminalneuralgia #chiarimalformation #hydrocephalus #lymeawareness #eds #pots #mastcellactivationdisorder #spoonie #chronicpain #chronicfatigue #COAPP #speakup

#lymedisease #lyme #lupus #autoimmune #pain #chronicpain #arthritis #rhumatoidarthritis #intracranialhypertension #trigeminalneuralgia #chiarimalformation #hydrocephalus #lymeawareness #eds #pots #mastcellactivationdisorder #spoonie #chronicpain #chronicfatigue #COAPP #speakup - 7 hours ago

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Just watching the world go by with the kitty .

I think I may need to try and buy an actual feeding backpack, this is so heavy but it’s the only one I’ve tried to use recently but it’s really heavy. 
If anyone has any suggestions that don’t cost a fortune I’d be really appreciative! 
Also thinking I need to get a mask but mainly because the cold makes it feel like i can’t breathe sometimes when it’s really cold and it is Scorland! 🤭 
#cat #cats #catsofinstagram #rescuecat #chronicillness #chronicallyill #tubefeeding #thnefed #gastroparesis #butyoudontlooksick #disability #ehlersdanlos #ehlersdanlossyndrome #eds #nutrition #health #spoonie

Just watching the world go by with the kitty . I think I may need to try and buy an actual feeding backpack, this is so heavy but it’s the only one I’ve tried to use recently but it’s really heavy. If anyone has any suggestions that don’t cost a fortune I’d be really appreciative! Also thinking I need to get a mask but mainly because the cold makes it feel like i can’t breathe sometimes when it’s really cold and it is Scorland! 🤭 #cat #cats #catsofinstagram #rescuecat #chronicillness #chronicallyill #tubefeeding #thnefed #gastroparesis #butyoudontlooksick #disability #ehlersdanlos #ehlersdanlossyndrome #eds #nutrition #health #spoonie - 7 hours ago

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@chronicillnesshumor 👌🏽#chronicillness #noimnotbetteryet #eds #ehlersdanlossyndrome #hypermobility #chronicfatigue #chronicpain

@chronicillnesshumor 🏽#chronicillness #noimnotbetteryet #eds #ehlersdanlossyndrome #hypermobility #chronicfatigue #chronicpain - 7 hours ago

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Ya know what it is #ballads1.
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#disability #invisibleillness #pots #eds #teamzebedee  #zebedeemanagment #model #modelswithdisability #potd #l4l  #photo #britishmodel #abilitynotdisability #instastyle #ambulatorywheelchairuser #wheelchairmodel #wheelchairuser #spoonie #potsie #thisgirlcan  #mentalhealth #makeup #motd #ootd

Ya know what it is #ballads1 . . . #disability #invisibleillness #pots #eds #teamzebedee #zebedeemanagment #model #modelswithdisability #potd #l4l #photo #britishmodel #abilitynotdisability #instastyle #ambulatorywheelchairuser #wheelchairmodel #wheelchairuser #spoonie #potsie #thisgirlcan #mentalhealth #makeup #motd #ootd - 7 hours ago

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I woke up at six this morning, and I was super cold for some reason??? I bundled myself up in thick socks, trousers and my thick (unicorn) dressing gown but I'm still really cold? 😕
Why can I never just be a normal temperature. I'm either boiling or freezing, there's no in-between 😂
(This is kind of hard for me to post, because I really struggle with looking at myself in pictures, and what I think is OCD really stresses me when I/pictures don't look a certain way. I'm trying to work on that, so enjoy this really crappy selfie 😂)
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Anyway, I'm going to change the way I use this account a bit.
I made it to document life with chronic and mental illnesses, but I realised that I haven't really been doing that. 🤔
I barely post anything, and when I do, it's nothing that actually shows the reality of being ill. It doesn't show the day-to-day struggles, the breakdowns, and just sheer exhaustion, so I'm going to try to change that. I'm also doing this for my mental health. I want to show how much I struggle, because I don't even let my parents see me when I'm bad. I don't cry infront of anyone, or explain my feelings, and that's really bad for me.
This account isn't solely going to focus on my physical illness anymore, my mental health is also going to be included because that often comes along with illness/chronic pain.
Anyway, I hope you have a good day, and I'm sending spoons xxx
{Image Description: A photo of my face with a hood up over my hair. The hood has a face on it, with eyes, a golden unicorn horn and ears. I'm holding some fabric over the bottom part of my face, and I'm frowning at the camera. There's an orange mirror on the wall behind me.}

I woke up at six this morning, and I was super cold for some reason??? I bundled myself up in thick socks, trousers and my thick (unicorn) dressing gown but I'm still really cold? 😕 Why can I never just be a normal temperature. I'm either boiling or freezing, there's no in-between (This is kind of hard for me to post, because I really struggle with looking at myself in pictures, and what I think is OCD really stresses me when I/pictures don't look a certain way. I'm trying to work on that, so enjoy this really crappy selfie ) • Anyway, I'm going to change the way I use this account a bit. I made it to document life with chronic and mental illnesses, but I realised that I haven't really been doing that. 🤔 I barely post anything, and when I do, it's nothing that actually shows the reality of being ill. It doesn't show the day-to-day struggles, the breakdowns, and just sheer exhaustion, so I'm going to try to change that. I'm also doing this for my mental health. I want to show how much I struggle, because I don't even let my parents see me when I'm bad. I don't cry infront of anyone, or explain my feelings, and that's really bad for me. This account isn't solely going to focus on my physical illness anymore, my mental health is also going to be included because that often comes along with illness/chronic pain. Anyway, I hope you have a good day, and I'm sending spoons xxx {Image Description: A photo of my face with a hood up over my hair. The hood has a face on it, with eyes, a golden unicorn horn and ears. I'm holding some fabric over the bottom part of my face, and I'm frowning at the camera. There's an orange mirror on the wall behind me.} - 7 hours ago

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Live in every breath. Meet respect, meet humility and focus. Attendance and understanding provide extra support to meet problems with solutions.
🏋️‍♀️🏋️‍♀️🏋️‍♀️#fightingspirit #fitness #forlife #hardtimes #warrioratheart #eds #zebrawarrior #zebrastrong

Live in every breath. Meet respect, meet humility and focus. Attendance and understanding provide extra support to meet problems with solutions. 🏋️‍♀️🏋️‍♀️🏋️‍♀️#fightingspirit #fitness #forlife #hardtimes #warrioratheart #eds #zebrawarrior #zebrastrong - 7 hours ago

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A little more than half way through #NaNoWriMo2018 and I've finally passed 15,000 words on #ChimeraRising - the sequel to #Infinitus. I'm still quite a bit behind due to the other writing contest and life complications, but I'm regaining ground faster now. I've added almost 12K of that since last weekend, and I hope to power through and catch up this weekend. #WishMeLuck #NaNoWriMo #AmWriting #SciFi #Dystopian #AmWritingSciFi #AmWritingDystopian #AuthorsOfInstagram #WritersOfInstagram #LikeABoss #Novel #MyNovel #MyBook #Genetics #CharactersWithDisabilities #EhlersDanlosSyndrome #EDS

A little more than half way through #NaNoWriMo2018 and I've finally passed 15,000 words on #ChimeraRising - the sequel to #Infinitus . I'm still quite a bit behind due to the other writing contest and life complications, but I'm regaining ground faster now. I've added almost 12K of that since last weekend, and I hope to power through and catch up this weekend. #WishMeLuck #NaNoWriMo #AmWriting #SciFi #Dystopian #AmWritingSciFi #AmWritingDystopian #AuthorsOfInstagram #WritersOfInstagram #LikeABoss #Novel #MyNovel #MyBook #Genetics #CharactersWithDisabilities #EhlersDanlosSyndrome #EDS - 8 hours ago

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Chronicillness Awareness
#Ckd #dialysis #dialysislife #spoonie #spoonielife #ibs #sbs #crohns #eds #pots #autoimmunedisease #nephritis #cysticfibrosis #Chronicillness #chronicfatigue #donatelife

Chronicillness Awareness #Ckd #dialysis #dialysislife #spoonie #spoonielife #ibs #sbs #crohns #eds #pots #autoimmunedisease #nephritis #cysticfibrosis #Chronicillness #chronicfatigue #donatelife - 8 hours ago

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Y’all, I think this mannequin has #EDS 😂😂😂
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#ehlersdanlossyndrome #edstype3 #ehlersdanlosawareness #ehlersdanlos #hypermobility #hypermobilitysyndrome #hypermobile #flexible #circusfreak #disabled #disability #disabilityawareness #chronicillness #jointdisorder #stretchy #spoonie #spooniehumor

Y’all, I think this mannequin has #EDS . . . . . . . #ehlersdanlossyndrome #edstype3 #ehlersdanlosawareness #ehlersdanlos #hypermobility #hypermobilitysyndrome #hypermobile #flexible #circusfreak #disabled #disability #disabilityawareness #chronicillness #jointdisorder #stretchy #spoonie #spooniehumor - 8 hours ago

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Vous tous, en effet, avez été unis au Christ dans le baptême et vous vous êtes  ainsi revêtus de tout ce qu'il nous offre. Il n'importe donc plus que l'on soit juif ou non juif, esclave ou libre, homme ou femme; en effet, vous êtes tous dans la communion avec Jésus Christ.

Galates 3 v 27-28

Verset de la semaine du 10-16 novembre 2018

#EDS #ecoledusabbat #sda #unitéenchrist #eglise #unité #communion #galates3

Vous tous, en effet, avez été unis au Christ dans le baptême et vous vous êtes ainsi revêtus de tout ce qu'il nous offre. Il n'importe donc plus que l'on soit juif ou non juif, esclave ou libre, homme ou femme; en effet, vous êtes tous dans la communion avec Jésus Christ. Galates 3 v 27-28 Verset de la semaine du 10-16 novembre 2018 #EDS #ecoledusabbat #sda #unitéenchrist #eglise #unité #communion #galates3 - 8 hours ago

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Some things I got for my birthday ❤️❤️❤️.
And another year of Beachbody, and a meal out with my daughter 💖

The chronic illness book is one I've had from the library- best one I've read- very validating and helpful ACT based book, I recommend.

#books #medicinewoman #lucyhpearce #rayowens #shamanism #ronhutton #ronaldhutton #druidry #obod #orderofbardsovatesanddruids #chronicillness #chronicfatigue #chronicpain #hypermobilityspectrumdisorder #hypermobilitysyndrome #ehlersdanlos #eds

Some things I got for my birthday ️. And another year of Beachbody, and a meal out with my daughter The chronic illness book is one I've had from the library- best one I've read- very validating and helpful ACT based book, I recommend. #books #medicinewoman #lucyhpearce #rayowens #shamanism #ronhutton #ronaldhutton #druidry #obod #orderofbardsovatesanddruids #chronicillness #chronicfatigue #chronicpain #hypermobilityspectrumdisorder #hypermobilitysyndrome #ehlersdanlos #eds - 8 hours ago

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Survived back surgery but the pain is super intense. #eds #ehlersdanlossyndrome #classicehlersdanlos #spinalfusion

Survived back surgery but the pain is super intense. #eds #ehlersdanlossyndrome #classicehlersdanlos #spinalfusion - 8 hours ago

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Dear diary,❤
Cred @fxltw .
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#finnwolfhard #finnwolfhardofficial #jackdgrazer #jackgrazer #it #itedit #itmovieedit #itmovie #itcast #losers #lovers #vteam #fack #fackedits #fackisreal #reddie #eddiekaspbrak #eds #eddiespaghetti #eddiebear #richietozier #beepbeeprichie #frogface

Dear diary, Cred @fxltw . . . #finnwolfhard #finnwolfhardofficial #jackdgrazer #jackgrazer #it #itedit #itmovieedit #itmovie #itcast #losers #lovers #vteam #fack #fackedits #fackisreal #reddie #eddiekaspbrak #eds #eddiespaghetti #eddiebear #richietozier #beepbeeprichie #frogface - 9 hours ago

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And today is really testing me! 😫 the sad reality is that with an ‘invisible illness’ you’re looks really don’t pity you! “But you don’t look unwell?” 🙄 this quote really does say it how it is! 🦓💜 #EDS #edsawareness #ehlersdanlossyndrome #elhersdanlos #edstype3 #chronicillness #invisibleillness #chonicpain #zebrastrong #zebrawarrior #instaquotes

And today is really testing me! the sad reality is that with an ‘invisible illness’ you’re looks really don’t pity you! “But you don’t look unwell?” 🙄 this quote really does say it how it is! 🦓 #EDS #edsawareness #ehlersdanlossyndrome #elhersdanlos #edstype3 #chronicillness #invisibleillness #chonicpain #zebrastrong #zebrawarrior #instaquotes - 9 hours ago

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Avocado, red onion, lemon juice and hemp hearts on organic superseeded @nairnsoatcakes 💚🌱 A savoury breakfast to help combat nausea. Having a POTS flare. Unimpressed. 
Happy weekend everyone xx

#POTS
#posturalorthostatictachycardia 
#EDS
#ehlersdanlossyndrome 
#syncope 
#tachycardia 
#adrenalfatigue 
#fibromyalgia
#eatforhealth 
#eatfornutrition 
#positivethinking
#avocadoaddict

Avocado, red onion, lemon juice and hemp hearts on organic superseeded @nairnsoatcakes A savoury breakfast to help combat nausea. Having a POTS flare. Unimpressed. Happy weekend everyone xx #POTS #posturalorthostatictachycardia #EDS #ehlersdanlossyndrome #syncope #tachycardia #adrenalfatigue #fibromyalgia #eatforhealth #eatfornutrition #positivethinking #avocadoaddict - 9 hours ago

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Cam kapılara nefret eden varmı?

LÜTFEN BİR HARF BİLE OLSA ,YORUM YAPMAYI UNUTMAYINIZ 👇👇👇 _________TURKİYE_HABER_SHOW___________________________________________________________________

#turkiye #capkapı #mutlu  #eds  #haber #cezanıtürkçeokutmakanliyayin #yenihaber #cumhurbaşkanı #RecepTayyipErdogan #islamdiridendahadiri
#turkiye_haber_show #tekdevlet🇹🇷 #tekvatan #tekbayrak #tekmillet #bumemleketsahipsizdeğil #haber #tcbaşkanı #Dünyahaberi #türkbayrağı #vatansağolsun  #muslumanlaradestek  #gurbetci #başkan #bayram

Cam kapılara nefret eden varmı? LÜTFEN BİR HARF BİLE OLSA ,YORUM YAPMAYI UNUTMAYINIZ _________TURKİYE_HABER_SHOW___________________________________________________________________ #turkiye #capkapı #mutlu #eds #haber #cezanıtürkçeokutmakanliyayin #yenihaber #cumhurbaşkanı #RecepTayyipErdogan #islamdiridendahadiri #turkiye_haber_show #tekdevlet 🇹🇷 #tekvatan #tekbayrak #tekmillet #bumemleketsahipsizdeğil #haber #tcbaşkanı #Dünyahaberi #türkbayrağı #vatansağolsun #muslumanlaradestek #gurbetci #başkan #bayram - 9 hours ago

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Omdat jij echt de mooiste bent! ✨ #echtinsta #girlonamission #meisjescoach #chronischziek

Omdat jij echt de mooiste bent! #echtinsta #girlonamission #meisjescoach #chronischziek - 10 hours ago

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❤️Health Update➡️➡️ In August, I presented with severe intestinal inflammation. I had severe stomach pain, and a plethora of other random pains in my abdomen. I ended up in the hospital at the beginning of October, and I have been suffering ever since. I’ve lost 18 pounds. I have #anemia, a #hemorrhagiccyst cyst on my left ovary, and now have been experiencing horrific #tachycardia. My heart races during the night upwards of 150 bpm. I haven’t been able to sleep normally for weeks. Upon standing my HR shoots up to 120-130. If I try to eat or drink the same thing happens followed by a lot of stomach pain, dizziness, and sweating.  My life is severely impacted, and this has literally been hell. When the ❤️ palpitations started, I went to the emergency room several times. It comes with sweats, dizziness, dehydration, chest pain, anxiety, and so on. The last visit to the ER they finally discovered that I wasn’t having panic attacks. I was lying on a bed, very calmly with my heart racing out of my chest. Which now has led them send me for #holtermonitor monitor testing. Otherwise, the ER is not diagnostic, and I was sent home with a few #betablockers. I decided to book a private cardiologist. I had an #echocardiogram (which you can see above) and #EKG test, and the doctor and I provoked my tachycardia. For the provocation of my tachycardia all I have to do is stand up from a resting position. In this case, I drank a cup of water, and 💥 - my HR was 135 and started at 70. My #bloodpressure was on the low normal range, but I almost passed out. The doctor said to me, I think you have #POTS. This stands for #postorthostatictachycardiasyndrome So, it appears that I had an infection. My #smallbowel MRI was clean. Now I have post-infectious #IBS and my body has gone into full overdrive and I have developed POTS! 
I now have to take the journey of getting this officially diagnosed in the Finnish public system, but the specialization here in Finland is not very good. I hope I’m heading in the right direction. 
Thank you all for the continued love and support! ❤️ #eds #ehlersdanlossyndrome #myedsstory #potssyndrome #chronicillnesswarrior #sibo #campylobacter #postinfectiousibs

️Health Update️ In August, I presented with severe intestinal inflammation. I had severe stomach pain, and a plethora of other random pains in my abdomen. I ended up in the hospital at the beginning of October, and I have been suffering ever since. I’ve lost 18 pounds. I have #anemia , a #hemorrhagiccyst cyst on my left ovary, and now have been experiencing horrific #tachycardia . My heart races during the night upwards of 150 bpm. I haven’t been able to sleep normally for weeks. Upon standing my HR shoots up to 120-130. If I try to eat or drink the same thing happens followed by a lot of stomach pain, dizziness, and sweating.  My life is severely impacted, and this has literally been hell. When the ️ palpitations started, I went to the emergency room several times. It comes with sweats, dizziness, dehydration, chest pain, anxiety, and so on. The last visit to the ER they finally discovered that I wasn’t having panic attacks. I was lying on a bed, very calmly with my heart racing out of my chest. Which now has led them send me for #holtermonitor monitor testing. Otherwise, the ER is not diagnostic, and I was sent home with a few #betablockers . I decided to book a private cardiologist. I had an #echocardiogram (which you can see above) and #EKG test, and the doctor and I provoked my tachycardia. For the provocation of my tachycardia all I have to do is stand up from a resting position. In this case, I drank a cup of water, and - my HR was 135 and started at 70. My #bloodpressure was on the low normal range, but I almost passed out. The doctor said to me, I think you have #POTS . This stands for #postorthostatictachycardiasyndrome So, it appears that I had an infection. My #smallbowel MRI was clean. Now I have post-infectious #IBS and my body has gone into full overdrive and I have developed POTS! I now have to take the journey of getting this officially diagnosed in the Finnish public system, but the specialization here in Finland is not very good. I hope I’m heading in the right direction. Thank you all for the continued love and support! #eds #ehlersdanlossyndrome #myedsstory #potssyndrome #chronicillnesswarrior #sibo #campylobacter #postinfectiousibs - 10 hours ago

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An epidemic. HAVE YOU BEEN IN THIS SITUATION? Once? A hundred times? Let me know. I’ll make your story heard. (Via buzzfeed) —— #lymedisease #lyme #lupus #autoimmune #pain #chronicpain #arthritis #rhumatoidarthritis #intracranialhypertension #trigeminalneuralgia #chiarimalformation #hydrocephalus #lymeawareness #eds #pots #mastcellactivationdisorder #spoonie #chronicpain #chronicfatigue

An epidemic. HAVE YOU BEEN IN THIS SITUATION? Once? A hundred times? Let me know. I’ll make your story heard. (Via buzzfeed) —— #lymedisease #lyme #lupus #autoimmune #pain #chronicpain #arthritis #rhumatoidarthritis #intracranialhypertension #trigeminalneuralgia #chiarimalformation #hydrocephalus #lymeawareness #eds #pots #mastcellactivationdisorder #spoonie #chronicpain #chronicfatigue - 10 hours ago

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#CHIARIAWARENESS 
WE NEED RESEARCH 
#chronicillness #invisibleillness 
#mentalillnessawareness 
#PHD4CG #purple 
#purplehairpleasecare #purplebeardspleasecare
#yesyourbraincanfallout #MssBrain #chiariwa
💜🧠💜🧠💜🧠💜🧠💜🧠💜🧠💜 #chiariawareness  #chiaristrong #fybro #EDS
#BALLOONEGGCHALLENGE  #chiariawarenessmonthglobal #chiaripetz #concussionawareness
#pink #theellenshow #sammac
#chiarirocks #PHD4CGmailboxes #adelaide #brandsa #ichoosesa #Australia

#CHIARIAWARENESS WE NEED RESEARCH #chronicillness #invisibleillness #mentalillnessawareness #PHD4CG #purple #purplehairpleasecare #purplebeardspleasecare #yesyourbraincanfallout #MssBrain #chiariwa 🧠🧠🧠🧠🧠🧠 #chiariawareness #chiaristrong #fybro #EDS #BALLOONEGGCHALLENGE #chiariawarenessmonthglobal #chiaripetz #concussionawareness #pink #theellenshow #sammac #chiarirocks #PHD4CGmailboxes #adelaide #brandsa #ichoosesa #Australia - 10 hours ago

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As a therapist, I discovered that I must work with my body, rather than against it; I must listen to its signs to rest and stop fighting against them. I learnt to understand and accept my body, and allow myself to be well rested enough to be the mummy that they deserve.

As a therapist, I discovered that I must work with my body, rather than against it; I must listen to its signs to rest and stop fighting against them. I learnt to understand and accept my body, and allow myself to be well rested enough to be the mummy that they deserve. - 10 hours ago

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So my world just got a hell of a lot bigger. Everyone, meet Queenie ✨👑✨ .
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#chronicallykawaii #chronicillness #babewithamobilityaid #gastroparesis #eds #ehlersdanlossyndrome #fibromyalgia #fibrowarrior  #mobility #electricwheelchair

So my world just got a hell of a lot bigger. Everyone, meet Queenie . . . . #chronicallykawaii #chronicillness #babewithamobilityaid #gastroparesis #eds #ehlersdanlossyndrome #fibromyalgia #fibrowarrior #mobility #electricwheelchair - 10 hours ago

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PERICARDITIS!!!!
Apperently I'm in a rather bad lupus flare. The lining around my heart is mildly inflamed, and now I'm on prednisone for 2 weeks...... Gotta love chronic Illness.

#pericarditis #lupus #lupusflare #sle #prednisone #eds #heds #elhersdanlossyndrome #chronicillness #chronicinsta #chronicpainlife #chronicpain #autoimmunedisease

PERICARDITIS!!!! Apperently I'm in a rather bad lupus flare. The lining around my heart is mildly inflamed, and now I'm on prednisone for 2 weeks...... Gotta love chronic Illness. #pericarditis #lupus #lupusflare #sle #prednisone #eds #heds #elhersdanlossyndrome #chronicillness #chronicinsta #chronicpainlife #chronicpain #autoimmunedisease - 10 hours ago

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🎵🎶I’ve followed the #PS22Chorus for years and they always lift my spirits!  They’re amazing!🎶🎵
•••@get_Repost with @theps22chorus•••
The PS22 Chorus of 2019 is already making a lasting impression, and this phenomenal #performance of #THISISME from @greatestshowman (by @pasekandpaul ) is proof positive!  Special props to soloist Janiel whom, it should be noted, didn't speak a word of English two years ago!  Now go click on www.facebook.com/ps22chorus and watch the full performance!!
•••🔗•••
Check out my bio for my link tree 🌳 to my website 🕸, Redbubble 🔴 & where you can register your consent to be an #OrganDonor🌀!
•••✌🏻️❤️♻️•••
✔️Registered organ donor since 1994.  #DonateLife #OrganTransplant #GiftOfLife #RecycleYourself #MakeLifePossible  #PeaceLoveRecycle #D0n8life 🦋
•••🚑•••
#GIDysfunction #GJTube #Tubie #AutonomicDysfunction #hEDS #EDS #PituitaryAdenoma #PancreaticTumor #EndStageLiverDisease #ChronicPain #Spoonie #Migraine #CognitiveDysfunction

I’ve followed the #PS22Chorus for years and they always lift my spirits! They’re amazing! •••@get_Repost with @theps22chorus ••• The PS22 Chorus of 2019 is already making a lasting impression, and this phenomenal #performance of #THISISME from @greatestshowman (by @pasekandpaul ) is proof positive! Special props to soloist Janiel whom, it should be noted, didn't speak a word of English two years ago! Now go click on www.facebook.com/ps22chorus and watch the full performance!! •••••• Check out my bio for my link tree 🌳 to my website 🕸, Redbubble & where you can register your consent to be an #OrganDonor ! •••🏻️️••• ️Registered organ donor since 1994. #DonateLife #OrganTransplant #GiftOfLife #RecycleYourself #MakeLifePossible #PeaceLoveRecycle #D0n8life 🦋 •••••• #GIDysfunction #GJTube #Tubie #AutonomicDysfunction #hEDS #EDS #PituitaryAdenoma #PancreaticTumor #EndStageLiverDisease #ChronicPain #Spoonie #Migraine #CognitiveDysfunction - 10 hours ago

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When I’m struggling and withdrawn means the most to know I’m not truly as invisible and detached as I feel from my life, that of those around my and the world. Something as small as a fast hi, a quick check in can mean the world when I feel like I have disappeared, lost my life and that no one cares and I have been left behind. 
#chronicillness #chronicpain #invisiablediseases #disability #SLE #lupus #EDS #vasculitis #gastroparesis #dysautonomia #POTS #interstitialcystitis #fibro #cysticovary #chronicmigraines
#IMISSTHEOLDME #IWANTMYLIFEBACK

When I’m struggling and withdrawn means the most to know I’m not truly as invisible and detached as I feel from my life, that of those around my and the world. Something as small as a fast hi, a quick check in can mean the world when I feel like I have disappeared, lost my life and that no one cares and I have been left behind. #chronicillness #chronicpain #invisiablediseases #disability #SLE #lupus #EDS #vasculitis #gastroparesis #dysautonomia #POTS #interstitialcystitis #fibro #cysticovary #chronicmigraines #IMISSTHEOLDME #IWANTMYLIFEBACK - 11 hours ago

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Share your voice (Confessions of a Professional Patient) - new website coming soon once I feel a bit better. To the newbies- I’m katie, I have Lyme and a whole lot of other things. I know what it feels like to be torn down and dismissed by those meant to help us, and know it needs to change desperately. If you have a story regarding poor treatment by a medical professional in any way shape or form, I post your stories on the blog section of my website for people to see the severity and complexity of this issue in healthcare. You can email me at coappadvocacy@gmail.com or DM.

Share your voice (Confessions of a Professional Patient) - new website coming soon once I feel a bit better. To the newbies- I’m katie, I have Lyme and a whole lot of other things. I know what it feels like to be torn down and dismissed by those meant to help us, and know it needs to change desperately. If you have a story regarding poor treatment by a medical professional in any way shape or form, I post your stories on the blog section of my website for people to see the severity and complexity of this issue in healthcare. You can email me at coappadvocacy@gmail.com or DM. - 12 hours ago

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#COAPP #medicalabuse #medicalmaltreatment #medicalneglect #corruptmedicalsystem #chronicillness #chronichope #chronicpain #speakup #abuse #tellyourstory #yourpainisreal #youmatter #ibelieveyou #spoonie #sick #chronicallyill #chronicallysick #hospitallife #spoonielife #doctorssuck #opioidcrisis #painmanagement #FDA #CDC #lymedisease #EDS #POTS

#COAPP #medicalabuse #medicalmaltreatment #medicalneglect #corruptmedicalsystem #chronicillness #chronichope #chronicpain #speakup #abuse #tellyourstory #yourpainisreal #youmatter #ibelieveyou #spoonie #sick #chronicallyill #chronicallysick #hospitallife #spoonielife #doctorssuck #opioidcrisis #painmanagement #FDA #CDC #lymedisease #EDS #POTS - 12 hours ago

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Complex Regional Pain Syndrome, CRPS is the most painful condition known to human existence. It is a disease of the nervous system, starting after an injury on a limb. Anyone can get it, and once you get it, it can spread to anywhere on the body – including the brain, eyes, and ears.
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Learn more facts: https://complextruths.org/
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The human body is connected together by bones, ligaments, muscle and skin. The tissue that connects them together is called ‘connective tissue’. This connective tissue ‘connects’ everything in our body – joints, skin, ligaments, intestines, and muscles. But when this connective tissue is weak, it stretches easily and breaks, and once it breaks, it doesn’t heal. With EDS, you get weak scars, that don’t heal well. .
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With Joint  position sense (Proprioception) these patients tend to lose their balance easily, and when they lose balance, the body tends to counteract by straining other muscles, causing improper use of muscles leading to fatigue, tiredness and pain. It is helpful to wear tight compression clothes to help the brain understand the position of the body parts, muscles.
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If you have a child that can do these things, the best thing you can do for them is tell them to stop. Stop stretching that connective tissue because it doesn’t heal and the last thing you want, if you have CRPS, is your child to get hurt. .
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This information is based on “Management of complex pain in children and adults with EDS and CRPS” by Dr. Pradeep Chopra - Assistant Professor (Clinical) Brown Medical School. USA .
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ComplexTruths, Inc., and Quick Facts are for educational purposes only and are not intended to take as medical advice.
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#complextruths #phoenix #CRPS1Name #crps #rsd  #invisibleillness #pain #chronicpain #neridronate #clinicaltrials
#invisibleillness #rsdcrps #spoonies #crpsawarenessmonth #crpsawareness #spoonie #rsds #name #crpswarriors #invisibledisease #crpsforum #crpsorangeday #humanity #painmanagement #kratom #scleroderma #fibro #hurt #eds #hypermobile

Complex Regional Pain Syndrome, CRPS is the most painful condition known to human existence. It is a disease of the nervous system, starting after an injury on a limb. Anyone can get it, and once you get it, it can spread to anywhere on the body – including the brain, eyes, and ears. . . Learn more facts: https://complextruths.org/ . . The human body is connected together by bones, ligaments, muscle and skin. The tissue that connects them together is called ‘connective tissue’. This connective tissue ‘connects’ everything in our body – joints, skin, ligaments, intestines, and muscles. But when this connective tissue is weak, it stretches easily and breaks, and once it breaks, it doesn’t heal. With EDS, you get weak scars, that don’t heal well. . . With Joint position sense (Proprioception) these patients tend to lose their balance easily, and when they lose balance, the body tends to counteract by straining other muscles, causing improper use of muscles leading to fatigue, tiredness and pain. It is helpful to wear tight compression clothes to help the brain understand the position of the body parts, muscles. . . If you have a child that can do these things, the best thing you can do for them is tell them to stop. Stop stretching that connective tissue because it doesn’t heal and the last thing you want, if you have CRPS, is your child to get hurt. . . This information is based on “Management of complex pain in children and adults with EDS and CRPS” by Dr. Pradeep Chopra - Assistant Professor (Clinical) Brown Medical School. USA . . ComplexTruths, Inc., and Quick Facts are for educational purposes only and are not intended to take as medical advice. . . #complextruths #phoenix #CRPS1Name #crps #rsd #invisibleillness #pain #chronicpain #neridronate #clinicaltrials #invisibleillness #rsdcrps #spoonies #crpsawarenessmonth #crpsawareness #spoonie #rsds #name #crpswarriors #invisibledisease #crpsforum #crpsorangeday #humanity #painmanagement #kratom #scleroderma #fibro #hurt #eds #hypermobile - 12 hours ago

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🖤 "Did somebody punch me in the face while I wasn't paying attention or do I have yet another sinus infection?" A novel by me. 🖤 [Image Description: A black and white photograph of Kiri standing in front of her window with the shadow of the window screen criss crossing her body. She has a blunt fringe, is wearing makeup and a dress with straps across the chest.] #selfie #self #blackandwhite #restingbitchface #spoonie #chronicillness #saturday #throwback #alternative #weirdo #strangeandunusual #eds #chronicpain #instagram #blah #headache #sinusfuckery

🖤 "Did somebody punch me in the face while I wasn't paying attention or do I have yet another sinus infection?" A novel by me. 🖤 [Image Description: A black and white photograph of Kiri standing in front of her window with the shadow of the window screen criss crossing her body. She has a blunt fringe, is wearing makeup and a dress with straps across the chest.] #selfie #self #blackandwhite #restingbitchface #spoonie #chronicillness #saturday #throwback #alternative #weirdo #strangeandunusual #eds #chronicpain #instagram #blah #headache #sinusfuckery - 12 hours ago

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The feeling when you injure yourself after you infuse. Not today, baby
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#vonwillebrandstype3 #vonwillebrands #hemophilia #bleedingdisorders #brave #bleederproblems #haemophilia #haemopiliaproblems #hemomomlife #bleeding  #chronicillness #hemophiliaproblems #hemolife #chronicillnessproblems #infusions #ehlersdanlossyndrome #bruised #medical #chronicloveclub #bleeding #medicallife #hospital #eds #nurses #infuse #bleeding #bruisednotbroken #bruisedandbrave #medical #typethreegirl

The feeling when you injure yourself after you infuse. Not today, baby - - - - #vonwillebrandstype3 #vonwillebrands #hemophilia #bleedingdisorders #brave #bleederproblems #haemophilia #haemopiliaproblems #hemomomlife #bleeding #chronicillness #hemophiliaproblems #hemolife #chronicillnessproblems #infusions #ehlersdanlossyndrome #bruised #medical #chronicloveclub #bleeding #medicallife #hospital #eds #nurses #infuse #bleeding #bruisednotbroken #bruisedandbrave #medical #typethreegirl - 12 hours ago

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A Social Network for #chronicillness

Did you know The TIREDGIRL Society runs a little like a social network?

When you sign up you get a Profile that you can build up however you want.  Your city, chronic illness story, favorite clubs, send private messages, add friendships and even the badges that you earn as a member.

Badges?  Yip - we are serious about calebrating ALL the small wins here and happily hand out badges to our members who complete creative projects, are superstars in our clubs and are students in our upcoming Home-School. (That's a super exciting announcing coming soon!) Visit our social wall where you can see all our members and start to build friendships 🌸

When your in the clubs, you can tag other members just like in Instagram using @username. 
So if you're looking to connect with friends who have chronic illness, this is the place :) P.s  We have our first online Party coming up!  You in?

A Social Network for #chronicillness Did you know The TIREDGIRL Society runs a little like a social network? When you sign up you get a Profile that you can build up however you want. Your city, chronic illness story, favorite clubs, send private messages, add friendships and even the badges that you earn as a member. Badges? Yip - we are serious about calebrating ALL the small wins here and happily hand out badges to our members who complete creative projects, are superstars in our clubs and are students in our upcoming Home-School. (That's a super exciting announcing coming soon!) Visit our social wall where you can see all our members and start to build friendships When your in the clubs, you can tag other members just like in Instagram using @username. So if you're looking to connect with friends who have chronic illness, this is the place :) P.s We have our first online Party coming up! You in? - 12 hours ago

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This #quote spoke to me in many ways. Mostly, when I feel like I don't belong in certain places because I'm sick :/ ~

#quote #poem #inspirationalquotes #motivation #positivethinking #chronicillness #EDS #dysautonomia #spoonie #photography #sky

This #quote spoke to me in many ways. Mostly, when I feel like I don't belong in certain places because I'm sick :/ ~ #quote #poem #inspirationalquotes #motivation #positivethinking #chronicillness #EDS #dysautonomia #spoonie #photography #sky - 12 hours ago

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Another snap of yesterday’s breakfast because it’s prettier than this mornings one!
Swipe for what this morning looked like.
Gosh I’m so tired! I was so grateful to past me that I’d made these and they were sitting in the fridge waiting for me! And delicious as usual- maybe even more so than normal! Macadamia butter oats topped with defrosted wild blueberries. So good!

Another snap of yesterday’s breakfast because it’s prettier than this mornings one! Swipe for what this morning looked like. Gosh I’m so tired! I was so grateful to past me that I’d made these and they were sitting in the fridge waiting for me! And delicious as usual- maybe even more so than normal! Macadamia butter oats topped with defrosted wild blueberries. So good! - 12 hours ago

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Kelas Google Terakhir 😀

#seo #sem #google #website #eds #ugm

Kelas Google Terakhir 😀 #seo #sem #google #website #eds #ugm - 13 hours ago

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Taking a break till next week candle making wise. My legs are in so much pain from storms that are coming tomorrow. I have a few ready to go so don’t hesitate to ask me questions about them. Having a physical issue is sometimes a downer but then I remember what I have learned from my days I have been down. Growth isn’t a breeze it’s fighting through the shit you never thought you would have to. Makes us stronger. #eds #ebv #pain #strength #goddess #warrior #power #wegotthis

Taking a break till next week candle making wise. My legs are in so much pain from storms that are coming tomorrow. I have a few ready to go so don’t hesitate to ask me questions about them. Having a physical issue is sometimes a downer but then I remember what I have learned from my days I have been down. Growth isn’t a breeze it’s fighting through the shit you never thought you would have to. Makes us stronger. #eds #ebv #pain #strength #goddess #warrior #power #wegotthis - 13 hours ago

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Well after tensing the hell out of the back of my legs now the front is acting up and causing pain in my knee so time for a session on the front. Did great all day up until this evening. #alternativetreatment #drhos #tens #tensmachine #paincontrol #eds #ehlersdanlossyndrome #hypermobility #zebra #zebralife #zebraforlife #zebramovement #invisibleillness #girlsgotink

Well after tensing the hell out of the back of my legs now the front is acting up and causing pain in my knee so time for a session on the front. Did great all day up until this evening. #alternativetreatment #drhos #tens #tensmachine #paincontrol #eds #ehlersdanlossyndrome #hypermobility #zebra #zebralife #zebraforlife #zebramovement #invisibleillness #girlsgotink - 13 hours ago

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#7: Chest Pain
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#ptsd #cptsd #chestpain #trauma #eds #heart #instadaily #dailycomic #webcomic #webcomics #traumarecovery #webcartoon #partstherapy #autobiocomics #digitalart #comic #comics #chronicillness #ehlersdanlossyndrome #ehlersdanlos #funny #humour

#7 : Chest Pain . . . . . #ptsd #cptsd #chestpain #trauma #eds #heart #instadaily #dailycomic #webcomic #webcomics #traumarecovery #webcartoon #partstherapy #autobiocomics #digitalart #comic #comics #chronicillness #ehlersdanlossyndrome #ehlersdanlos #funny #humour - 13 hours ago

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#chronicpain#ednos#edsoldier#anorexia#anorexiarecovery#recovery#anxiety#ptsd#bipolardisorder#bipolartypetwo#bpd#eds#eds3#ehlersdanlossyndrome#pots#invisibleillness#chronicillness#selflove#anorexiarecovery#quoteoftheday#quote#childhoodemotionalneglect#traumarecovery#trauma#quote#quoteoftheday

_______________________________________ #chronicpain #ednos #edsoldier #anorexia #anorexiarecovery #recovery #anxiety #ptsd #bipolardisorder #bipolartypetwo #bpd #eds #eds3 #ehlersdanlossyndrome #pots #invisibleillness #chronicillness #selflove #anorexiarecovery #quoteoftheday #quote #childhoodemotionalneglect #traumarecovery #trauma #quote #quoteoftheday - 13 hours ago

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Two years ago I had the opportunity to travel to Madrid, Granada, & Paris. It was a dream come true for me. •The only downside was my uncle had just died from addiction, my friend died of MS, & I got diagnosed with HEDS. •It wasn't all in my head like most doctors kept telling me. At first I didn't think EDS was a big deal to live with until I looked up the symptoms & realized I'd been living with EDS all my life--not to mention other things eds can come with like POTS, MCAS & raynuads, just to name a few. •I won't be travelling in the future but I'm glad I did before my symptoms got worse ~
#EDS #chronicloveclub #staystrong #medicalzebra #spoonie #zebrastrong 
#healthjourney #invisibleillness #chronicpain  #smilethroughthepain 
#raredisease #spoonielife #chronicallyill #butyoudontlooksick #keepthefaith #Paris #photography #travel

Two years ago I had the opportunity to travel to Madrid, Granada, & Paris. It was a dream come true for me. •The only downside was my uncle had just died from addiction, my friend died of MS, & I got diagnosed with HEDS. •It wasn't all in my head like most doctors kept telling me. At first I didn't think EDS was a big deal to live with until I looked up the symptoms & realized I'd been living with EDS all my life--not to mention other things eds can come with like POTS, MCAS & raynuads, just to name a few. •I won't be travelling in the future but I'm glad I did before my symptoms got worse ~ #EDS #chronicloveclub #staystrong #medicalzebra #spoonie #zebrastrong #healthjourney #invisibleillness #chronicpain #smilethroughthepain #raredisease #spoonielife #chronicallyill #butyoudontlooksick #keepthefaith #Paris #photography #travel - 13 hours ago

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Oh the beauty! Just kidding. Still hurts a lot but manageable. Thank you for all your prayers during this time for our family and for me! Joe has been such a blessing these past few days. I don’t know what I would do with out such a wonderful husband & understanding kids. Thankful for my parents help too. ❤️🙏🏻 After the nerve block didn’t help I’m finally dealing with more manageable pain. It was pretty bad for a while but I think we’re on the upswing. Monday I get my cast off and then get my Darth Vader cast on or at least that’s what my doctor calls it. LOL i’m really looking forward to getting back to feeling normal and hopefully putting on some make up soon and that always makes me feel better!💋 •
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#ehlersdanlossyndrome #eds #hypermobility #thumbfusion #dequarvainsyndrome #multiplesclerosis #rrms #zebra #makeplover #makeaddict #missingmakeup #chronicillness #chronicfatigue #chronicpain #warrior #thistoshallpass #chronicallyfabulous

Oh the beauty! Just kidding. Still hurts a lot but manageable. Thank you for all your prayers during this time for our family and for me! Joe has been such a blessing these past few days. I don’t know what I would do with out such a wonderful husband & understanding kids. Thankful for my parents help too. 🏻 After the nerve block didn’t help I’m finally dealing with more manageable pain. It was pretty bad for a while but I think we’re on the upswing. Monday I get my cast off and then get my Darth Vader cast on or at least that’s what my doctor calls it. LOL i’m really looking forward to getting back to feeling normal and hopefully putting on some make up soon and that always makes me feel better! • • #ehlersdanlossyndrome #eds #hypermobility #thumbfusion #dequarvainsyndrome #multiplesclerosis #rrms #zebra #makeplover #makeaddict #missingmakeup #chronicillness #chronicfatigue #chronicpain #warrior #thistoshallpass #chronicallyfabulous - 13 hours ago

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Sometimes your just dont know. 
Normally, you worry about fevers, but I have to check to make sure I stay out of the "too cold zone", even if I feel 'normal' (normal for a person with a chronic illness that is). Havn't had any real issues with a normal-low temperature, except when I go to the doctor and my temp is at 98 or 99 and I try to tell them that's high for me, they dismiss it.

I dont feel cold often, I just worry about what this means for my circulation and organs. Already having an absorption issue with hydration and nutrition, it's just another thing to add to the list of what could go wrong. A bit of Murphy's Law.

#ehlersdanlossyndrome #EDS #cEDS #zebrastrong #chronicillness #chroniclyill #connectivetissuedisorder

Sometimes your just dont know. Normally, you worry about fevers, but I have to check to make sure I stay out of the "too cold zone", even if I feel 'normal' (normal for a person with a chronic illness that is). Havn't had any real issues with a normal-low temperature, except when I go to the doctor and my temp is at 98 or 99 and I try to tell them that's high for me, they dismiss it. I dont feel cold often, I just worry about what this means for my circulation and organs. Already having an absorption issue with hydration and nutrition, it's just another thing to add to the list of what could go wrong. A bit of Murphy's Law. #ehlersdanlossyndrome #EDS #cEDS #zebrastrong #chronicillness #chroniclyill #connectivetissuedisorder - 13 hours ago

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so i got a job, can you guess where? and, as you can see, oakley comes along as well! today was my second day, but his first, and WOW! i have to say, i was completely blown away by both his and #target’s behavior. in just one day, the staff has proved to be ridiculously accommodating, caring, and welcoming. i definitely feel like oakley and i are part of the team, and it’s so nice to know that the people i work with are there if i need them. this job is seasonal, but fingers crossed i’ll be able to continue working at target (whether this location or another!) in the future. 
as for oakley, he did amazing! i wasn’t sure what exactly to do to prepare him, but he still was incredible! his biggest issue was with getting distracted, but people kept talking to and/or petting him and i was too nervous to ask them not to. it’s something we’re going to work extra hard on, but we’ve also decided that at my register (i’m a cashier), we’ll keep a sign up that says something along the lines of “please ignore the dog”, which hopefully will help! aside from getting distracted some, oakley settled really well and actually interrupted and responded well to oncoming panic attacks! the shift was 3.5hrs, and tomorrow i’m working 5, so hopefully he does this well again! 
hands down, if you’re looking for a job with your SD, i highly recommend target
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check out my shop! @doodlesanddoodle
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follow my pawtners!🐾
@service.dog.halo
@aurora.taylor
@sditventus
@the.gsd.oakley
@heckinhound
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#aussiedoodle#aussiepoo#dogsofig#dogsofinstagram#dogsofnewyork#dogsofny#doodlesofinstagram#doodlesofnewyork#doodlesofny#servicedog#servicedogsofinstagram#servicedogsofig#sdit#servicedogintraining#psychiatricservicedog#psd#psdit#psychiatricservicedogintraining#mobilitysupportdog#medicalalertdog#actuallyanxious#actuallybipolar#eds#ehlersdanlos#ehlersdanlossyndrome#hypermobilitysyndrome#dysautonomia#chronicallyill

so i got a job, can you guess where? and, as you can see, oakley comes along as well! today was my second day, but his first, and WOW! i have to say, i was completely blown away by both his and #target ’s behavior. in just one day, the staff has proved to be ridiculously accommodating, caring, and welcoming. i definitely feel like oakley and i are part of the team, and it’s so nice to know that the people i work with are there if i need them. this job is seasonal, but fingers crossed i’ll be able to continue working at target (whether this location or another!) in the future. as for oakley, he did amazing! i wasn’t sure what exactly to do to prepare him, but he still was incredible! his biggest issue was with getting distracted, but people kept talking to and/or petting him and i was too nervous to ask them not to. it’s something we’re going to work extra hard on, but we’ve also decided that at my register (i’m a cashier), we’ll keep a sign up that says something along the lines of “please ignore the dog”, which hopefully will help! aside from getting distracted some, oakley settled really well and actually interrupted and responded well to oncoming panic attacks! the shift was 3.5hrs, and tomorrow i’m working 5, so hopefully he does this well again! hands down, if you’re looking for a job with your SD, i highly recommend target _ - check out my shop! @doodlesanddoodle - follow my pawtners! @service.dog.halo @aurora.taylor @sditventus @the.gsd.oakley @heckinhound - - #aussiedoodle #aussiepoo #dogsofig #dogsofinstagram #dogsofnewyork #dogsofny #doodlesofinstagram #doodlesofnewyork #doodlesofny #servicedog #servicedogsofinstagram #servicedogsofig #sdit #servicedogintraining #psychiatricservicedog #psd #psdit #psychiatricservicedogintraining #mobilitysupportdog #medicalalertdog #actuallyanxious #actuallybipolar #eds #ehlersdanlos #ehlersdanlossyndrome #hypermobilitysyndrome #dysautonomia #chronicallyill - 14 hours ago

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Day 15: What would you say to people newly diagnosed with this illness?
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(Old photo) People say this all the time but, don't give up. Fight for the medical care you need and deserve. Don't stop searching for answers either or your never going to get any. Surround yourself with positive people along with doing what you love. You haven't come this far to ONLY come this far.
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#spoonie #spooniezebra #sendingspoons #chronicallyill #chronicillness #chronicillnesses #chronicallyloved #chronicillnesswarrior #chronicillnessfighter #chronicillnesseswarrior #chronicillnessesfighter #cvid #comminvariableimmunedefficiency #immunedisorder  #hashimotos #autoimmunedisease #thyroid #thyroiddisease #pots #potsie #posturalorthostatictachycardiasyndrome #mcas #mastcellactivationsyndrome #eds #edswarrior #ehrlersdanlos #ehrlersdanlossyndrome

Day 15: What would you say to people newly diagnosed with this illness? ✰✰ (Old photo) People say this all the time but, don't give up. Fight for the medical care you need and deserve. Don't stop searching for answers either or your never going to get any. Surround yourself with positive people along with doing what you love. You haven't come this far to ONLY come this far. ✰✰ #spoonie #spooniezebra #sendingspoons #chronicallyill #chronicillness #chronicillnesses #chronicallyloved #chronicillnesswarrior #chronicillnessfighter #chronicillnesseswarrior #chronicillnessesfighter #cvid #comminvariableimmunedefficiency #immunedisorder   #hashimotos #autoimmunedisease #thyroid #thyroiddisease #pots #potsie #posturalorthostatictachycardiasyndrome #mcas #mastcellactivationsyndrome #eds #edswarrior #ehrlersdanlos #ehrlersdanlossyndrome - 14 hours ago

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A #spoonie view of a forced #tea break. Traffic was horrible on the way home. I couldn’t deal with the #pain of the stop and go, so I pulled off to @princecoffeepdx for a spell. #write #writersofinstagram #chronicpain #chronicillness #writerscommunity #writer #pdx #portland#oregon #ehlersdanlossyndrome #eds #break #authorsofinstagram #teatime #earlgrey #cane

A #spoonie view of a forced #tea break. Traffic was horrible on the way home. I couldn’t deal with the #pain of the stop and go, so I pulled off to @princecoffeepdx for a spell. #write #writersofinstagram #chronicpain #chronicillness #writerscommunity #writer #pdx #portland #oregon #ehlersdanlossyndrome #eds #break #authorsofinstagram #teatime #earlgrey #cane - 14 hours ago

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#kamuning
#eds

#kamuning #eds - 15 hours ago

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I’ve been MIA here for the most part, but it’s not because I’m not thankful, it’s because this week has been full of lying still in a dark room waking for the herxes to subside, and detoxing as much as possible.
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Given that’s the case, I’m even MORE thankful than usual for impromptu date nights. We weren’t planning this, but once I finally had a break from herxing and my kratom helped boost my energy, we made it to @booksamillion to look for a Christmas puzzle (and a new Christmas record, but they weren’t out yet...but the puzzles were!).
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I thought this sign in pic 1 was too perfect NOT to hold up for a pic. Because my body was screaming at me at this point, but I was choosing the joy of embracing and enjoying date night with Rog, so that’s tonight’s “30 days of thankfulness with a chronic illness twist”: Impromptu date nights after a rough week–something I took for granted before I was bed- and wheelchair-ridden, but will never take for granted again, because they’re not always possible.
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Pic 2: Still choosing joy, even though I’m back to being flat in bed.

I’ve been MIA here for the most part, but it’s not because I’m not thankful, it’s because this week has been full of lying still in a dark room waking for the herxes to subside, and detoxing as much as possible. – Given that’s the case, I’m even MORE thankful than usual for impromptu date nights. We weren’t planning this, but once I finally had a break from herxing and my kratom helped boost my energy, we made it to @booksamillion to look for a Christmas puzzle (and a new Christmas record, but they weren’t out yet...but the puzzles were!). – I thought this sign in pic 1 was too perfect NOT to hold up for a pic. Because my body was screaming at me at this point, but I was choosing the joy of embracing and enjoying date night with Rog, so that’s tonight’s “30 days of thankfulness with a chronic illness twist”: Impromptu date nights after a rough week–something I took for granted before I was bed- and wheelchair-ridden, but will never take for granted again, because they’re not always possible. – Pic 2: Still choosing joy, even though I’m back to being flat in bed. - 15 hours ago

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Tis the season of shopping! 🛍 If you don’t use smile.amazon or ready to help out DAF you can start now with a simple click and add! *
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#dysautonomia #teamdaf #dysautonomiaawareness #ehlersdanlossyndrome #mito #chronicillness #teamdaf #invisableillness #mastcell #mastcelldisease #gastroparesis  #sickofbeingsick  #sick #ehlersdanlos #potsie #potsies #potsy #pots #eds #tachycardia #lowbloodpressure #mitochondrialdisease #autonomicdysfunction #salty #highbloodpressure

Tis the season of shopping! 🛍 If you don’t use smile.amazon or ready to help out DAF you can start now with a simple click and add! * * * #dysautonomia #teamdaf #dysautonomiaawareness #ehlersdanlossyndrome #mito #chronicillness #teamdaf #invisableillness #mastcell #mastcelldisease #gastroparesis #sickofbeingsick #sick #ehlersdanlos #potsie #potsies #potsy #pots #eds #tachycardia #lowbloodpressure #mitochondrialdisease #autonomicdysfunction #salty #highbloodpressure - 15 hours ago

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A full day out! I'm exhausted....waiting in the car while Drew is picking up my meds like the hero he is. It was a lovely date day that included a giant box of Voodoo Doughnuts (that we haven't touched yet because I stuffed my belly with delicious tacos) and then a bunch of shopping... beautiful fall dresses (maybe I'll show them off later) and some smelly good lotions. My husband is NOT a fan of shopping at all, but it was his idea since I haven't left home in so long to treat myself. Such a sweetheart. Mission accomplished....I feel like a queen! A queen who needs a ton of pain-killers and sleep. I'm happy though. Thank you so much, @sub_sides ! 💜
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[ID: 1st pic is April, a white female with brown shoulder length hair and glasses smiling with her head tilted to the right. She is sitting in a wheelchair and has 2 thumbs up. She's wearing a light pink sweater, gray leggings, and boots. There is a pink box of doughnuts in her lap. Next to her is a tall sign of a brown doughnut man that says Voodoo Doughnuts on it. 2nd pic is Drew, a white male with longish brown hair and a gray hoodie pushing April in a wheelchair. 3rd pic is April in a parked car. A gray seat belt crosses her chest.]
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#eds #ehlersdanlos #ehlersdanlossyndrome #edslife #hypermobileeds #edsawareness #thingssickpeopledo #heds #notaspoonie #wheelchair #wheelchairlife #disability #disabled #voodoodonuts #chronicallyill #chronicillness #invisibleillness #husband #husbandandwife #chronicpain #sickpeopledoingthings #endpillshaming #disabledlife #babeswithmobilityaids #ilovehim #forkyourspoons #cpunk #disabledandcute #cripplepunk #babewithamobilityaid

A full day out! I'm exhausted....waiting in the car while Drew is picking up my meds like the hero he is. It was a lovely date day that included a giant box of Voodoo Doughnuts (that we haven't touched yet because I stuffed my belly with delicious tacos) and then a bunch of shopping... beautiful fall dresses (maybe I'll show them off later) and some smelly good lotions. My husband is NOT a fan of shopping at all, but it was his idea since I haven't left home in so long to treat myself. Such a sweetheart. Mission accomplished....I feel like a queen! A queen who needs a ton of pain-killers and sleep. I'm happy though. Thank you so much, @sub_sides ! . . [ID: 1st pic is April, a white female with brown shoulder length hair and glasses smiling with her head tilted to the right. She is sitting in a wheelchair and has 2 thumbs up. She's wearing a light pink sweater, gray leggings, and boots. There is a pink box of doughnuts in her lap. Next to her is a tall sign of a brown doughnut man that says Voodoo Doughnuts on it. 2nd pic is Drew, a white male with longish brown hair and a gray hoodie pushing April in a wheelchair. 3rd pic is April in a parked car. A gray seat belt crosses her chest.] . . . #eds #ehlersdanlos #ehlersdanlossyndrome #edslife #hypermobileeds #edsawareness #thingssickpeopledo #heds #notaspoonie #wheelchair #wheelchairlife #disability #disabled #voodoodonuts #chronicallyill #chronicillness #invisibleillness #husband #husbandandwife #chronicpain #sickpeopledoingthings #endpillshaming #disabledlife #babeswithmobilityaids #ilovehim #forkyourspoons #cpunk #disabledandcute #cripplepunk #babewithamobilityaid - 15 hours ago

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Today's Stupidity Award is going to the woman I rung up at work that asked invasive health questions to me and Gale and then says "my sons dog has really bad separation anxiety from my son. Does that make him eligible to be a service dog?" She was dead serious. I had to hide the dumbstruck look on my face when she asked this. I politely told her how you have to be ya know... disabled to have a SERVICE dog. Which she rolled her eyes at and then started bitching and me and a coworker about the color of her shoes???? It's was a weird night.🤦‍♀️ on the bright side Gale let me put an onion ring around her snout without even trying to lick it 😂 then I ate it and she was offended but oh well HAH#servicedog #bordercollie #bordercollieSD #MultipurposeSD #alwaystraining #galetheBC #ehlerdanlos #EDS #medicalresponse #girlsbestfriends #lifeline #imalleyes #mentalhealth #endthestigma #depression #OCD #generalizedanxietydisorder #panicdisorders #BP2 #bipolar #PTSD  #borderlinepersonality #invisibleillnesses #mentalillnesses #spoonielife

Today's Stupidity Award is going to the woman I rung up at work that asked invasive health questions to me and Gale and then says "my sons dog has really bad separation anxiety from my son. Does that make him eligible to be a service dog?" She was dead serious. I had to hide the dumbstruck look on my face when she asked this. I politely told her how you have to be ya know... disabled to have a SERVICE dog. Which she rolled her eyes at and then started bitching and me and a coworker about the color of her shoes???? It's was a weird night.🤦‍♀️ on the bright side Gale let me put an onion ring around her snout without even trying to lick it then I ate it and she was offended but oh well HAH#servicedog #bordercollie #bordercollieSD #MultipurposeSD #alwaystraining #galetheBC #ehlerdanlos #EDS #medicalresponse #girlsbestfriends #lifeline #imalleyes #mentalhealth #endthestigma #depression #OCD #generalizedanxietydisorder #panicdisorders #BP2 #bipolar #PTSD #borderlinepersonality #invisibleillnesses #mentalillnesses #spoonielife - 15 hours ago

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My Disneyland Christmas tree is finished or at least as finished as it is ever going to be

Actually finished it a few weeks ago and had planned to work on it some more but as that has become almost impossible, here it is. Luckily I really like how it turned out. 
Unfortunately I did find myself on my back a couple of times last night, so my chest is burning today and my diaphragm is becoming more and more “numb” so I find myself hyperventilating sometimes because I can’t tell how deeply I have breathed. 
I made banana bread 🍞 again today. Or tried too.... i don’t know how what happened. This has never happened before but it all turned black and looked incinerated. My dad says it tastes fine but just looks ugly. 
At fever check in today it was 100.8. 
Progression update:

My right arm is progressing again. My shoulder feels like I am being stabbed whenever I move it and my hand control is getting really bad. I can still grab light things but any resistance or weight and I cannot do it. 
It constantly hurts, but that has been a while of that, but now the whole arm burns all the time. The closest thing I can think to compare it too is what I imagine it to feel like to be sore after a workout. 
Also the past few days my neck/head has been hurting extra and feels “wobbly”. I don’t really know how to explain but it just feels like it is constantly moving and doesn’t want to stay straight. 
On s much happier note my mom and I are headed to Disneyland tomorrow morning. I am so excited and am looking forward to all the Christmas decorations.

My Disneyland Christmas tree is finished or at least as finished as it is ever going to be Actually finished it a few weeks ago and had planned to work on it some more but as that has become almost impossible, here it is. Luckily I really like how it turned out. Unfortunately I did find myself on my back a couple of times last night, so my chest is burning today and my diaphragm is becoming more and more “numb” so I find myself hyperventilating sometimes because I can’t tell how deeply I have breathed. I made banana bread again today. Or tried too.... i don’t know how what happened. This has never happened before but it all turned black and looked incinerated. My dad says it tastes fine but just looks ugly. At fever check in today it was 100.8. Progression update: My right arm is progressing again. My shoulder feels like I am being stabbed whenever I move it and my hand control is getting really bad. I can still grab light things but any resistance or weight and I cannot do it. It constantly hurts, but that has been a while of that, but now the whole arm burns all the time. The closest thing I can think to compare it too is what I imagine it to feel like to be sore after a workout. Also the past few days my neck/head has been hurting extra and feels “wobbly”. I don’t really know how to explain but it just feels like it is constantly moving and doesn’t want to stay straight. On s much happier note my mom and I are headed to Disneyland tomorrow morning. I am so excited and am looking forward to all the Christmas decorations. - 15 hours ago

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Here's another ron one coz he's my fave character who's yours? 😉💕
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@teddysphotos 
#edsheeran #sheerios #edforever #sheerio #sheerioforever #allabouted #eds #sheeriofamily #edisbae #edsheeranfans #harrypotter

Here's another ron one coz he's my fave character who's yours? . . . . . @teddysphotos #edsheeran #sheerios #edforever #sheerio #sheerioforever #allabouted #eds #sheeriofamily #edisbae #edsheeranfans #harrypotter - 15 hours ago

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The Clivo axial angle + stretching of the brain stem ...
Dr F Henderson’s studies are brilliant on this subject -
Neurosurgeon in Washington DC -
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#atlantoaxialsubluxation #cranialcervicalinstability #atlantoaxialinstability #uprightmri #atlantooccipitaldislocation #eds #neckinjury #headinjury #harrismeasurement#elherdanlos #elhersdanlossyndrome #cranialfusion #occipitalneuralgia #atlantooccipitaldislocation #autonomicnervoussystem #internaldecapitation #neckpain #disability #pain #invisibleillness #radiology #neurosurgery #cervicalspine #spinalfusion#ribremoval#potssyndrome #headache #neckpain#chiropractor#spinesurgery#misdiagnosed #brainstem

The Clivo axial angle + stretching of the brain stem ... Dr F Henderson’s studies are brilliant on this subject - Neurosurgeon in Washington DC - - - #atlantoaxialsubluxation #cranialcervicalinstability #atlantoaxialinstability #uprightmri #atlantooccipitaldislocation #eds #neckinjury #headinjury #harrismeasurement #elherdanlos #elhersdanlossyndrome #cranialfusion #occipitalneuralgia #atlantooccipitaldislocation #autonomicnervoussystem #internaldecapitation #neckpain #disability #pain #invisibleillness #radiology #neurosurgery #cervicalspine #spinalfusion #ribremoval #potssyndrome #headache #neckpain #chiropractor #spinesurgery #misdiagnosed #brainstem - 15 hours ago

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Tarlov cyst
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#atlantoaxialsubluxation #cranialcervicalinstability #atlantoaxialinstability #uprightmri #atlantooccipitaldislocation #eds #neckinjury #headinjury #harrismeasurement#elherdanlos #elhersdanlossyndrome #cranialfusion #occipitalneuralgia #atlantooccipitaldislocation #autonomicnervoussystem #internaldecapitation #neckpain #disability #pain #invisibleillness #radiology #neurosurgery #cervicalspine #spinalfusion#ribremoval#potssyndrome #headache #neckpain#chiropractor#spinesurgery#misdiagnosed #tarlovcystdisease

Tarlov cyst - - - - #atlantoaxialsubluxation #cranialcervicalinstability #atlantoaxialinstability #uprightmri #atlantooccipitaldislocation #eds #neckinjury #headinjury #harrismeasurement #elherdanlos #elhersdanlossyndrome #cranialfusion #occipitalneuralgia #atlantooccipitaldislocation #autonomicnervoussystem #internaldecapitation #neckpain #disability #pain #invisibleillness #radiology #neurosurgery #cervicalspine #spinalfusion #ribremoval #potssyndrome #headache #neckpain #chiropractor #spinesurgery #misdiagnosed #tarlovcystdisease - 16 hours ago

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